Literature DB >> 27376593

"Whenever they cry, I cry with them": Reciprocal relationships and the role of ethics in a verbal autopsy study in Papua New Guinea.

H N Gouda1, A Kelly-Hanku2, L Wilson3, S Maraga4, I D Riley5.   

Abstract

Verbal autopsy (VA) methods usually involve an interview with a recently bereaved individual to ascertain the most probable cause of death when a person dies outside of a hospital and/or did not receive a reliable death certificate. A number of concerns have arisen around the ethical and social implications of the use of these methods. In this paper we examine these concerns, looking specifically at the cultural factors surrounding death and mourning in Papua New Guinea, and the potential for VA interviews to cause emotional distress in both the bereaved respondent and the VA fieldworker. Thirty one semi-structured interviews with VA respondents, the VA team and community relations officers as well as observations in the field and team discussions were conducted between June 2013 and August 2014. While our findings reveal that VA participants were often moved to cry and feel sad, they also expressed a number of ways they benefited from the process, and indeed welcomed longer transactions with the VA interviewers. Significantly, this paper highlights the ways in which VA interviewers, who have hitherto been largely neglected in the literature, navigate transactions with the participants and make everyday decisions about their relationships with them in order to ensure that they and VA interviews are accepted by the community. The role of the VA fieldworker should be more carefully considered, as should the implications for training and institutional support that follow.
Copyright © 2016 Elsevier Ltd. All rights reserved.

Entities:  

Keywords:  Everyday ethics; Mortality surveillance; Papua New Guinea; Reciprocity and exchange; Verbal autopsy

Mesh:

Year:  2016        PMID: 27376593     DOI: 10.1016/j.socscimed.2016.06.041

Source DB:  PubMed          Journal:  Soc Sci Med        ISSN: 0277-9536            Impact factor:   4.634


  5 in total

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Authors:  Jeffrey I Campbell; Angella Musiimenta; Bridget Burns; Sylvia Natukunda; Nicholas Musinguzi; Jessica E Haberer; Nir Eyal
Journal:  AIDS Care       Date:  2018-12-09

2.  Integrating community-based verbal autopsy into civil registration and vital statistics (CRVS): system-level considerations.

Authors:  Don de Savigny; Ian Riley; Daniel Chandramohan; Frank Odhiambo; Erin Nichols; Sam Notzon; Carla AbouZahr; Raj Mitra; Daniel Cobos Muñoz; Sonja Firth; Nicolas Maire; Osman Sankoh; Gay Bronson; Philip Setel; Peter Byass; Robert Jakob; Ties Boerma; Alan D Lopez
Journal:  Glob Health Action       Date:  2017       Impact factor: 2.640

3.  A systematic review on ethical challenges of 'field' research in low-income and middle-income countries: respect, justice and beneficence for research staff?

Authors:  Janina Isabel Steinert; David Atika Nyarige; Milan Jacobi; Jana Kuhnt; Lennart Kaplan
Journal:  BMJ Glob Health       Date:  2021-07

4.  The rebellious man: Next-of-kin accounts of the death of a male relative on antiretroviral therapy in sub-Saharan Africa.

Authors:  Morten Skovdal; Robert Ssekubugu; Constance Nyamukapa; Janet Seeley; Jenny Renju; Joyce Wamoyi; Mosa Moshabela; Kenneth Ondenge; Alison Wringe; Simon Gregson; Basia Zaba
Journal:  Glob Public Health       Date:  2019-01-28

5.  Added value of an open narrative in verbal autopsies: a mixed-methods evaluation from Malawi.

Authors:  Patricia Loh; Edward Fottrell; James Beard; Naor Bar-Zeev; Tambosi Phiri; Masford Banda; Charles Makwenda; Jon Bird; Carina King
Journal:  BMJ Paediatr Open       Date:  2021-02-05
  5 in total

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