Literature DB >> 27216222

Broadening the Conceptualization of Participation of Persons With Physical Disabilities: A Configurative Review and Recommendations.

Kathleen A Martin Ginis1, M Blair Evans2, W Ben Mortenson3, Luc Noreau4.   

Abstract

Within the context of physical disability, participation has typically been conceptualized in terms of one's performance of different roles and activities. This perspective, however, ignores the meanings and satisfactions that a person derives from participating. Without an accepted conceptualization of participation that accounts for people's subjective perceptions and experiences, it is challenging for decision-makers and service providers to design meaningful participation-enhancing services, programs, and policies. Accordingly, our objectives were (1) to conduct a review of definitions and conceptualizations of participation that extend beyond performance and capture people's subjective experiences of participating and (2) to identify key experiential aspects of participation that can be used as a basis for conceptualizing and operationalizing the concept more broadly. The project involved a systematic, configurative review of relevant literature. Ten relevant articles were identified. Information on characteristics associated with experiential aspects of participation was extracted and subjected to a thematic analysis. The following 6 themes emerged: autonomy, belongingness, challenge, engagement, mastery, and meaning. Drawing on these findings, it is recommended that the individual's subjective perceptions of autonomy, belongingness, challenge, engagement, mastery, and meaning associated with participating be incorporated into conceptualizations and operationalizations of the participation construct. This recommendation provides a starting point for clinicians, researchers, and policymakers to conceptualize and measure the participation concept more consistently and more broadly.
Copyright © 2016 American Congress of Rehabilitation Medicine. Published by Elsevier Inc. All rights reserved.

Entities:  

Keywords:  Rehabilitation; Review, systematic; Social Participation

Mesh:

Year:  2016        PMID: 27216222     DOI: 10.1016/j.apmr.2016.04.017

Source DB:  PubMed          Journal:  Arch Phys Med Rehabil        ISSN: 0003-9993            Impact factor:   3.966


  17 in total

1.  "It Helps Me With Everything": A Qualitative Study of the Importance of Exercise for Individuals With Spinal Cord Injury.

Authors:  Roxanna N Pebdani; Jesus Leon; Deborah S Won; Ray D deLeon; Christine J Dy; Rowena Forsyth; Stefan Keslacy
Journal:  Top Spinal Cord Inj Rehabil       Date:  2022-04-12

2.  Aging with Disability Symptoms and Ability to Participate in, and Satisfaction with, Social Participation among Persons Aged 45-64.

Authors:  Michelle Putnam; Kerri Morgan; Rachel Heeb; Yan Yan; Szu-Wei Chen; Susan L Stark
Journal:  Healthcare (Basel)       Date:  2022-05-13

3.  Participant-Reported Benefits of Involvement in an Adaptive Sports Program: A Qualitative Study.

Authors:  Emma C Lape; Jeffrey N Katz; Elena Losina; Hannah M Kerman; Marissa A Gedman; Cheri A Blauwet
Journal:  PM R       Date:  2017-10-27       Impact factor: 2.298

4.  Evaluating the impact of a network of research partnerships: a longitudinal multiple case study protocol.

Authors:  Femke Hoekstra; Kathleen A Martin Ginis; Veronica Allan; Anita Kothari; Heather L Gainforth
Journal:  Health Res Policy Syst       Date:  2018-11-12

5.  Work-focused interventions that promote the labour market transition of young adults with chronic disabling health conditions: a systematic review.

Authors:  Arif Jetha; Robert Shaw; Adrienne R Sinden; Quenby Mahood; Monique Am Gignac; Mary Ann McColl; Kathleen A Martin Ginis
Journal:  Occup Environ Med       Date:  2019-01-11       Impact factor: 4.402

6.  Physical activity and life satisfaction among individuals with spinal cord injury: Exploring loneliness as a possible mediator.

Authors:  Nicholas Santino; Victoria Larocca; Sander L Hitzig; Sara J T Guilcher; B Catharine Craven; Rebecca L Bassett-Gunter
Journal:  J Spinal Cord Med       Date:  2020-05-07       Impact factor: 1.985

7.  Daily life participation in childhood chronic disease: a qualitative study on the child's and parent's perspective.

Authors:  Merel M Nap-van der Vlist; Emma E Berkelbach van der Sprenkel; Linde N Nijhof; Martha A Grootenhuis; Cornelis K van der Ent; Joost F Swart; Annet van Royen-Kerkhof; Martine van Grotel; Elise M van de Putte; Sanne L Nijhof; Marijke C Kars
Journal:  BMJ Paediatr Open       Date:  2021-05-18

8.  Study protocol for a multisite randomised controlled trial of a rehabilitation intervention to reduce participation restrictions among female breast cancer survivors.

Authors:  Courtney J Stevens; Mark T Hegel; Marie Anne Bakitas; Martha Bruce; Andres Azuero; Maria Pisu; Mary Chamberlin; Kimberly Keene; Gabrielle Rocque; Daphne Ellis; Tiffany Gilbert; Jamme L Morency; Robin M Newman; Megan E Codini; Karen E Thorp; Sarah M Dos Anjos; Danielle Z Cloyd; Jennifer Echols; Ashley N Milford; Stacey A Ingram; Jasmine Davis; Kathleen Doyle Lyons
Journal:  BMJ Open       Date:  2020-02-13       Impact factor: 2.692

9.  Conceptualizing participation in the community mental health context: Beginning with the Clubhouse model.

Authors:  Kimiko Tanaka; Eric Stein; Thomas J Craig; Liv Grethe Kinn; Julie Williams
Journal:  Int J Qual Stud Health Well-being       Date:  2021-12

10.  It takes three to tango: An ethnography of triadic involvement of residents, families and nurses in long-term dementia care.

Authors:  Luzan Koster; Henk Nies
Journal:  Health Expect       Date:  2021-07-20       Impact factor: 3.377

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