OBJECTIVES: The process of planning for end-of life decisions, also known as advance care planning (ACP), is associated with numerous positive outcomes, including improved patient satisfaction with care and improved patient quality of life in terminal illness. In this study, we sought to test a novel personal health record (PHR)-delivered ACP framework through a small-scale randomized trial of usual care practices versus PHR-delivered ACP. STUDY DESIGN: Randomized controlled pilot intervention. METHODS: A novel PHR-ACP tool was tested using data and feedback collected in a randomized controlled pilot intervention (n = 50). Participants in the control group received standard care for ACP conversations while participants randomized to the intervention group received a novel ACP framework through the electronic health record. RESULTS: The pilot study testing the ACP framework found that its use resulted in improved ACP documentation rates (P = .001) and quality (P = .007) compared with usual care. CONCLUSIONS: Tethered PHR use as an initial ACP communication tool can improve outpatient documentation rates and quality. Future studies obtaining patient feedback on a revised framework and testing in a larger setting are needed to determine reproducibility of findings.
RCT Entities:
OBJECTIVES: The process of planning for end-of life decisions, also known as advance care planning (ACP), is associated with numerous positive outcomes, including improved patient satisfaction with care and improved patient quality of life in terminal illness. In this study, we sought to test a novel personal health record (PHR)-delivered ACP framework through a small-scale randomized trial of usual care practices versus PHR-delivered ACP. STUDY DESIGN: Randomized controlled pilot intervention. METHODS: A novel PHR-ACP tool was tested using data and feedback collected in a randomized controlled pilot intervention (n = 50). Participants in the control group received standard care for ACP conversations while participants randomized to the intervention group received a novel ACP framework through the electronic health record. RESULTS: The pilot study testing the ACP framework found that its use resulted in improved ACP documentation rates (P = .001) and quality (P = .007) compared with usual care. CONCLUSIONS: Tethered PHR use as an initial ACP communication tool can improve outpatient documentation rates and quality. Future studies obtaining patient feedback on a revised framework and testing in a larger setting are needed to determine reproducibility of findings.
Authors: Rebecca E Ryan; Michael Connolly; Natalie K Bradford; Simon Henderson; Anthony Herbert; Lina Schonfeld; Jeanine Young; Josephine I Bothroyd; Amanda Henderson Journal: Cochrane Database Syst Rev Date: 2022-07-08
Authors: Allysha C Maragh-Bass; Yiqing Zhao; Sarina R Isenberg; Mary M Mitchell; Amy R Knowlton Journal: J Urban Health Date: 2017-10 Impact factor: 3.671
Authors: Hillary D Lum; Adreanne Brungardt; Sarah R Jordan; Phoutdavone Phimphasone-Brady; Lisa M Schilling; Chen-Tan Lin; Jean S Kutner Journal: J Pain Symptom Manage Date: 2018-10-25 Impact factor: 3.612
Authors: Sarah R Jordan; Adreanne Brungardt; Phoutdavone Phimphasone-Brady; Hillary D Lum Journal: Am J Hosp Palliat Care Date: 2019-02-25 Impact factor: 2.500
Authors: Seuli Bose-Brill; Michelle Feeney; Laura Prater; Laura Miles; Angela Corbett; Stephen Koesters Journal: J Med Internet Res Date: 2018-06-26 Impact factor: 5.428
Authors: M Pilar Ingle; Cristina Valdovinos; Kelsey L Ford; Shou Zhou; Sheana Bull; Starlynne Gornail; Xuhong Zhang; Jennifer Portz; Susan Moore Journal: J Med Internet Res Date: 2021-09-16 Impact factor: 5.428
Authors: Van C Willis; Kelly Jean Thomas Craig; Yalda Jabbarpour; Elisabeth L Scheufele; Yull E Arriaga; Monica Ajinkya; Kyu B Rhee; Andrew Bazemore Journal: JMIR Med Inform Date: 2022-01-21