Siok Swan Tan1, Wilma M A van der Slot2, Marjolijn Ketelaar3, Jules G Becher4, Annet J Dallmeijer4, Dirk-Wouter Smits3, Marij E Roebroeck2. 1. Erasmus MC University Medical Center, Department of Rehabilitation Medicine, Rotterdam, The Netherlands; Erasmus University Rotterdam, Institute for Medical Technology Assessment, Rotterdam, The Netherlands. Electronic address: s.s.tan@erasmusmc.nl. 2. Erasmus MC University Medical Center, Department of Rehabilitation Medicine, Rotterdam, The Netherlands; Rijndam Rehabilitation Institute, Rotterdam, The Netherlands. 3. Brain Center Rudolf Magnus and Center of Excellence for Rehabilitation Medicine, University Medical Center Utrecht and De Hoogstraat Rehabilitation, The Netherlands; Partner of NetChild, Network for Childhood Disability Research, The Netherlands. 4. VU University Medical Center, department of Rehabilitation Medicine, Amsterdam, The Netherlands.
Abstract
AIMS: We aimed to determine factors associated with the longitudinal development of social participation in a Dutch population of individuals with Cerebral Palsy (CP) aged 1-24 years. METHODS AND PROCEDURES: For this multicentre prospective longitudinal study, 424 individuals with CP aged 1-24 years were recruited from various rehabilitation centers in The Netherlands. Social participation was measured with the Vineland Adaptive Behavior Scales. We assessed associations with age, intellectual impairment, level of gross motor function, gender, type of CP, manual ability, epilepsy, hearing-, visual-, speech impairment and pain, internalizing- and externalizing behavioral problems, type of education and parental level of education. Each individual was measured 3 or 4 times. The time between measurements was 1 or 2 years. OUTCOMES AND RESULTS: Epilepsy and speech impairment were each independently associated with the longitudinal development of social participation. The effects were rather small and did not change with age. Also, a trend was found that children attending special education develop less favorably in social participation. CONCLUSIONS AND IMPLICATIONS: Our results might provide parents and caregivers with starting points to further develop tailored support for individuals with epilepsy, with speech impairment and/or attending special education at risk for suboptimal social participation.
AIMS: We aimed to determine factors associated with the longitudinal development of social participation in a Dutch population of individuals with Cerebral Palsy (CP) aged 1-24 years. METHODS AND PROCEDURES: For this multicentre prospective longitudinal study, 424 individuals with CP aged 1-24 years were recruited from various rehabilitation centers in The Netherlands. Social participation was measured with the Vineland Adaptive Behavior Scales. We assessed associations with age, intellectual impairment, level of gross motor function, gender, type of CP, manual ability, epilepsy, hearing-, visual-, speech impairment and pain, internalizing- and externalizing behavioral problems, type of education and parental level of education. Each individual was measured 3 or 4 times. The time between measurements was 1 or 2 years. OUTCOMES AND RESULTS:Epilepsy and speech impairment were each independently associated with the longitudinal development of social participation. The effects were rather small and did not change with age. Also, a trend was found that children attending special education develop less favorably in social participation. CONCLUSIONS AND IMPLICATIONS: Our results might provide parents and caregivers with starting points to further develop tailored support for individuals with epilepsy, with speech impairment and/or attending special education at risk for suboptimal social participation.
Authors: Stella Arakelyan; Donald Maciver; Robert Rush; Anne O'hare; Kirsty Forsyth Journal: Dev Med Child Neurol Date: 2019-01-06 Impact factor: 5.449
Authors: Dirk-Wouter Smits; Marloes van Gorp; Leontien van Wely; Johannes Verheijden; Jeanine Voorman; Sophie Wintels; Joyce van der Cruijsen; Marjolijn Ketelaar Journal: Arch Rehabil Res Clin Transl Date: 2019-08-22