Literature DB >> 27643844

Illness identity as an important component of candidacy: Contrasting experiences of help-seeking and access to care in cancer and heart disease.

Sara Macdonald1, David Blane2, Susan Browne2, Ellie Conway2, Una Macleod3, Carl May4, Frances Mair2.   

Abstract

How and when we use health services or healthcare provision has dominated exploration of and debates around healthcare access. Levels of utilisation are assumed as a proxy for access. Yet, focusing on utilisation conceals an important aspect of the access conundrum: the relationships that patients and potential patients have with the healthcare system and the professionals within those systems. Candidacy has been proposed as an antidote to traditional utilisation models. The Candidacy construct offers the ability to include patient-professional aspects alongside utilisation and thus promotes a deeper understanding of access. Originally applied to healthcare access for vulnerable populations, additional socio-demographic factors, including age and ethnicity, have also been shown to influence the Candidacy process. Here we propose a further extension of the Candidacy construct and illustrate the importance of illness identities when accessing healthcare. Drawing on a secondary data analysis of three data sets of qualitative interviews from colorectal cancer and heart failure patients we found that though similar access issues are apparent pre-diagnosis, diagnosis marks a critical juncture in the experience of access. Cancer patients describe a person-centred responsive healthcare system where their patienthood requires only modest assertion. Cancer speaks for itself. In marked contrast heart failure patients, describe struggling within a seemingly impermeable system to understand their illness, its implications and their own legitimacy as patients. Our work highlights the pressing need for healthcare professionals, systems and policies to promote a person centred approach, which is responsive and timely, regardless of illness category. To achieve this, attitudes regarding the importance or priority afforded to different categories of illness need to be tackled as they directly influence ideas of Candidacy and consequently access and experiences of care.
Copyright © 2016 Elsevier Ltd. All rights reserved.

Entities:  

Keywords:  Access; Cancer; Candidacy; Heart failure; Illness identities; Secondary analysis; United Kingdom

Mesh:

Year:  2016        PMID: 27643844     DOI: 10.1016/j.socscimed.2016.08.022

Source DB:  PubMed          Journal:  Soc Sci Med        ISSN: 0277-9536            Impact factor:   4.634


  11 in total

1.  A need-based, multi-level, cross-sectoral framework to explain variations in satisfaction of care needs among people living with dementia.

Authors:  Chiara De Poli; Jan Oyebode; Mara Airoldi; Richard Glover
Journal:  BMC Health Serv Res       Date:  2020-07-15       Impact factor: 2.655

2.  Untimely illness: When diagnosis does not match age-related expectations.

Authors:  Susan Kirkpatrick; Louise Locock; Albert Farre; Sara Ryan; Helen Salisbury; Janet E McDonagh
Journal:  Health Expect       Date:  2018-02-09       Impact factor: 3.377

3.  Using the candidacy framework to understand how doctor-patient interactions influence perceived eligibility to seek help for cancer alarm symptoms: a qualitative interview study.

Authors:  Sara Tookey; Cristina Renzi; Jo Waller; Christian von Wagner; Katriina L Whitaker
Journal:  BMC Health Serv Res       Date:  2018-12-04       Impact factor: 2.655

4.  Exploring adolescents and young people's candidacy for utilising health services in a rural district, South Africa.

Authors:  Busisiwe Nkosi; Janet Seeley; Nothando Ngwenya; S Lerato Mchunu; Dumile Gumede; Jane Ferguson; Aoife M Doyle
Journal:  BMC Health Serv Res       Date:  2019-03-28       Impact factor: 2.655

5.  Exploring People's Candidacy for Mobile Health-Supported HIV Testing and Care Services in Rural KwaZulu-Natal, South Africa: Qualitative Study.

Authors:  Oluwafemi Adeagbo; Carina Herbst; Ann Blandford; Rachel McKendry; Claudia Estcourt; Janet Seeley; Maryam Shahmanesh
Journal:  J Med Internet Res       Date:  2019-11-18       Impact factor: 5.428

6.  Using candidacy theory to explore unemployed over-50s perceptions of suitability of a welfare to work programme: A longitudinal qualitative study.

Authors:  Joanne Neary; Srinivasa V Katikireddi; Ronald W McQuaid; Ewan B Macdonald; Hilary Thomson
Journal:  Soc Policy Adm       Date:  2021-07

7.  Engaging the 'Missing Men' in the HIV Treatment Cascade: Creating a Tailored Intervention to Improve Men's Uptake of HIV Care Services in Rural South Africa: A Study Protocol.

Authors:  Oluwafemi Adeagbo; Kammila Naidoo
Journal:  Int J Environ Res Public Health       Date:  2021-04-02       Impact factor: 3.390

8.  Women at high risk of HIV-infection in Kampala, Uganda, and their candidacy for PrEP.

Authors:  Rachel Kawuma; Andrew Sentoogo Ssemata; Sarah Bernays; Janet Seeley
Journal:  SSM Popul Health       Date:  2021-01-30

9.  Barriers and facilitators to accessing and utilising post-treatment psychosocial support by Black men treated for prostate cancer-a systematic review and qualitative synthesis.

Authors:  Olufikayo O Bamidele; Obrey Alexis; Motolani Ogunsanya; Sarah Greenley; Aaron Worsley; Elizabeth D Mitchell
Journal:  Support Care Cancer       Date:  2022-01-04       Impact factor: 3.359

10.  Service User and Service Provider Perceptions of Enablers and Barriers for Refugee and Asylum-Seeking Women Accessing and Engaging with Perinatal Mental Health Care Services in the WHO European Region: A Scoping Review Protocol.

Authors:  Kathleen Markey; Anne MacFarlane; Maria Noonan; Mairead Moloney; Susann Huschke; Kate O'Donnell; Claire O'Donnell; Teresa Tuohy; Ahmed Hassan Mohamed; Owen Doody
Journal:  Int J Environ Res Public Health       Date:  2022-01-14       Impact factor: 3.390

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