Literature DB >> 27338606

Ethical and Legal Challenges Associated with Public Molecular Autopsies.

Quianta L Moore1, Mary A Majumder1, Lindsey K Rutherford1, Amy L McGuire1.   

Abstract

There is a national movement supporting the retention and use of bio-specimens from deceased individuals for the purpose of genetic testing. This manuscript discusses the significance of postmortem genetic testing in the context of death determination by medical examiners (i.e., public molecular autopsies). We highlight distinctive concerns that are raised in the areas of consent, confidentiality, and return of results when genetic testing is performed as part of a public molecular autopsy. We believe our manuscript will contribute to the development of a robust ethical and legal framework for genetic testing in this context.
© 2016 American Society of Law, Medicine & Ethics.

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Year:  2016        PMID: 27338606     DOI: 10.1177/1073110516654124

Source DB:  PubMed          Journal:  J Law Med Ethics        ISSN: 1073-1105            Impact factor:   1.718


  2 in total

Review 1.  Ethical implications of using biobanks and population databases for genetic suicide research.

Authors:  Jess Shade; Hilary Coon; Anna R Docherty
Journal:  Am J Med Genet B Neuropsychiatr Genet       Date:  2019-02-18       Impact factor: 3.568

2.  The ethics of conducting molecular autopsies in cases of sudden death in the young.

Authors:  Amy L McGuire; Quianta Moore; Mary Majumder; Magdalena Walkiewicz; Christine M Eng; John W Belmont; Salma Nassef; Sandra Darilek; Katie Rutherford; Stacey Pereira; Steven E Scherer; V Reid Sutton; Dwayne Wolf; Richard A Gibbs; Roger Kahn; Luis A Sanchez
Journal:  Genome Res       Date:  2016-07-13       Impact factor: 9.043

  2 in total

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