Literature DB >> 27249775

Electronic Patient-Reported Outcomes: The Time Is Ripe for Integration Into Patient Care and Clinical Research.

Lee Schwartzberg1.   

Abstract

In the emerging team-based approach to delivering cancer care, collecting patient-reported outcomes (PROs) provides longitudinal monitoring of treatment adverse effects, disease complications, functional statuses, and psychological states throughout the cancer continuum for all providers to use. Electronic systems offer added capabilities, including easy quantitation of individual symptom items and aggregated scales, standardization, and longitudinal tracking of patient surveys for trend analysis over time. An ideal electronic PRO (ePRO) platform is clinically relevant, validated, and reliable and would offer patient usability. Additionally, it should allow for automated responses to and from patients, have scheduling functionality, and send real-time alerts to site personnel and patients. Clinical interfaces should be easy to read and integrated into the electronic medical record. Multiple ePRO systems, often using electronic tablets, have been created and are beginning to be widely deployed. The Patient Care Monitor is one example of a system that has evolved into a comprehensive patient engagement platform, with a complete review of systems survey and capabilities for mobile health usage. Recent clinical trials have established ePRO systems as an effective method of providing information, which aids improved patient outcomes, including reduced health resource utilization and longer time on therapy. ePROs are also increasingly incorporated into clinical trials, where they can provide more thorough reporting of adverse events than can be captured by alternative methods. Mobile devices have the potential to become the method by which all members of the provider team communicate with patients both at the point-of-care and between clinic visits to optimize care delivery.

Entities:  

Mesh:

Year:  2016        PMID: 27249775     DOI: 10.1200/EDBK_158749

Source DB:  PubMed          Journal:  Am Soc Clin Oncol Educ Book        ISSN: 1548-8748


  12 in total

1.  Patient Engagement In Health Care Safety: An Overview Of Mixed-Quality Evidence.

Authors:  Anjana E Sharma; Natalie A Rivadeneira; Jill Barr-Walker; Rachel J Stern; Amanda K Johnson; Urmimala Sarkar
Journal:  Health Aff (Millwood)       Date:  2018-11       Impact factor: 6.301

2.  A narrative review of current evidence supporting the implementation of electronic patient-reported outcome measures in the management of chronic diseases.

Authors:  Olalekan Lee Aiyegbusi; Devika Nair; John Devin Peipert; Kara Schick-Makaroff; Istvan Mucsi
Journal:  Ther Adv Chronic Dis       Date:  2021-05-24       Impact factor: 5.091

3.  Pixel or Paper? Validation of a Mobile Technology for Collecting Patient-Reported Outcomes in Rheumatoid Arthritis.

Authors:  Oscar Massimiliano Epis; Cinzia Casu; Laura Belloli; Emanuela Schito; Davide Filippini; Marina Muscarà; Maria Giovanna Gentile; Paula Carina Perez Cagnone; Chiara Venerelli; Massimo Sonnati; Irene Schiavetti; Eleonora Bruschi
Journal:  JMIR Res Protoc       Date:  2016-11-16

4.  Electronic-Based Patient-Reported Outcomes: Willingness, Needs, and Barriers in Adjuvant and Metastatic Breast Cancer Patients.

Authors:  Andreas D Hartkopf; Joachim Graf; Elisabeth Simoes; Lucia Keilmann; Nina Sickenberger; Paul Gass; Diethelm Wallwiener; Lina Matthies; Florin-Andrei Taran; Michael P Lux; Stephanie Wallwiener; Eric Belleville; Christof Sohn; Peter A Fasching; Andreas Schneeweiss; Sara Y Brucker; Markus Wallwiener
Journal:  JMIR Cancer       Date:  2017-08-07

5.  Reliability of an e-PRO Tool of EORTC QLQ-C30 for Measurement of Health-Related Quality of Life in Patients With Breast Cancer: Prospective Randomized Trial.

Authors:  Joachim Graf; Sara Y Brucker; Markus Wallwiener; Lina Matthies; Elisabeth Simoes; Lucia Keilmann; Andreas D Hartkopf; Alexander N Sokolov; Christina B Walter; Nina Sickenberger; Stephanie Wallwiener; Manuel Feisst; Paul Gass; Peter A Fasching; Michael P Lux; Diethelm Wallwiener; Florin-Andrei Taran; Joachim Rom; Andreas Schneeweiss
Journal:  J Med Internet Res       Date:  2017-09-14       Impact factor: 5.428

Review 6.  Including the patient voice in the development and implementation of patient-reported outcomes in cancer clinical trials.

Authors:  Bonnie Addario; Jan Geissler; Marcia K Horn; Linda U Krebs; Deborah Maskens; Kathy Oliver; Ananda Plate; Erin Schwartz; Nicole Willmarth
Journal:  Health Expect       Date:  2019-11-13       Impact factor: 3.377

7.  Patient Perspective in the Development of Electronic Patient-Reported Outcomes (ePROs) in Seizure Disorders: A Patient-Centric Approach.

Authors:  Anzalee Khan; Alyssa Peechatka; Nadeeka R Dias; Viviane Lima; Mary Seddo; Ayla Inja; Susan M Dallabrida
Journal:  Patient Prefer Adherence       Date:  2020-01-06       Impact factor: 2.711

8.  Implementation of an Electronic Patient-Reported Outcome App for Health-Related Quality of Life in Breast Cancer Patients: Evaluation and Acceptability Analysis in a Two-Center Prospective Trial.

Authors:  Joachim Graf; Nina Sickenberger; Katharina Brusniak; Lina Maria Matthies; Thomas M Deutsch; Elisabeth Simoes; Claudia Plappert; Lucia Keilmann; Andreas Hartkopf; Christina Barbara Walter; Markus Hahn; Tobias Engler; Stephanie Wallwiener; Florian Schuetz; Peter A Fasching; Andreas Schneeweiss; Sara Yvonne Brucker; Markus Wallwiener
Journal:  J Med Internet Res       Date:  2022-02-08       Impact factor: 5.428

9.  Social Disparities of Pain and Pain Intensity Among Women Diagnosed With Early Stage Breast Cancer.

Authors:  Hyo Young Choi; Ilana Graetz; Arash Shaban-Nejad; Lee Schwartzberg; Gregory Vidal; Robert Lowell Davis; Eun Kyong Shin
Journal:  Front Oncol       Date:  2022-02-08       Impact factor: 6.244

10.  Patient reported outcome measures in a large cohort of patients with type 1 Gaucher disease.

Authors:  Tama Dinur; Majdolen Istaiti; Dafna Frydman; Michal Becker-Cohen; Jeff Szer; Ari Zimran; Shoshana Revel-Vilk
Journal:  Orphanet J Rare Dis       Date:  2020-10-13       Impact factor: 4.123

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