Literature DB >> 27653401

Deliberation to Promote Shared Sovereignty in Health Research: Four Questions to Clarify Goals, Methods, and Scope.

Jantina de Vries1, Syntia Nchangwi Munung1, Paulina Tindana2.   

Abstract

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Year:  2016        PMID： 27653401      PMCID： PMC5141257          DOI： 10.1080/15265161.2016.1214326

Source DB:  PubMed          Journal:  Am J Bioeth        ISSN： 1526-5161            Impact factor:   11.229


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  9 in total

1.  Recruiting for representation in public deliberation on the ethics of biobanks.

Authors:  Holly Longstaff; Michael M Burgess
Journal:  Public Underst Sci       Date:  2010-03

2.  Aligning community engagement with traditional authority structures in global health research: a case study from northern Ghana.

Authors:  Paulina O Tindana; Linda Rozmovits; Renaud F Boulanger; Sunita V S Bandewar; Raymond A Aborigo; Abraham V O Hodgson; Pamela Kolopack; James V Lavery
Journal:  Am J Public Health       Date:  2011-08-18       Impact factor: 9.308

3.  From consent to institutions: designing adaptive governance for genomic biobanks.

Authors:  Kieran C O'Doherty; Michael M Burgess; Kelly Edwards; Richard P Gallagher; Alice K Hawkins; Jane Kaye; Veronica McCaffrey; David E Winickoff
Journal:  Soc Sci Med       Date:  2011-07-02       Impact factor: 4.634

4.  From 'trust us' to participatory governance: Deliberative publics and science policy.

Authors:  Michael M Burgess
Journal:  Public Underst Sci       Date:  2014-01

5.  Governance of Transnational Global Health Research Consortia and Health Equity.

Authors:  Bridget Pratt; Adnan A Hyder
Journal:  Am J Bioeth       Date:  2016-10       Impact factor: 11.229

6.  Exploring researchers' experiences of working with a researcher-driven, population-specific community advisory board in a South African schizophrenia genomics study.

Authors:  Megan M Campbell; Ezra Susser; Jantina de Vries; Adam Baldinger; Goodman Sibeko; Michael M Mndini; Sibonile G Mqulwana; Odwa A Ntola; Raj S Ramesar; Dan J Stein
Journal:  BMC Med Ethics       Date:  2015-07-02       Impact factor: 2.652

Review 7.  Community engagement strategies for genomic studies in Africa: a review of the literature.

Authors:  Paulina Tindana; Jantina de Vries; Megan Campbell; Katherine Littler; Janet Seeley; Patricia Marshall; Jennifer Troyer; Morisola Ogundipe; Vincent Pius Alibu; Aminu Yakubu; Michael Parker
Journal:  BMC Med Ethics       Date:  2015-04-12       Impact factor: 2.652

8.  Consulting communities on feedback of genetic findings in international health research: sharing sickle cell disease and carrier information in coastal Kenya.

Authors:  Vicki Marsh; Francis Kombe; Raymond Fitzpatrick; Thomas N Williams; Michael Parker; Sassy Molyneux
Journal:  BMC Med Ethics       Date:  2013-10-14       Impact factor: 2.652

9.  Managing misaligned paternity findings in research including sickle cell disease screening in Kenya: 'consulting communities' to inform policy.

Authors:  Vicki Marsh; Francis Kombe; Ray Fitzpatrick; Sassy Molyneux; Michael Parker
Journal:  Soc Sci Med       Date:  2013-08-03       Impact factor: 4.634
  9 in total
  2 in total

1.  Biological sample donation and informed consent for neurobiobanking: Evidence from a community survey in Ghana and Nigeria.

Authors:  Arti Singh; Oyedunni Arulogun; Joshua Akinyemi; Michelle Nichols; Benedict Calys-Tagoe; Babatunde Ojebuyi; Carolyn Jenkins; Reginald Obiako; Albert Akpalu; Fred Sarfo; Kolawole Wahab; Adeniyi Sunday; Lukman F Owolabi; Muyiwa Adigun; Ibukun Afolami; Olorunyomi Olorunsogbon; Mayowa Ogunronbi; Ezinne Sylvia Melikam; Ruth Laryea; Shadrack Asibey; Wisdom Oguike; Lois Melikam; Abdullateef Sule; Musibau A Titiloye; Isah Suleiman Yahaya; Abiodun Bello; Rajesh N Kalaria; Ayodele Jegede; Mayowa Owolabi; Bruce Ovbiagele; Rufus Akinyemi
Journal:  PLoS One       Date:  2022-08-11       Impact factor: 3.752

2.  Unraveling the Ethical, Legal, and Social Implications of Neurobiobanking and Stroke Genomic Research in Africa: A Study Protocol of the African Neurobiobank for Precision Stroke Medicine ELSI Project.

Authors:  Rufus O Akinyemi; Carolyn Jenkins; Michelle Nichols; Arti Singh; Kolawole Wahab; Albert Akpalu; Fred S Sarfo; Lukman F Owolabi; Reginald Obiako; Joshua Akinyemi; Babatunde Ojebuyi; Muyiwa Adigun; Rabiu Musbahu; Abiodun Bello; Musibau Titiloye; Benedict Calys-Tagoe; Mayowa Ogunronbi; Ezinne Uvere; Ruth Laryea; Adekunle Fakunle; Osi Adeleye; Olorunyomi Olorunsogbon; Adebayo Ojo; Deborah Adesina; Nathaniel Mensah; Wisdom Oguike; Nathaniel Coleman; Aliyu Mande; Muhammed Uthman; Rajesh N Kalaria; Ayodele Jegede; Mayowa Owolabi; Bruce Ovbiagele; Oyedunni Arulogun
Journal:  Int J Qual Methods       Date:  2020-06-23
  2 in total

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