Literature DB >> 27593570

Sociotechnical Analysis of Health Information Exchange Consent Processes in an HIV Clinic.

S Raquel Ramos, Peter Gordon, Suzanne Bakken, Rebecca Schnall.   

Abstract

Federal regulations have encouraged the electronic sharing of protected health information (PHI). As an opt-in state, New York abides by an affirmative consent model where PHI is electronically shared only after written consent is obtained. The purpose of our study was to describe sociotechnical factors that influence health information exchange (HIE) consent for persons living with HIV (PLWH) at one clinic in New York City. We employed mixed methods to gather perceptions of facilitators and barriers to HIE consent. Study participants included PLWH, staff, and clinicians. The mixed-methods approach revealed multiple interruptions in clinical workflow, staff and providers' time constraints, and lack of dedicated personnel focused on HIE consent as the major barriers to HIE consent. Although there is no one strategy to resolve barriers to HIE consent, having a dedicated person was identified as the most salient factor for facilitating HIE consent.
Copyright © 2016 Association of Nurses in AIDS Care. Published by Elsevier Inc. All rights reserved.

Entities:  

Keywords:  health information exchange; informed consent; persons living with HIV; sociotechnical analysis

Mesh:

Year:  2016        PMID: 27593570      PMCID: PMC5056831          DOI: 10.1016/j.jana.2016.08.001

Source DB:  PubMed          Journal:  J Assoc Nurses AIDS Care        ISSN: 1055-3290            Impact factor:   1.354


  27 in total

1.  HIV patients' willingness to share personal health information electronically.

Authors:  Paul A Teixeira; Peter Gordon; Eli Camhi; Suzanne Bakken
Journal:  Patient Educ Couns       Date:  2010-08-17

2.  Environmental scans: how useful are they for primary care research?

Authors:  Paul Graham; Trina Evitts; Roanne Thomas-MacLean
Journal:  Can Fam Physician       Date:  2008-07       Impact factor: 3.275

3.  Health-information exchange: why are we doing it, and what are we doing?

Authors:  Gilad J Kuperman
Journal:  J Am Med Inform Assoc       Date:  2011-06-14       Impact factor: 4.497

4.  Low-income, ethnically diverse consumers' perspective on health information exchange and personal health records.

Authors:  Vaishali N Patel; Rina V Dhopeshwarkar; Alison Edwards; Yolanda Barron; Antonios Likourezos; Luba Burd; Dmitry Olshansky; Rainu Kaushal
Journal:  Inform Health Soc Care       Date:  2011-08-18       Impact factor: 2.439

5.  Comparison of consumers' views on electronic data sharing for healthcare and research.

Authors:  Katherine K Kim; Jill G Joseph; Lucila Ohno-Machado
Journal:  J Am Med Inform Assoc       Date:  2015-03-30       Impact factor: 4.497

Review 6.  The state of engagement in HIV care in the United States: from cascade to continuum to control.

Authors:  Michael J Mugavero; K Rivet Amico; Tim Horn; Melanie A Thompson
Journal:  Clin Infect Dis       Date:  2013-06-23       Impact factor: 9.079

7.  Testing the Technology Acceptance Model: HIV case managers' intention to use a continuity of care record with context-specific links.

Authors:  Rebecca Schnall; Suzanne Bakken
Journal:  Inform Health Soc Care       Date:  2011-09       Impact factor: 2.439

8.  A new sociotechnical model for studying health information technology in complex adaptive healthcare systems.

Authors:  Dean F Sittig; Hardeep Singh
Journal:  Qual Saf Health Care       Date:  2010-10

9.  Despite substantial progress In EHR adoption, health information exchange and patient engagement remain low in office settings.

Authors:  Michael F Furukawa; Jennifer King; Vaishali Patel; Chun-Ju Hsiao; Julia Adler-Milstein; Ashish K Jha
Journal:  Health Aff (Millwood)       Date:  2014-08-07       Impact factor: 6.301

10.  Trust, confidentiality, and the acceptability of sharing HIV-related patient data: lessons learned from a mixed methods study about Health Information Exchanges.

Authors:  Andre Maiorana; Wayne T Steward; Kimberly A Koester; Charles Pearson; Starley B Shade; Deepalika Chakravarty; Janet J Myers
Journal:  Implement Sci       Date:  2012-04-19       Impact factor: 7.327

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  2 in total

1.  User-Centered Design, Experience, and Usability of an Electronic Consent User Interface to Facilitate Informed Decision-Making in an HIV Clinic.

Authors:  S Raquel Ramos
Journal:  Comput Inform Nurs       Date:  2017-11       Impact factor: 1.985

2.  Participatory Design of a Web-Based HIV Oral Self-Testing Infographic Experiment (HOTIE) for Emerging Adult Sexual Minority Men of Color: A Mixed Methods Randomized Control Trial.

Authors:  S Raquel Ramos; David T Lardier; Keosha T Bond; Donte T Boyd; Olivia M O'Hare; LaRon E Nelson; Barbara J Guthrie; Trace Kershaw
Journal:  Int J Environ Res Public Health       Date:  2021-11-12       Impact factor: 4.614

  2 in total

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