Literature DB >> 27534590

Ethical Considerations in Research Participation Virality.

Carol Ellis-Barton1.   

Abstract

This article seeks to commence and encourage discussion around the upcoming ethical challenges of virality in network structures. When the call for participation in a research project on lupus in Ireland went from an advertisement in a newsletter to a meme (unit of transmissible information) on a closed Facebook page, the ethical considerations of virality were raised. The article analyzes the Association of Internet Researchers guidelines, Facebook policies, and the context of privacy in relation to virality. Virality creates the leverage for methodological pluralism. The nature of the inquiry can determine the method rather than the other way around. Viral ethical considerations are evolving due to the cyber world becoming the primary meme of communication, with flexibility in the researcher's protocol providing opportunities for efficient, cost-effective, and diverse recruitment.
© The Author(s) 2016.

Keywords:  internet research; privacy/confidentiality; public health; qualitative methods; research ethics

Mesh:

Year:  2016        PMID: 27534590     DOI: 10.1177/1556264616661632

Source DB:  PubMed          Journal:  J Empir Res Hum Res Ethics        ISSN: 1556-2646            Impact factor:   1.742


  1 in total

1.  Leveraging Interdisciplinary Teams to Develop and Implement Secure Websites for Behavioral Research: Applied Tutorial.

Authors:  Christie L Martin; Eydie N Kramer-Kostecka; Jennifer A Linde; Sarah Friend; Vanessa R Zuroski; Jayne A Fulkerson
Journal:  J Med Internet Res       Date:  2020-09-23       Impact factor: 5.428

  1 in total

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