Shelley Kirk1, Sarah Armstrong2, Eileen King1, Christine Trapp3, Mollie Grow4, Jared Tucker5, Madeline Joseph6, Lenna Liu4, Ashley Weedn7, Brooke Sweeney8, Claudia Fox9, Samreen Fathima10, Ronald Williams11, Roy Kim12, William Stratbucker5. 1. 1 Cincinnati Children's Hospital Medical Center , Cincinnati, OH. 2. 2 Duke Children's Hospital Medical Center , Durham, NC. 3. 3 Connecticut Children's Medical Center , Hartford, CT. 4. 4 Seattle Children's Hospital , Seattle, WA. 5. 5 Helen DeVos Children's Hospital/Michigan State University , Grand Rapids, MI. 6. 6 UF Health Pediatric Weight Management Center at Wolfson Children Hospital , Jacksonville, FL. 7. 7 University of Oklahoma Health Sciences Center , Oklahoma City, OK. 8. 8 Children's Mercy Hospital , Kansas City, MO. 9. 9 University of Minnesota Masonic Children's Hospital , Minneapolis, MN. 10. 10 Eastern Maine Medical Center , Bangor, ME. 11. 11 Penn State Children's Hospital , Hershey, PA. 12. 12 Children's Medical Center-UT Southwestern Medical Center , Dallas, TX.
Abstract
BACKGROUND: Prospective patient registries have been successfully utilized in several disease states with a goal of improving treatment approaches through multi-institutional collaboration. The prevalence of youth with severe obesity is at a historic high in the United States, yet evidence to guide effective weight management is limited. The Pediatric Obesity Weight Evaluation Registry (POWER) was established in 2013 to identify and promote effective intervention strategies for pediatric obesity. METHODS: Sites in POWER provide multicomponent pediatric weight management (PWM) care for youth with obesity and collect a defined set of demographic and clinical parameters, which they regularly submit to the POWER Data Coordinating Center. A program profile survey was completed by sites to describe characteristics of the respective PWM programs. RESULTS: From January 2014 through December 2015, 26 US sites were enrolled in POWER and had submitted data on 3643 youth with obesity. Ninety-five percent were 6-18 years of age, 54% female, 32% nonwhite, 32% Hispanic, and 59% publicly insured. Over two-thirds had severe obesity. All sites included a medical provider and used weight status in their referral criteria. Other program characteristics varied widely between sites. CONCLUSION: POWER is an established national registry representing a diverse sample of youth with obesity participating in multicomponent PWM programs across the United States. Using high-quality data collection and a collaborative research infrastructure, POWER aims to contribute to the development of evidence-based guidelines for multicomponent PWM programs.
BACKGROUND: Prospective patient registries have been successfully utilized in several disease states with a goal of improving treatment approaches through multi-institutional collaboration. The prevalence of youth with severe obesity is at a historic high in the United States, yet evidence to guide effective weight management is limited. The Pediatric Obesity Weight Evaluation Registry (POWER) was established in 2013 to identify and promote effective intervention strategies for pediatric obesity. METHODS: Sites in POWER provide multicomponent pediatric weight management (PWM) care for youth with obesity and collect a defined set of demographic and clinical parameters, which they regularly submit to the POWER Data Coordinating Center. A program profile survey was completed by sites to describe characteristics of the respective PWM programs. RESULTS: From January 2014 through December 2015, 26 US sites were enrolled in POWER and had submitted data on 3643 youth with obesity. Ninety-five percent were 6-18 years of age, 54% female, 32% nonwhite, 32% Hispanic, and 59% publicly insured. Over two-thirds had severe obesity. All sites included a medical provider and used weight status in their referral criteria. Other program characteristics varied widely between sites. CONCLUSION: POWER is an established national registry representing a diverse sample of youth with obesity participating in multicomponent PWM programs across the United States. Using high-quality data collection and a collaborative research infrastructure, POWER aims to contribute to the development of evidence-based guidelines for multicomponent PWM programs.
Authors: Aaron S Kelly; Marsha D Marcus; Jack A Yanovski; Susan Z Yanovski; Stavroula K Osganian Journal: Int J Obes (Lond) Date: 2018-10-03 Impact factor: 5.095
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