Susan Madge1, Scott C Bell2, Pierre-Régis Burgel3, Karleen De Rijcke4, Francesco Blasi5, J Stuart Elborn6. 1. Department of Cystic Fibrosis, Royal Brompton Hospital, London, UK. Electronic address: s.madge@rbht.nhs.uk. 2. Department of Thoracic Medicine, The Prince Charles Hospital, Brisbane, Australia; Lung Bacteria Group, QIMR Berghofer Medical Research Institute, Brisbane, Australia; School of Medicine, University of Queensland, Brisbane, Australia. 3. Department of Respiratory Medicine and Adult Cystic Fibrosis, Assistance Publique Hôpitaux de Paris, Paris, France; Université Paris Descartes, Sorbonne Paris Cité, Paris, France. 4. Cystic Fibrosis Europe, Brussels, Belgium. 5. Department of Pathophysiology and Transplantation, Università degli Studi di Milano, Fondazione IRCCS Cà Granda Ospedale Maggiore Policlinico Milan, Italy; Cardio-thoracic unit, IRCCS Fondazione Ospedale Maggiore, Milan, Italy. 6. Queen's University Belfast, BT9 Room G.16, Health Sciences Building, 97 Lisburn Road, Belfast, UK.
Abstract
BACKGROUND: There are a growing number of adults in Europe with a projected increase of 75% over the next decade. There is concern that provision of care will not be sufficient to meet needs. We aimed to establish the level of CF service throughout Europe. METHODS: An online survey designed by clinicians and patient representatives to explore level of service. RESULTS: Training opportunities for clinicians and resources (physical and manpower) to provide care to adults with CF are limited in Europe. Although specific adult CF care has been identified, teams continue to be supported by paediatric colleagues and many adults are still being admitted to paediatric wards. In some centres, service delivery, particularly infection control and access to some CF medication is insufficient and in many places poor personnel resources limits access to comprehensive multidisciplinary teams. CONCLUSIONS: This survey shows an urgent need for the development of resources for adult CF care, in both physical space and appropriately trained clinicians.
BACKGROUND: There are a growing number of adults in Europe with a projected increase of 75% over the next decade. There is concern that provision of care will not be sufficient to meet needs. We aimed to establish the level of CF service throughout Europe. METHODS: An online survey designed by clinicians and patient representatives to explore level of service. RESULTS: Training opportunities for clinicians and resources (physical and manpower) to provide care to adults with CF are limited in Europe. Although specific adult CF care has been identified, teams continue to be supported by paediatric colleagues and many adults are still being admitted to paediatric wards. In some centres, service delivery, particularly infection control and access to some CF medication is insufficient and in many places poor personnel resources limits access to comprehensive multidisciplinary teams. CONCLUSIONS: This survey shows an urgent need for the development of resources for adult CF care, in both physical space and appropriately trained clinicians.
Authors: Scott C Bell; Marcus A Mall; Hector Gutierrez; Milan Macek; Susan Madge; Jane C Davies; Pierre-Régis Burgel; Elizabeth Tullis; Claudio Castaños; Carlo Castellani; Catherine A Byrnes; Fiona Cathcart; Sanjay H Chotirmall; Rebecca Cosgriff; Irmgard Eichler; Isabelle Fajac; Christopher H Goss; Pavel Drevinek; Philip M Farrell; Anna M Gravelle; Trudy Havermans; Nicole Mayer-Hamblett; Nataliya Kashirskaya; Eitan Kerem; Joseph L Mathew; Edward F McKone; Lutz Naehrlich; Samya Z Nasr; Gabriela R Oates; Ciaran O'Neill; Ulrike Pypops; Karen S Raraigh; Steven M Rowe; Kevin W Southern; Sheila Sivam; Anne L Stephenson; Marco Zampoli; Felix Ratjen Journal: Lancet Respir Med Date: 2019-09-27 Impact factor: 30.700
Authors: Marta Rachel; Stanisław Topolewicz; Andrzej Śliwczyński; Sabina Galiniak Journal: Int J Environ Res Public Health Date: 2020-10-20 Impact factor: 3.390