Literature DB >> 27442686

Elements contributing to meaningful participation for children and youth with disabilities: a scoping review.

Claire Willis1, Sonya Girdler2, Melanie Thompson2, Michael Rosenberg1, Siobhan Reid1, Catherine Elliott3,4.   

Abstract

PURPOSE: To synthesise research literature describing elements of community recreation and leisure activities that create meaningful participation experiences for children and youth with disabilities.
METHOD: Database searches of Medline, Embase, PsycINFO, ERIC, SportDiscus, CINAHL, Scopus and Web of Science were conducted. Studies describing the experience of participating in a community-based programme or activity from the perspectives of children and youth with a disability aged 0-21 or their parents, and published in English were included. Meta-ethnography was used to synthesise qualitative data, and resulting themes were conceptualised in the International Classification of Functioning, Disability and Health-Child and Youth version. Consultation with stakeholders occurred throughout the review process.
RESULTS: The search identified 9544 articles, of which 20 were included for review. Ten elements contributing to meaningful participation experiences were identified and organised as follows: person-based elements (n = 5; having fun, experiencing success, belonging, experiencing freedom, developing an identity); environment-focused elements (n = 4; authentic friendships, the opportunity to participate, role models, family support) and activity-related elements (n = 1; learning).
CONCLUSIONS: Elements contributing to meaningful leisure participation are interrelated. This review reveals the substantial contribution that meaningful interactions and relationships have in creating and facilitating positive and engaging experiences. Outcomes of this review may assist professionals in the design of targeted interventions to facilitate leisure participation. Implications for Rehabilitation Elements identified in this review may operate as core components of interventions that aim to optimise participation outcomes in community-based leisure activities. Supportive relationships and the availability of services are specific aspects of the environment that needs to be considered by health professionals to facilitate meaningful participation. Understanding the perspectives of the child is critical for assessing needs, preferences and goals relating to leisure participation in the community.

Entities:  

Keywords:  Engagement; ICF; participation; recreation and leisure; self-determination theory

Mesh:

Year:  2016        PMID: 27442686     DOI: 10.1080/09638288.2016.1207716

Source DB:  PubMed          Journal:  Disabil Rehabil        ISSN: 0963-8288            Impact factor:   3.033


  14 in total

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2.  Prevalence Models to Support Participation: Sensory Patterns as a Feature of All Children's Humanity.

Authors:  Evan E Dean; Lauren Little; Scott Tomchek; Anna Wallisch; Winnie Dunn
Journal:  Front Psychol       Date:  2022-06-23

3.  How available to European children and young people with cerebral palsy are features of their environment that they need?

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Journal:  Res Dev Disabil       Date:  2017-10-05

4.  Supporting and hindering environments for participation of adolescents diagnosed with autism spectrum disorder: A scoping review.

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Journal:  PLoS One       Date:  2018-08-29       Impact factor: 3.240

5.  Development and psychometric testing of an instrument for measuring social participation of adolescents: study protocol of a prospective mixed-methods study.

Authors:  Tim Baerwalde; Britta Gebhard; Laura Hoffmann; Julia Roick; Olaf Martin; Anna-Lena Neurath; Astrid Fink
Journal:  BMJ Open       Date:  2019-02-24       Impact factor: 2.692

6.  A Strength-Based Intervention to Increase Participation in Leisure Activities in Children with Neuropsychiatric Disabilities: A Pilot Study.

Authors:  Anna Ullenhag; Mats Granlund; Lena Almqvist; Lena Krumlinde-Sundholm
Journal:  Occup Ther Int       Date:  2020-04-02       Impact factor: 1.448

7.  Children and young people's experiences of living with developmental coordination disorder/dyspraxia: A systematic review and meta-ethnography of qualitative research.

Authors:  Áine O'Dea; Mandy Stanley; Susan Coote; Katie Robinson
Journal:  PLoS One       Date:  2021-03-04       Impact factor: 3.240

8.  Daily life participation in childhood chronic disease: a qualitative study on the child's and parent's perspective.

Authors:  Merel M Nap-van der Vlist; Emma E Berkelbach van der Sprenkel; Linde N Nijhof; Martha A Grootenhuis; Cornelis K van der Ent; Joost F Swart; Annet van Royen-Kerkhof; Martine van Grotel; Elise M van de Putte; Sanne L Nijhof; Marijke C Kars
Journal:  BMJ Paediatr Open       Date:  2021-05-18

9.  A realist evaluation of a physical activity participation intervention for children and youth with disabilities: what works, for whom, in what circumstances, and how?

Authors:  C E Willis; S Reid; C Elliott; M Rosenberg; A Nyquist; R Jahnsen; S Girdler
Journal:  BMC Pediatr       Date:  2018-03-15       Impact factor: 2.125

10.  Identifying mechanisms of change in a magic-themed hand-arm bimanual intensive therapy programme for children with unilateral spastic cerebral palsy: a qualitative study using behaviour change theory.

Authors:  Daisy Fancourt; Jaeyoung Wee; Fabianna Lorencatto
Journal:  BMC Pediatr       Date:  2020-07-31       Impact factor: 2.125

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