Haiyan Xu1, Wei Li1, Jingang Yang1, Stephen D Wiviott2, Marc S Sabatine2, Eric D Peterson3, Ying Xian3, Matthew T Roe3, Wei Zhao1, Yang Wang1, Xinran Tang1, Xuan Jia1, Yuan Wu1, Runlin Gao1, Yuejin Yang4. 1. Fuwai Hospital, National Center for Cardiovascular Diseases, Chinese Academy of Medical Science and Peking Union Medical College, Beijing, China. 2. TIMI Study Group, Cardiovascular Division, Brigham and Women's Hospital, Harvard Medical School, Boston, MA. 3. Duke Clinical Research Institute, Duke University Medical Center, Durham, NC. 4. Fuwai Hospital, National Center for Cardiovascular Diseases, Chinese Academy of Medical Science and Peking Union Medical College, Beijing, China. Electronic address: yangyjfw@126.com.
Abstract
BACKGROUND: Acute myocardial infarction (AMI) has become a major cause of hospitalization and mortality in China. There has been limited data to date available to characterize AMI presentation, contemporary patterns of medical care, and outcomes in China. AIMS: The CAMI Registry is a national project with the objectives to timely obtain real-world knowledge about AMI patients and to provide the platform for clinical research, guide preventive measures and care quality improvement efforts in China. METHODS AND PROGRESS: The CAMI registry is a prospective, nationwide, multicenter observational study for AMI patients. The registry includes three levels of hospitals (representing typical Chinese governmental and administrative models) from all provinces and municipalities throughout Mainland China except Hong Kong and Macau. Sites were instructed to enroll consecutive patients with a primary diagnosis of AMI. Clinical data, treatments, outcomes and cost are collected by local investigators and captured electronically, with a standardized set of variables and standard definitions, and rigorous data quality control. Post-discharge patient follow-up to 2 years is planned. The CAMI Registry was launched in January 2013. A total of 108 hospitals have participated in the registry so far. As of September 2014, 26,103 patients with AMI were registered. CONCLUSIONS: The CAMI registry represents a well-supported and the largest national long-term registry-research-education platform for surveillance, research, prevention and care improvement for AMI in China, the world's most populous nation. The broad representation of all provinces and different-level hospitals will allow for the exploration of AMI across diverse geographic regions and economic circumstances.
BACKGROUND: Acute myocardial infarction (AMI) has become a major cause of hospitalization and mortality in China. There has been limited data to date available to characterize AMI presentation, contemporary patterns of medical care, and outcomes in China. AIMS: The CAMI Registry is a national project with the objectives to timely obtain real-world knowledge about AMI patients and to provide the platform for clinical research, guide preventive measures and care quality improvement efforts in China. METHODS AND PROGRESS: The CAMI registry is a prospective, nationwide, multicenter observational study for AMI patients. The registry includes three levels of hospitals (representing typical Chinese governmental and administrative models) from all provinces and municipalities throughout Mainland China except Hong Kong and Macau. Sites were instructed to enroll consecutive patients with a primary diagnosis of AMI. Clinical data, treatments, outcomes and cost are collected by local investigators and captured electronically, with a standardized set of variables and standard definitions, and rigorous data quality control. Post-discharge patient follow-up to 2 years is planned. The CAMI Registry was launched in January 2013. A total of 108 hospitals have participated in the registry so far. As of September 2014, 26,103 patients with AMI were registered. CONCLUSIONS: The CAMI registry represents a well-supported and the largest national long-term registry-research-education platform for surveillance, research, prevention and care improvement for AMI in China, the world's most populous nation. The broad representation of all provinces and different-level hospitals will allow for the exploration of AMI across diverse geographic regions and economic circumstances.
Authors: He Peiyuan; Yang Jingang; Xu Haiyan; Gao Xiaojin; Xian Ying; Wu Yuan; Li Wei; Wang Yang; Tang Xinran; Yan Ruohua; Jin Chen; Song Lei; Zhang Xuan; Fu Rui; Ye Yunqing; Dong Qiuting; Sun Hui; Yan Xinxin; Gao Runlin; Yang Yuejin Journal: PLoS One Date: 2016-11-03 Impact factor: 3.240
Authors: Jing Li; Rachel P Dreyer; Xi Li; Xue Du; Nicholas S Downing; Li Li; Hai-Bo Zhang; Fang Feng; Wen-Chi Guan; Xiao Xu; Shu-Xia Li; Zhen-Qiu Lin; Frederick A Masoudi; John A Spertus; Harlan M Krumholz; Li-Xin Jiang Journal: Chin Med J (Engl) Date: 2016-01-05 Impact factor: 2.628