Literature DB >> 27333631

Unravelling the Tensions Between Chronic Disease Management and End-of-Life Planning.

Sally Thorne, Della Roberts, Richard Sawatzky.   

Abstract

An increasing appreciation for the burden that chronic conditions represent for people and for societies has triggered an evolving body of popular and professional conceptualizations of the nature of the chronic disease challenge. In this discussion article, we trace the trajectory of thinking about chronic illness care, surfacing underlying assumptions and drivers that have shaped current dominant models of service delivery. We note significant gaps in these conceptualizations, especially with respect to the reality that many chronic conditions are life limiting. Contrasting chronic disease theorizing with the conversations that have arisen around end-of-life care for other kinds of health conditions, we argue for a shift in our thinking to accommodate the implications of life limitation in our service delivery planning. We see significant leadership potential in optimizing the role nurses can play across the chronic disease trajectory by integrating the healthy optimism of self-care management with the profound compassion of a person-centered palliative approach.

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Year:  2016        PMID: 27333631     DOI: 10.1891/1541-6577.30.2.91

Source DB:  PubMed          Journal:  Res Theory Nurs Pract        ISSN: 1541-6577            Impact factor:   0.688


  6 in total

1.  Resources for Educating, Training, and Mentoring Nurses and Unregulated Nursing Care Providers in Palliative Care: A Review and Expert Consultation.

Authors:  Barbara Pesut; Madeleine Greig
Journal:  J Palliat Med       Date:  2018-01       Impact factor: 2.947

2.  Prevalence of Treatment Burden in the Last Three Years of Life.

Authors:  Alina Siddiqui; Katherine A Ornstein; Claire K Ankuda
Journal:  J Palliat Med       Date:  2020-11-13       Impact factor: 2.947

3.  Inducing a sense of worthiness in patients: the basis of patient-centered palliative care for cancer patients in Iran.

Authors:  Mir Hossein Aghaei; Zohreh Vanaki; Eesa Mohammadi
Journal:  BMC Palliat Care       Date:  2021-03-02       Impact factor: 3.234

4.  Readiness for advance care planning and its relationship to coping style in patients with chronic diseases in communities: A cross-sectional study.

Authors:  Xinru Wang; Yu Sheng
Journal:  Nurs Open       Date:  2022-01-28

5.  Study on Health Care Service Standard of Chronic Disease Management Based on Process Reengineering and the Delphi Method.

Authors:  Jing Zhao
Journal:  Appl Bionics Biomech       Date:  2022-09-20       Impact factor: 1.664

6.  Embedding a Palliative Approach in Nursing Care Delivery: An Integrated Knowledge Synthesis.

Authors:  Richard Sawatzky; Pat Porterfield; Della Roberts; Joyce Lee; Leah Liang; Sheryl Reimer-Kirkham; Barb Pesut; Tilly Schalkwyk; Kelli Stajduhar; Carolyn Tayler; Jennifer Baumbusch; Sally Thorne
Journal:  ANS Adv Nurs Sci       Date:  2017 Jul/Sep       Impact factor: 1.824

  6 in total

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