Literature DB >> 27444187

Telehealth clinics increase access to care for adults with cystic fibrosis living in rural and remote Western Australia.

Jamie Wood1,2,3, Siobhain Mulrennan3,4, Kylie Hill1,3, Nola Cecins2, Sue Morey3,4, Sue Jenkins1,2,3.   

Abstract

Introduction A significant proportion (15%, n = 28) of the adults with cystic fibrosis (CF) in Western Australia (WA) live in rural and remote areas and have difficulty accessing specialist care at the state adult CF centre, located in Perth. We aimed to increase access by offering telehealth clinics, and evaluate the impact on health outcomes. Methods Telehealth clinics were offered via videoconference over a 12-month period, with uptake and satisfaction measured at the end of the intervention. Participants could still attend in person clinics at the CF centre if requested. Other outcomes comprised healthcare utilisation (HCU), spirometry, weight and health-related quality of life. Results In 21 participants, total clinic visits increased from 46 (median (range) per participant 2 (0-6)) in the 12-month period preceding the study to 100 (5 (2-8), p < 0.001) during the intervention. Of the 100 clinics in total, 66 were delivered via telehealth. Satisfaction with telehealth was high and most (94%) participants agreed that telehealth is a good way to deliver CF care. An increase in intravenous antibiotic days (incident rate ratio (IRR) 2.3, p = 0.03) and hospital admission days (IRR 3.7, p = 0.01) was observed. There was an improvement in the vitality domain of the Cystic Fibrosis Questionnaire - Revised ( p < 0.05). Discussion Telehealth had good uptake and increased clinic attendance in adults with CF living in rural and remote WA, and had high satisfaction amongst participants. The increase in HCU, resulting from increased detection and treatment of exacerbations, may improve long-term outcomes in this population.

Entities:  

Keywords:  Telehealth; cystic fibrosis; healthcare utilisation; rural and remote; videoconference

Mesh:

Year:  2016        PMID: 27444187     DOI: 10.1177/1357633X16660646

Source DB:  PubMed          Journal:  J Telemed Telecare        ISSN: 1357-633X            Impact factor:   6.184


  17 in total

Review 1.  The future of cystic fibrosis care: a global perspective.

Authors:  Scott C Bell; Marcus A Mall; Hector Gutierrez; Milan Macek; Susan Madge; Jane C Davies; Pierre-Régis Burgel; Elizabeth Tullis; Claudio Castaños; Carlo Castellani; Catherine A Byrnes; Fiona Cathcart; Sanjay H Chotirmall; Rebecca Cosgriff; Irmgard Eichler; Isabelle Fajac; Christopher H Goss; Pavel Drevinek; Philip M Farrell; Anna M Gravelle; Trudy Havermans; Nicole Mayer-Hamblett; Nataliya Kashirskaya; Eitan Kerem; Joseph L Mathew; Edward F McKone; Lutz Naehrlich; Samya Z Nasr; Gabriela R Oates; Ciaran O'Neill; Ulrike Pypops; Karen S Raraigh; Steven M Rowe; Kevin W Southern; Sheila Sivam; Anne L Stephenson; Marco Zampoli; Felix Ratjen
Journal:  Lancet Respir Med       Date:  2019-09-27       Impact factor: 30.700

2.  The utility of physiotherapy assessments delivered by telehealth: A systematic review.

Authors:  Cherie Zischke; Vinicius Simas; Wayne Hing; Nikki Milne; Alicia Spittle; Rodney Pope
Journal:  J Glob Health       Date:  2021-12-18       Impact factor: 4.413

3.  A smartphone application for reporting symptoms in adults with cystic fibrosis: protocol of a randomised controlled trial.

Authors:  Jamie Wood; Sue Jenkins; David Putrino; Siobhain Mulrennan; Sue Morey; Nola Cecins; Kylie Hill
Journal:  BMJ Open       Date:  2018-04-21       Impact factor: 2.692

Review 4.  Digital technologies and adherence in respiratory diseases: the road ahead.

Authors:  John D Blakey; Bruce G Bender; Alexandra L Dima; John Weinman; Guilherme Safioti; Richard W Costello
Journal:  Eur Respir J       Date:  2018-11-22       Impact factor: 16.671

5.  Patient and family perceptions of telehealth as part of the cystic fibrosis care model during COVID-19.

Authors:  Davis Jaclyn; NeSmith Andrew; Perkins Ryan; Bailey Julianna; Siracusa Christopher; Chaudary Nauman; M Powers; Sawicki Gregory S; Solomon George M
Journal:  J Cyst Fibros       Date:  2021-03-26       Impact factor: 5.527

6.  Evaluation of Patient Perceptions With Orthopedic Oncology Telehealth: A Pilot Project.

Authors:  Andrea Evenski; Rachel Honig; Deepika Gupta; Emmanuelle Wallach; Lincoln R Sheets; Mirna Becevic
Journal:  J Patient Exp       Date:  2020-08-14

7.  Patient and family experience of telehealth care delivery as part of the CF chronic care model early in the COVID-19 pandemic.

Authors:  George M Solomon; Julianna Bailey; James Lawlor; Peter Scalia; Gregory S Sawicki; Christopher Dowd; Kathryn A Sabadosa; Aricca Van Citters
Journal:  J Cyst Fibros       Date:  2021-12       Impact factor: 5.482

8.  Barriers and facilitators to implementing telehealth services during the COVID-19 pandemic: A qualitative analysis of interviews with cystic fibrosis care team members.

Authors:  Aricca D Van Citters; Olivia Dieni; Peter Scalia; Christopher Dowd; Kathryn A Sabadosa; Jill D Fliege; Manu Jain; Robert W Miller; Clement L Ren
Journal:  J Cyst Fibros       Date:  2021-12       Impact factor: 5.482

9.  Design and methods for understanding the state of cystic fibrosis care amid the COVID-19 pandemic.

Authors:  Christopher Dowd; Aricca D Van Citters; Olivia Dieni; Anne Willis; Leslie Powell; Kathryn A Sabadosa
Journal:  J Cyst Fibros       Date:  2021-12       Impact factor: 5.482

Review 10.  Telemedicine in the management of patients with chronic respiratory failure.

Authors:  Neeraj M Shah; Georgios Kaltsakas
Journal:  Breathe (Sheff)       Date:  2021-03
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