Tessa L Crume1, Richard F Hamman2, Scott Isom3, Jennifer Talton3, Jasmin Divers3, Elizabeth J Mayer-Davis4, Victor W Zhong4, Angela D Liese5, Sharon Saydah6, Debra A Standiford7, Jean M Lawrence8, Catherine Pihoker9, Dana Dabelea2. 1. Department of Epidemiology, Colorado School of Public Health, University of Colorado Denver, Aurora. Electronic address: Tessa.Crume@ucdenver.edu. 2. Department of Epidemiology, Colorado School of Public Health, University of Colorado Denver, Aurora. 3. Wake Forest School of Medicine, Medical Center Blvd, Winston-Salem, NC. 4. School of Public Health and School of Medicine, University of North Carolina at Chapel Hill, Chapel Hill. 5. Department of Epidemiology and Biostatistics, University of South Carolina, Columbia. 6. Division of Diabetes Translation, Centers for Disease Control and Prevention, Hyattsville, MD. 7. Division of Endocrinology, Children's Hospital Medical Center, Cincinnati, OH. 8. Department of Research & Evaluation, Kaiser Permanente Southern California, Pasadena. 9. Department of Pediatric Endocrinology, Children's Hospital & Regional Medical Center, University of Washington, Seattle.
Abstract
PURPOSE: The development of a sustainable pediatric diabetes surveillance system for the United States requires a better understanding of issues related to case ascertainment. METHODS: Using the SEARCH for Diabetes in Youth registry, we examined whether time from diabetes diagnosis to case registration differed by diabetes type, patient demographics, and the type of provider reporting the case to the study. Plots for time from diagnosis to registration were developed, and differences by key variables were examined using the log-rank test. RESULTS: Compared with time to registration for type 1 cases, it took 2.6 (95% confidence interval [CI], 2.5-2.6) times longer to register 50% of type 2 diabetes cases, and 2.3 (95% CI, 2.0-2.5) times longer to register 90% of type 2 cases. For type 1 diabetes cases, a longer time to registration was associated with older age, minority race/ethnicity, and cases, where the referring provider was not an endocrinologist. For type 2 diabetes cases, older age, non-Hispanic white race/ethnicity, and cases reported by providers other than an endocrinologist took longer to identify and register. CONCLUSIONS: These findings highlight the need for continued childhood diabetes surveillance to identify future trends and influences on changes in prevalence and incidence.
PURPOSE: The development of a sustainable pediatric diabetes surveillance system for the United States requires a better understanding of issues related to case ascertainment. METHODS: Using the SEARCH for Diabetes in Youth registry, we examined whether time from diabetes diagnosis to case registration differed by diabetes type, patient demographics, and the type of provider reporting the case to the study. Plots for time from diagnosis to registration were developed, and differences by key variables were examined using the log-rank test. RESULTS: Compared with time to registration for type 1 cases, it took 2.6 (95% confidence interval [CI], 2.5-2.6) times longer to register 50% of type 2 diabetes cases, and 2.3 (95% CI, 2.0-2.5) times longer to register 90% of type 2 cases. For type 1 diabetes cases, a longer time to registration was associated with older age, minority race/ethnicity, and cases, where the referring provider was not an endocrinologist. For type 2 diabetes cases, older age, non-Hispanic white race/ethnicity, and cases reported by providers other than an endocrinologist took longer to identify and register. CONCLUSIONS: These findings highlight the need for continued childhood diabetes surveillance to identify future trends and influences on changes in prevalence and incidence.
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