Jessica Sparrow1, Rachel Brennan2, Shenghua Mao3, Kirsten K Ness4, Carlos Rodriguez-Galindo5,6, Matthew Wilson7,8, Ibrahim Qaddoumi2. 1. Rehabilitation Services, St. Jude Children's Research Hospital, Memphis, TN, USA. 2. Department of Oncology, St. Jude Children's Research Hospital, Memphis, TN, USA. 3. Department of Biostatistics, St. Jude Children's Research Hospital, Memphis, TN, USA. 4. Department of Epidemiology & Cancer Control, St. Jude Children's Research Hospital, Memphis, TN, USA. 5. Department of Pediatric Oncology, Dana-Farber/Boston Children's Cancer and Blood Disorders Center, Boston, MA, USA. 6. Department of Pediatrics, Harvard Medical School, Boston, MA, USA. 7. Department of Surgery, St. Jude Children's Research Hospital, Memphis, TN, USA. 8. Department of Ophthalmology, Hamilton Eye Institute, University of Tennessee Health Science Center, Memphis, TN, USA.
Abstract
PURPOSE: Because retinoblastoma typically arises at a very young age, children are particularly vulnerable to vision impairment, associated developmental delays, and functional limitations. Limited information is available describing developmental delay and functional limitations in this population, necessitating supportive services including rehabilitation. The aims of this study were to describe the participation of children with newly diagnosed retinoblastoma in an occupational therapy program that identifies children in need of rehabilitation services. We also identify indications for referral to rehabilitation services among children with newly diagnosed retinoblastoma and enumerate the likelihood of these children receiving the recommended services. METHODS: Twenty-two children participated in longitudinal occupational therapy assessments during the first year after diagnosis. RESULTS: We recommended 1 or more types of rehabilitation services for 16 of 22 (72.7%) participants. Twelve of 16 (75%) received services. CONCLUSIONS: The results of this pilot study indicate that implementing a prospective occupational therapy-screening program is feasible and results in identification and initiation of therapy services in some children with retinoblastoma. Developmental screenings and follow-up of children with retinoblastoma is strongly recommended.
PURPOSE: Because retinoblastoma typically arises at a very young age, children are particularly vulnerable to vision impairment, associated developmental delays, and functional limitations. Limited information is available describing developmental delay and functional limitations in this population, necessitating supportive services including rehabilitation. The aims of this study were to describe the participation of children with newly diagnosed retinoblastoma in an occupational therapy program that identifies children in need of rehabilitation services. We also identify indications for referral to rehabilitation services among children with newly diagnosed retinoblastoma and enumerate the likelihood of these children receiving the recommended services. METHODS: Twenty-two children participated in longitudinal occupational therapy assessments during the first year after diagnosis. RESULTS: We recommended 1 or more types of rehabilitation services for 16 of 22 (72.7%) participants. Twelve of 16 (75%) received services. CONCLUSIONS: The results of this pilot study indicate that implementing a prospective occupational therapy-screening program is feasible and results in identification and initiation of therapy services in some children with retinoblastoma. Developmental screenings and follow-up of children with retinoblastoma is strongly recommended.
Authors: Erin M Sullivan; Matthew W Wilson; Catherine A Billups; Jianrong Wu; Thomas E Merchant; Rachel C Brennan; Barrett G Haik; Barry Shulkin; Tammy M Free; Vickie Given; Carlos Rodriguez-Galindo; Ibrahim Qaddoumi Journal: J Pediatr Hematol Oncol Date: 2014-08 Impact factor: 1.289
Authors: Doralina L Anghelescu; Alberto J De Armendi; Jerome W Thompson; Elaine M A Sillos; Ching-Hon Pui; John T Sandlund Journal: Paediatr Anaesth Date: 2002-02 Impact factor: 2.556
Authors: Victoria W Willard; Ibrahim Qaddoumi; Haitao Pan; Chia-Wei Hsu; Rachel C Brennan; Matthew W Wilson; Carlos Rodriguez-Galindo; Kristin Goode; Kendra Parris; Sean Phipps Journal: J Clin Oncol Date: 2021-04-23 Impact factor: 50.717