Literature DB >> 27258823

Internet-Based Survivorship Care Plans for Adult Survivors of Childhood Cancer: A Pilot Study.

Dava Szalda1,2,3, Lisa Schwartz1,2, Marilyn M Schapira1,2,3,4, Linda Jacobs1,2,3, Esther Kim2, Carolyn Vachani3, James Metz2,3, Christine Hill-Kayser1,2,3.   

Abstract

Survivorship care plans (SCPs) provide health information to survivors and providers. An existing internet-based SCP generator was adapted to incorporate guidelines for adult survivors of pediatric leukemia and lymphoma. Survivors created an SCP online and completed a survey. Survivors (N = 30) took an average of 10 minutes to complete the SCP. The majority (95%) found the platform easy to use, would recommend it to others (85%), and intended to share SCP with their healthcare team (90%). Thus, a patient-generated internet-based SCP for adult survivors of childhood cancer may be a feasible tool to improve consistency of information for survivors and their providers.

Entities:  

Keywords:  care plans; internet; pediatric; survivorship

Mesh:

Year:  2016        PMID: 27258823     DOI: 10.1089/jayao.2016.0026

Source DB:  PubMed          Journal:  J Adolesc Young Adult Oncol        ISSN: 2156-5333            Impact factor:   2.223


  5 in total

Review 1.  Evidence-based recommendations for the organization of long-term follow-up care for childhood and adolescent cancer survivors: a report from the PanCareSurFup Guidelines Working Group.

Authors:  Gisela Michel; Renée L Mulder; Helena J H van der Pal; Roderick Skinner; Edit Bárdi; Morven C Brown; Janine Vetsch; Eva Frey; Rachael Windsor; Leontien C M Kremer; Gill Levitt
Journal:  J Cancer Surviv       Date:  2019-08-08       Impact factor: 4.442

2.  Preferences for cancer survivorship care among adolescents and young adults who experienced healthcare transitions and their parents.

Authors:  Alexandra M Psihogios; Lisa A Schwartz; Janet A Deatrick; Elizabeth S Ver Hoeve; Lindsay M Anderson; Elicia C Wartman; Dava Szalda
Journal:  J Cancer Surviv       Date:  2019-07-04       Impact factor: 4.442

3.  Systematic Review of the Impact of Cancer Survivorship Care Plans on Health Outcomes and Health Care Delivery.

Authors:  Paul B Jacobsen; Antonio P DeRosa; Tara O Henderson; Deborah K Mayer; Chaya S Moskowitz; Electra D Paskett; Julia H Rowland
Journal:  J Clin Oncol       Date:  2018-05-18       Impact factor: 44.544

4.  Survivorship care plan experiences among childhood acute lymphoblastic leukemia patients and their families.

Authors:  Samantha T Pannier; Karely Mann; Echo L Warner; Stephanie Rosen; Akanksha Acharya; Claire Hacking; Cheryl Gerdy; Jennifer Wright; Yelena P Wu; Anne C Kirchhoff
Journal:  BMC Pediatr       Date:  2019-04-13       Impact factor: 2.125

5.  Health information technology to support cancer survivorship care planning: A systematic review.

Authors:  Sean P Mikles; Ashley C Griffin; Arlene E Chung
Journal:  J Am Med Inform Assoc       Date:  2021-09-18       Impact factor: 7.942

  5 in total

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