Literature DB >> 27571537

Experience and needs of family members of patients treated with extracorporeal membrane oxygenation.

Ralph Tramm1, Dragan Ilic2, Kerry Murphy2, Jayne Sheldrake3, Vincent Pellegrino3, Carol Hodgson1.   

Abstract

AIMS AND
OBJECTIVES: To explore the experiences of family members of patients treated with extracorporeal membrane oxygenation.
BACKGROUND: Sudden onset of an unexpected and severe illness is associated with an increased stress experience of family members. Only one study to date has explored the experience of family members of patients who are at high risk of dying and treated with extracorporeal membrane oxygenation.
DESIGN: A qualitative descriptive research design was used.
METHODS: A total of 10 family members of patients treated with extracorporeal membrane oxygenation were recruited through a convenient sampling approach. Data were collected using open-ended semi-structured interviews. A six-step process was applied to analyse the data thematically. Four criteria were employed to evaluate methodological rigour.
RESULTS: Family members of extracorporeal membrane oxygenation patients experienced psychological distress and strain during and after admission. Five main themes (Going Downhill, Intensive Care Unit Stress and Stressors, Carousel of Roles, Today and Advice) were identified. These themes were explored from the four roles of the Carousel of Roles theme (decision-maker, carer, manager and recorder) that participants experienced.
CONCLUSION: Nurses and other staff involved in the care of extracorporeal membrane oxygenation patients must pay attention to individual needs of the family and activate all available support systems to help them cope with stress and strain. RELEVANCE TO CLINICAL PRACTICE: An information and recommendation guide for families and staff caring for extracorporeal membrane oxygenation patients was developed and needs to be applied cautiously to the individual clinical setting.
© 2016 John Wiley & Sons Ltd.

Entities:  

Keywords:  acute care; care needs; caregiver burden; emotional distress; experiences; family; intensive care; psychological adaptation; qualitative study; stress

Mesh:

Year:  2017        PMID: 27571537     DOI: 10.1111/jocn.13566

Source DB:  PubMed          Journal:  J Clin Nurs        ISSN: 0962-1067            Impact factor:   3.036


  4 in total

Review 1.  Veno-venous extracorporeal membrane oxygenation allocation in the COVID-19 pandemic.

Authors:  Kadhiresan R Murugappan; Daniel P Walsh; Aaron Mittel; David Sontag; Shahzad Shaefi
Journal:  J Crit Care       Date:  2020-11-13       Impact factor: 3.425

Review 2.  Do-(Not-)Mechanical-Circulatory-Support Orders: Should We Ask All Cardiac Surgery Patients for Informed Consent for Post-Cardiotomy Extracorporeal Life Circulatory Support?

Authors:  Jorik Simons; Martje Suverein; Walther van Mook; Kadir Caliskan; Osama Soliman; Marcel van de Poll; Thijs Delnoij; Jos Maessen; Barend Mees; Roberto Lorusso
Journal:  J Clin Med       Date:  2021-01-20       Impact factor: 4.241

3.  A qualitative exploratory case series of patient and family experiences with ECPR for out-of-hospital cardiac arrest.

Authors:  Brian Grunau; Katie Dainty; Ruth MacRedmond; Ken McDonald; Ayumi Sasaki; Aimee J Sarti; Sam D Shemie; Anson Cheung; John Gill
Journal:  Resusc Plus       Date:  2021-04-28

4.  Persistence of patient and family experiences of critical illness.

Authors:  Eliotte L Hirshberg; Jorie Butler; Morgan Francis; Francis A Davis; Doriena Lee; Fahina Tavake-Pasi; Edwin Napia; Jeanette Villalta; Valentine Mukundente; Heather Coulter; Louisa Stark; Sarah J Beesley; James F Orme; Samuel M Brown; Ramona O Hopkins
Journal:  BMJ Open       Date:  2020-04-06       Impact factor: 2.692

  4 in total

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