Literature DB >> 27646693

Using PROMs in Healthcare: Who Should Be in the Driving Seat-Policy Makers, Health Professionals, Methodologists or Patients?

Kirstie L Haywood1, Roger Wilson2, Sophie Staniszewska3, Sam Salek4.   

Abstract

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Year:  2016        PMID： 27646693     DOI： 10.1007/s40271-016-0197-5

Source DB:  PubMed          Journal:  Patient        ISSN： 1178-1653            Impact factor:   3.883


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  30 in total

1.  Content validity--establishing and reporting the evidence in newly developed patient-reported outcomes (PRO) instruments for medical product evaluation: ISPOR PRO good research practices task force report: part 1--eliciting concepts for a new PRO instrument.

Authors:  Donald L Patrick; Laurie B Burke; Chad J Gwaltney; Nancy Kline Leidy; Mona L Martin; Elizabeth Molsen; Lena Ring
Journal:  Value Health       Date:  2011-10-13       Impact factor: 5.725

Review 2.  Recommendations for the Involvement of Patient Research Partners (PRP) in OMERACT Working Groups. A Report from the OMERACT 2014 Working Group on PRP.

Authors:  Peter P Cheung; Maarten de Wit; Clifton O Bingham; John R Kirwan; Amye Leong; Lyn M March; Pam Montie; Marieke Scholte-Voshaar; Laure Gossec
Journal:  J Rheumatol       Date:  2015-04-15       Impact factor: 4.666

3.  How should we define health?

Authors:  Machteld Huber; J André Knottnerus; Lawrence Green; Henriëtte van der Horst; Alejandro R Jadad; Daan Kromhout; Brian Leonard; Kate Lorig; Maria Isabel Loureiro; Jos W M van der Meer; Paul Schnabel; Richard Smith; Chris van Weel; Henk Smid
Journal:  BMJ       Date:  2011-07-26

4.  The inevitable application of big data to health care.

Authors:  Travis B Murdoch; Allan S Detsky
Journal:  JAMA       Date:  2013-04-03       Impact factor: 56.272

5.  The psychosocial outcomes of cardiac arrest: relevant and robust patient-centred assessment is essential.

Authors:  Kirstie L Haywood; Laura Whitehead; Gavin D Perkins
Journal:  Resuscitation       Date:  2014-04-04       Impact factor: 5.262

6.  Patient and public involvement.

Authors:  D Stewart; R Wilson; P Selby; J Darbyshire
Journal:  Ann Oncol       Date:  2011-11       Impact factor: 32.976

Review 7.  Quality and acceptability of patient-reported outcome measures used in chronic fatigue syndrome/myalgic encephalomyelitis (CFS/ME): a systematic review.

Authors:  Kirstie L Haywood; Sophie Staniszewska; Sarah Chapman
Journal:  Qual Life Res       Date:  2011-05-18       Impact factor: 4.147

8.  Symptom burden, survival and palliative care in advanced soft tissue sarcoma.

Authors:  Nicholas J Gough; Clare Smith; Joy R Ross; Julia Riley; Ian Judson
Journal:  Sarcoma       Date:  2011-12-11

Review 9.  Patient involvement in outcome measures for psoriatic arthritis.

Authors:  William Tillett; Ade Adebajo; Mel Brooke; Willemina Campbell; Laura C Coates; Oliver FitzGerald; Laure Gossec; Philip Helliwell; Sarah Hewlett; Jana James; Patricia Minnock; Aisling Reast; Dennis O'Sullivan; Maarten de Wit; Neil McHugh
Journal:  Curr Rheumatol Rep       Date:  2014-05       Impact factor: 4.592

10.  Developing core outcome sets for clinical trials: issues to consider.

Authors:  Paula R Williamson; Douglas G Altman; Jane M Blazeby; Mike Clarke; Declan Devane; Elizabeth Gargon; Peter Tugwell
Journal:  Trials       Date:  2012-08-06       Impact factor: 2.279
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  9 in total

1.  'Give Us The Tools!': development of knowledge transfer tools to support the involvement of patient partners in the development of clinical trial protocols with patient-reported outcomes (PROs), in accordance with SPIRIT-PRO Extension.

Authors:  Samantha Cruz Rivera; Richard Stephens; Rebecca Mercieca-Bebber; Ameeta Retzer; Claudia Rutherford; Gary Price; Anita Slade; Olalekan Lee Aiyegbusi; Philip Edge; Lesley Roberts; Lesley Gosden; Rav Verdi; Roger Wilson; Melanie Calvert
Journal:  BMJ Open       Date:  2021-06-30       Impact factor: 2.692

Review 2.  Patient-reported outcome measures used in patients with primary sclerosing cholangitis: a systematic review.

Authors:  Fatima Isa; Grace M Turner; Geetinder Kaur; Derek Kyte; Anita Slade; Tanya Pankhurst; Larissa Kerecuk; Thomas Keeley; James Ferguson; Melanie Calvert
Journal:  Health Qual Life Outcomes       Date:  2018-07-05       Impact factor: 3.186

3.  Measurement properties of oral health related patient reported outcome measures in patients with oral cancer: A systematic review using COSMIN checklist.

Authors:  Shailesh M Gondivkar; Amol R Gadbail; Sachin C Sarode; Rima S Gondivkar; Monal Yuwanati; Gargi S Sarode; Shankargouda Patil
Journal:  PLoS One       Date:  2019-06-27       Impact factor: 3.240

4.  Social media as a tool for assessing patient perspectives on quality of life in metastatic melanoma: a feasibility study.

Authors:  Amr Makady; Rachel R J Kalf; Bettina Ryll; Gilliosa Spurrier; Anthonius de Boer; Hans Hillege; Olaf H Klungel; Wim Goettsch
Journal:  Health Qual Life Outcomes       Date:  2018-11-29       Impact factor: 3.186

5.  Assessing fatigue in adults with axial spondyloarthritis: a systematic review of the quality and acceptability of patient-reported outcome measures.

Authors:  Nathan A Pearson; Jonathan C Packham; Elizabeth Tutton; Helen Parsons; Kirstie L Haywood
Journal:  Rheumatol Adv Pract       Date:  2018-05-29

6.  The needs of key-stakeholders for evaluating client's experienced quality of home care: a qualitative approach.

Authors:  Roy Haex; Theresa Thoma-Lürken; Sandra Zwakhalen; Anna Beurskens
Journal:  J Patient Rep Outcomes       Date:  2020-11-10

Review 7.  Measurement instruments for parental stress in the postpartum period: A scoping review.

Authors:  Anne-Martha Utne Øygarden; Rigmor C Berg; Abdallah Abudayya; Kari Glavin; Benedicte Sørensen Strøm
Journal:  PLoS One       Date:  2022-03-18       Impact factor: 3.240

8.  Quality and acceptability of patient-reported outcome measures used to assess fatigue in axial spondyloarthritis (axSpA): a systematic review (protocol).

Authors:  Nathan A Pearson; Jonathan C Packham; Helen Parsons; Kirstie L Haywood
Journal:  Syst Rev       Date:  2018-08-07

Review 9.  The facilitators and barriers to implementing patient reported outcome measures in organisations delivering health related services: a systematic review of reviews.

Authors:  Alexis Foster; Liz Croot; John Brazier; Janet Harris; Alicia O'Cathain
Journal:  J Patient Rep Outcomes       Date:  2018-10-03
  9 in total

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