Stewart M Bond1, Karen Schumacher2, Amanda Sherrod3, Mary S Dietrich4, Nancy Wells5, Robert H Lindau6, Barbara A Murphy7. 1. Boston College William F. Connell School of Nursing, 378C Maloney Hall, 140 Commonwealth Avenue, Chestnut Hill, MA 02467, USA; Yvonne L. Munn Center for Nursing Research, Massachusetts General Hospital, 55 Fruit Street, Boston, MA 02114, USA. Electronic address: stewart.bond@bc.edu. 2. College of Nursing, 985330 Nebraska Medical Center, 4111 Dewey Avenue, Omaha, NE 68190-5330, USA. Electronic address: kschumacher@unmc.edu. 3. 2215 Garland Avenue (Light Hall), Nashville, TN 37232, USA. Electronic address: sherroam@gmail.com. 4. 410 Godchaux Hall, 461 21st Avenue South, Nashville, TN 37240, USA. Electronic address: mary.dietrich@vanderbilt.edu. 5. S-2411 Medical Center North, 1161 21st Avenue South, Nashville, TN 37232-2424, USA. Electronic address: nancy.wells@vanderbilt.edu. 6. Department of Otolaryngology - Head and Neck Surgery, 981225 Nebraska Medical Center, Omaha, NE 68198-1225, USA. Electronic address: Robert.lindauIII@nmhs.org. 7. 777 Preston Research Building, 2220 Pierce Avenue, Nashville, TN 37232, USA. Electronic address: barbara.murphy@vanderbilt.edu.
Abstract
PURPOSE: Family caregivers provide vital support for patients with head and neck cancer (HNC), yet few studies have focused on HNC caregiving. Our objective was to develop and conduct initial validation of the HNC Caregiving Task Inventory, an instrument to characterize caregiving task burden in the HNC population. METHODS: This 5-phase instrument development project involved the conceptualization of caregiving task burden (Phase 1), initial instrument development (Phase 2), assessment of content validity through expert panel review (Phase 3), assessment of face validity through family caregiver review (Phase 4), and preliminary validation in a sample of 106 family caregivers (Phase 5). RESULTS: We identified 11 domains of the HNC caregiving role and caregiving tasks for each domain. In Phase 3, the experts deemed all tasks relevant to HNC family caregiving. No tasks were eliminated and 19 were added. In Phase 4, family caregiver feedback indicated that the tasks were comprehensive and relevant. Wording and formatting changes were made and one task was added. In Phase 5, we evaluated discrimination of responses to derive a final version comprised of 58 tasks in 11 domains. Kuder-Richardson values for domains with ≥3 items ranged from 0.65 to 0.94. Associations were generally high with the Caregiving Burden Scale, moderate with the Caregiver Reaction Assessment and Profile of Mood States-Short Form, and low or non-existent with the Preparedness Scale. CONCLUSION: Convergent and divergent validity were supported. The HNC Caregiving Task Inventory can be used to evaluate caregiving task burden across the treatment trajectory and identify targets for intervention.
PURPOSE: Family caregivers provide vital support for patients with head and neck cancer (HNC), yet few studies have focused on HNC caregiving. Our objective was to develop and conduct initial validation of the HNC Caregiving Task Inventory, an instrument to characterize caregiving task burden in the HNC population. METHODS: This 5-phase instrument development project involved the conceptualization of caregiving task burden (Phase 1), initial instrument development (Phase 2), assessment of content validity through expert panel review (Phase 3), assessment of face validity through family caregiver review (Phase 4), and preliminary validation in a sample of 106 family caregivers (Phase 5). RESULTS: We identified 11 domains of the HNC caregiving role and caregiving tasks for each domain. In Phase 3, the experts deemed all tasks relevant to HNC family caregiving. No tasks were eliminated and 19 were added. In Phase 4, family caregiver feedback indicated that the tasks were comprehensive and relevant. Wording and formatting changes were made and one task was added. In Phase 5, we evaluated discrimination of responses to derive a final version comprised of 58 tasks in 11 domains. Kuder-Richardson values for domains with ≥3 items ranged from 0.65 to 0.94. Associations were generally high with the Caregiving Burden Scale, moderate with the Caregiver Reaction Assessment and Profile of Mood States-Short Form, and low or non-existent with the Preparedness Scale. CONCLUSION: Convergent and divergent validity were supported. The HNC Caregiving Task Inventory can be used to evaluate caregiving task burden across the treatment trajectory and identify targets for intervention.
Authors: M-S Paek; C L Nightingale; J A Tooze; B-J Milliron; K E Weaver; K R Sterba Journal: Eur J Cancer Care (Engl) Date: 2018-02-20 Impact factor: 2.520
Authors: Katherine R Sterba; Kent Armeson; Jane Zapka; Elizabeth Garrett-Mayer; Megan L Scallion; Tiffany K Wall; Jama Olsen; Evan M Graboyes; Anthony J Alberg; Terry A Day Journal: J Cancer Surviv Date: 2022-06-27 Impact factor: 4.442
Authors: Neerav Goyal; Andrew Day; Joel Epstein; Joseph Goodman; Evan Graboyes; Scharukh Jalisi; Ana P Kiess; Jamie A Ku; Matthew C Miller; Aru Panwar; Vijay A Patel; Assuntina Sacco; Vlad Sandulache; Amy M Williams; Daniel Deschler; D Gregory Farwell; Cherie-Ann Nathan; Carole Fakhry; Nishant Agrawal Journal: Laryngoscope Investig Otolaryngol Date: 2021-11-30