Literature DB >> 27469009

'Haematological cancers, they're a funny bunch': A qualitative study of non-Hodgkin's lymphoma patient experiences of unmet supportive care needs.

Brooke Swash1,2, Nick Hulbert-Williams1, Ros Bramwell1.   

Abstract

Despite high levels of psychological distress, there is a scarcity of research on unmet supportive care needs in haematological cancer patients. This qualitative study used an in-depth interpretative phenomenological approach to investigate the needs reported by six non-Hodgkin's lymphoma patients and explored how these needs consequently shaped the patient experience. Emergent themes included the following: concerns for family, information needs and the need for psychological support. Participants reported feeling different to other cancer patients. Lack of understanding of their diagnosis by friends and family and lack of access to relevant support services are notable unmet needs that differ from previous findings.

Entities:  

Keywords:  cancer; clinical health psychology; healthcare; psychological distress; qualitative methods

Mesh:

Year:  2016        PMID: 27469009     DOI: 10.1177/1359105316660179

Source DB:  PubMed          Journal:  J Health Psychol        ISSN: 1359-1053


  5 in total

Review 1.  Unmet Supportive Care Needs of Patients with Hematological Malignancies: A Systematic Review.

Authors:  Ioanna Tsatsou; Theocharis Konstantinidis; Ioannis Kalemikerakis; Theodoula Adamakidou; Eugenia Vlachou; Ourania Govina
Journal:  Asia Pac J Oncol Nurs       Date:  2020-10-15

2.  Still lost in transition: a qualitative descriptive study of people's experiences following treatment completion for haematological cancer in Wales, UK.

Authors:  Tessa E Watts; Janet Bower
Journal:  Ecancermedicalscience       Date:  2019-12-12

3.  Use of the supportive care framework to explore haematological cancer survivors' unmet needs: a qualitative study.

Authors:  Anne Herrmann; Elise Mansfield; Flora Tzelepis; Marita Lynagh; Alix Hall
Journal:  BMC Health Serv Res       Date:  2020-11-23       Impact factor: 2.655

4.  Incurable but treatable: Understanding, uncertainty and impact in chronic blood cancers-A qualitative study from the UK's Haematological Malignancy Research Network.

Authors:  Debra A Howell; Dorothy McCaughan; Alexandra G Smith; Russell Patmore; Eve Roman
Journal:  PLoS One       Date:  2022-02-10       Impact factor: 3.240

5.  Living with or beyond lymphoma: A rapid review of the unmet needs of lymphoma survivors.

Authors:  Vanessa Boland; Amanda Drury; Greg Sheaf; Anne-Marie Brady
Journal:  Psychooncology       Date:  2022-06-27       Impact factor: 3.955

  5 in total

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