Literature DB >> 27530715

An institutional pilot study to investigate physical activity patterns in boys with haemophilia.

V Bouskill1,2, P Hilliard3, S Stephens4, C Zhang4, K Whitney4, M Carcao5,4.   

Abstract

INTRODUCTION: Haemophilia is a bleeding disorder characterized by musculoskeletal bleeding. Trauma-induced bleeding into joints and muscles may be associated with participation in physical activities. Recognizing this, persons with haemophilia may limit physical activities to avoid bleeding. The characterization of physical activity profiles (type, intensity, frequency and duration) in children with differing severities of haemophilia has not been well documented. This is required to better understand the relationship between physical activity and bleeding in children with haemophilia. AIM: This study was a prospective, cross-sectional, observational study to compare the quantity, type and intensity of physical activity as measured by accelerometry in boys with different haemophilia severities.
METHODS: Subjects wore an accelerometer daily for 1 week and completed validated self-report PedHAL and 3DPAR questionnaires. Accelerometer activity levels were classified as sedentary, light, moderate or vigorous.
RESULTS: A total of 66 males were enrolled, 24 had mild/moderate and 42 had severe haemophilia. Subjects average age was 11.52 years (±3.99) and their average BMI was 20.74 kg m(2) (±5.68). Boys with severe haemophilia reported significantly more time per day spent in sedentary activities compared to those with mild/moderate haemophilia. Furthermore, the amount of time engaged in sedentary activities increased with age in those boys with severe haemophilia, whereas the opposite was true in those with mild/moderate haemophilia.
CONCLUSION: We speculate that prophylaxis in children with severe haemophilia permitted them to engage in similar amounts of moderate to vigorous physical activity (MVPA) as children with mild/moderate haemophilia. Increasing sedentary time in the severe cohort with age may be attributed to increasing arthropathy among other psychosocial factors.
© 2016 The Authors. Haemophilia Published by John Wiley & Sons Ltd.

Entities:  

Keywords:  accelerometry; children; haemophilia; physical activity; questionnaires

Mesh:

Year:  2016        PMID: 27530715     DOI: 10.1111/hae.13021

Source DB:  PubMed          Journal:  Haemophilia        ISSN: 1351-8216            Impact factor:   4.287


  7 in total

Review 1.  Recent advances in musculoskeletal physiotherapy for haemophilia.

Authors:  David Stephensen; Melanie Bladen; Paul McLaughlin
Journal:  Ther Adv Hematol       Date:  2018-07-02

2.  Physical Activity Monitoring and Acceptance of a Commercial Activity Tracker in Adult Patients with Haemophilia.

Authors:  Juan J Carrasco; Sofía Pérez-Alenda; José Casaña; Emilio Soria-Olivas; Santiago Bonanad; Felipe Querol
Journal:  Int J Environ Res Public Health       Date:  2019-10-12       Impact factor: 3.390

3.  The Paediatric Haemophilia Activities List (pedHAL) in routine assessment: changes over time, child-parent agreement and informative domains.

Authors:  Isolde A R Kuijlaars; Janjaap van der Net; Roger E G Schutgens; Kathelijn Fischer
Journal:  Haemophilia       Date:  2019-08-16       Impact factor: 4.287

Review 4.  Achieving the unimaginable: Health equity in haemophilia.

Authors:  Mark W Skinner; Diane Nugent; Pam Wilton; Brian O'Mahony; Gerry Dolan; Jamie O'Hara; Erik Berntorp
Journal:  Haemophilia       Date:  2019-11-13       Impact factor: 4.287

5.  Shortening the paediatric Haemophilia Activities List (pedHAL) based on pooled data from international studies.

Authors:  Isolde A R Kuijlaars; Janjaap van der Net; Vanessa Bouskill; Pamela Hilliard; Agne Juodyte; Kate Khair; Sonata Saulyte Trakymiene; Kathelijn Fischer
Journal:  Haemophilia       Date:  2021-02-16       Impact factor: 4.287

6.  Feasibility, safety and acceptability of select outcome measures in a physiotherapy study protocol for boys with haemophilia.

Authors:  Nicola Thorpe; Phillip Harniess; Eleanor Main; Nicola Hubert; Sarah Rand; David Stephensen; Ri Liesner; Melanie Bladen
Journal:  Pilot Feasibility Stud       Date:  2021-05-06

7.  An Electronic Patient-Reported Outcome Mobile App for Data Collection in Type A Hemophilia: Design and Usability Study.

Authors:  Francesco Petracca; Rosaria Tempre; Maria Cucciniello; Oriana Ciani; Elena Pompeo; Luigi Sannino; Valeria Lovato; Giancarlo Castaman; Alessandra Ghirardini; Rosanna Tarricone
Journal:  JMIR Form Res       Date:  2021-12-01
  7 in total

北京卡尤迪生物科技股份有限公司 © 2022-2023.