Candice L Osborne1, Christina Petersson2, James E Graham3, Walter J Meyer4, Rune J Simeonsson5, Oscar E Suman6, Kenneth J Ottenbacher3. 1. Department of Physical Medicine and Rehabilitation, University of Texas Southwestern Medical Center, Dallas, TX 75390, USA; Division of Rehabilitation Sciences, University of Texas Medical Branch, Galveston, TX 77555, USA. Electronic address: candice.osborne@utsouthwestern.edu. 2. School of Health Sciences, Research School of Health and Welfare at Jonkoping University, 551 11 Jonkoping, Sweden; CHILD (Children, Health, Intervention, Learning and Development) Research Group, Jonkoping University, 551 11 Jonkoping, Sweden. 3. Division of Rehabilitation Sciences, University of Texas Medical Branch, Galveston, TX 77555, USA. 4. Shriners Hospital for Children, Shriners Burn Hospital, Galveston, TX 77555, USA; Department of Surgery, School of Medicine, University of Texas Medical Branch, Galveston, TX 77555, USA; Department of Psychiatry and Behavioral Science, School of Medicine, University of Texas Medical Branch, Galveston, TX 77555, USA. 5. School of Education & FPG Child Development Institute, University of North Carolina, Chapel Hill, NC 27599, USA. 6. Shriners Hospital for Children, Shriners Burn Hospital, Galveston, TX 77555, USA; Department of Surgery, School of Medicine, University of Texas Medical Branch, Galveston, TX 77555, USA.
Abstract
OBJECTIVE: To link, classify and describe the content of the Multicenter Benchmarking Study Burn Outcomes Questionnaires (BOQ) using the International Classification of Functioning, Disability and Health (ICF) to determine if the information garnered provides researchers with the data necessary to develop a comprehensive understanding of life after burns. METHODS: Two ICF linking experts used a standardized linking technique endorsed by the World Health Organization to link all BOQ concepts to the ICF. Linking results were analyzed to determine the comprehensiveness of each of the five measures. RESULTS: The activities and participation component was most frequently addressed followed by the body functions component. Environmental factors are not extensively covered and body structures are not addressed. ICF chapter and category distribution were skewed and varied between assessments. The majority of BOQ items are of the health status perspective. CONCLUSION: BOQ item composition could be improved with a more even distribution of pertinent ICF topics. Assessment authors may consider addressing the impact of environmental factors on participation. Including body structure concepts would allow investigators to track structural deformation and/or developmental delay. Generally speaking, this data should not be used to examine quality of life outcomes.
OBJECTIVE: To link, classify and describe the content of the Multicenter Benchmarking Study Burn Outcomes Questionnaires (BOQ) using the International Classification of Functioning, Disability and Health (ICF) to determine if the information garnered provides researchers with the data necessary to develop a comprehensive understanding of life after burns. METHODS: Two ICF linking experts used a standardized linking technique endorsed by the World Health Organization to link all BOQ concepts to the ICF. Linking results were analyzed to determine the comprehensiveness of each of the five measures. RESULTS: The activities and participation component was most frequently addressed followed by the body functions component. Environmental factors are not extensively covered and body structures are not addressed. ICF chapter and category distribution were skewed and varied between assessments. The majority of BOQ items are of the health status perspective. CONCLUSION: BOQ item composition could be improved with a more even distribution of pertinent ICF topics. Assessment authors may consider addressing the impact of environmental factors on participation. Including body structure concepts would allow investigators to track structural deformation and/or developmental delay. Generally speaking, this data should not be used to examine quality of life outcomes.
Authors: Gabrielle G Grant; Keri J S Brady; Frederick J Stoddard; Walter J Meyer; Kathleen S Romanowski; Philip H Chang; Lynda E Painting; Laura A Fowler; Judith K Nelson; Khushbu F Patel; R Christopher Sheldrick; Alice Carter; Robert L Sheridan; Mary D Slavin; Petra Warner; Tina L Palmieri; Jeffrey C Schneider; Lewis E Kazis; Colleen M Ryan Journal: Burns Date: 2021-02-25 Impact factor: 2.744
Authors: Marc G Jeschke; Margriet E van Baar; Mashkoor A Choudhry; Kevin K Chung; Nicole S Gibran; Sarvesh Logsetty Journal: Nat Rev Dis Primers Date: 2020-02-13 Impact factor: 52.329
Authors: Camerin A Rencken; Silvanys L Rodríguez-Mercedes; Khushbu F Patel; Gabrielle G Grant; Erin M Kinney; Robert L Sheridan; Keri J S Brady; Tina L Palmieri; Petra M Warner; Renata B Fabia; Jeffrey C Schneider; Frederick J Stoddard; Lewis E Kazis; Colleen M Ryan Journal: J Burn Care Res Date: 2021-11-24 Impact factor: 1.845