Literature DB >> 27238629

Parent reported outcomes of quality care and satisfaction in the context of a life-limiting fetal diagnosis.

Charlotte Wool1, John T Repke2, Anne B Woods3.   

Abstract

OBJECTIVE: To identify which quality indicators (QI) predict patient satisfaction.
METHODS: A cross-sectional design using a validated tool was administered using a Web-based platform. Parents (n = 405) who experienced a life-limiting fetal diagnosis and opted to continue their pregnancy provided feedback on 37 QI and satisfaction with prenatal care. Descriptive analyses and logistic regression identified relationships among variables.
RESULTS: Parental satisfaction with care was 75.6%. Statistically significant differences in mean scores were reported with satisfied patients reporting higher agreement with quality indicators. Parents who were satisfied with their care had 1.9 times the odds of reporting that consistent care was provided (CI: 1.4-2.4, p < 0.01), 1.8 times the odds of reporting compassionate care (CI: 1.4-2.5, p < 0.01) and 1.8 times the odds that they received help to cope with their emotions (CI: 1.4-2.3, p < 0.01). The model correctly predicted parent satisfaction 92% of the time.
CONCLUSION: Provision of consistent prenatal care is an important quality indicator for this population of parents. The odds of securing satisfied parents increase when families are treated with compassion and given resources to help them cope with the emotionally devastating experiences associated with a life-limiting fetal diagnosis.

Entities:  

Keywords:  Parental satisfaction; patient reported outcomes; perinatal palliative care; quality of health care

Mesh:

Year:  2016        PMID: 27238629     DOI: 10.1080/14767058.2016.1195362

Source DB:  PubMed          Journal:  J Matern Fetal Neonatal Med        ISSN: 1476-4954


  3 in total

1.  Parent Experience of Neonatal Encephalopathy.

Authors:  Monica E Lemmon; Pamela K Donohue; Charlamaine Parkinson; Frances J Northington; Renee D Boss
Journal:  J Child Neurol       Date:  2016-12-08       Impact factor: 1.987

2.  Maternal Satisfaction with Healthcare after Perinatal Loss in Monochorionic Twin Pregnancy.

Authors:  Mònica Druguet; Laura Nuño; Carlota Rodó; Silvia Arévalo; Elena Carreras; Juana Gómez-Benito
Journal:  J Clin Med       Date:  2019-08-14       Impact factor: 4.241

3.  Implementation of Quality Indicators of Perinatal/Neonatal Palliative Care One-Year Following Formal Training.

Authors:  Charlotte Wool; Elvira Parravicini
Journal:  Front Pediatr       Date:  2021-12-01       Impact factor: 3.418

  3 in total

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