Pradeep A Praveen1, Sri Venkata Madhu2, Viswanathan Mohan3, Siddhartha Das4, Sanjeeb Kakati5, Nalini Shah6, Manoj Chaddha7, Sanjay Kumar Bhadada8, Ashok Kumar Das9, Deepak Kumar Shukla10, Tanvir Kaur10, Nikhil Tandon11. 1. All India Institute of Medical Sciences, New Delhi, India. 2. University College of Medical Sciences, Delhi, India. 3. Madras Diabetes Research Foundation, Chennai, India. 4. SCB Medical College and Hospital, Cuttuck, India. 5. Assam Medical College, Dibrugarh, Assam, India. 6. Seth G S Medical College & K.E.M. Hospital, Mumbai, India. 7. PD Hinduja Hospital and Medical Research Centre, Mumbai, India. 8. Post Graduate Institute of Medical Education and Research, Chandigarh, India. 9. Pondicherry Institute of Medical Sciences, Puducherry, India. 10. Indian Council of Medical Research, New Delhi, India. 11. All India Institute of Medical Sciences, New Delhi, India nikhil_tandon@hotmail.com.
Abstract
BACKGROUND: With the aim of addressing the relative scarcity of information on youth-onset diabetes in India, the Indian Council of Medical Research (ICMR) decided to establish the Registry of People with Diabetes with Young Age at Onset (YDR) in 2006. The major objectives of YDR are to generate information on disease pattern or types of youth-onset diabetes including their geographical variations within India and to estimate the burden of diabetes complications. METHODS: YDR is an observational multicenter clinic based registry enlisting physician diagnosed diabetes in individuals below 25 years of age. Diabetes was classified using symptom based clinical criteria. YDR data collection is coordinated through regional collaborating centers and their interacting reporting centers across India. A baseline and an annual follow-up proformas are used to obtain information on sociodemographic details, clinical profile, and anthropometric and laboratory measurements of the patients. RESULTS: In phase 1, the registry has enrolled 5546 patients, in which type 1 diabetes mellitus (T1DM) was the most prevalent (63.9%), followed by youth-onset type 2 diabetes mellitus (T2DM) (25.3%). CONCLUSION: This registry provides a unique opportunity to study the natural history of youth-onset diabetes in India.
BACKGROUND: With the aim of addressing the relative scarcity of information on youth-onset diabetes in India, the Indian Council of Medical Research (ICMR) decided to establish the Registry of People with Diabetes with Young Age at Onset (YDR) in 2006. The major objectives of YDR are to generate information on disease pattern or types of youth-onset diabetes including their geographical variations within India and to estimate the burden of diabetes complications. METHODS: YDR is an observational multicenter clinic based registry enlisting physician diagnosed diabetes in individuals below 25 years of age. Diabetes was classified using symptom based clinical criteria. YDR data collection is coordinated through regional collaborating centers and their interacting reporting centers across India. A baseline and an annual follow-up proformas are used to obtain information on sociodemographic details, clinical profile, and anthropometric and laboratory measurements of the patients. RESULTS: In phase 1, the registry has enrolled 5546 patients, in which type 1 diabetes mellitus (T1DM) was the most prevalent (63.9%), followed by youth-onset type 2 diabetes mellitus (T2DM) (25.3%). CONCLUSION: This registry provides a unique opportunity to study the natural history of youth-onset diabetes in India.
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Authors: Christine W Hockett; Pradeep A Praveen; Toan C Ong; Anandakumar Amutha; Scott P Isom; Elizabeth T Jensen; Ralph B D'Agostino; Richard F Hamman; Elizabeth J Mayer-Davis; Jean M Lawrence; Catherine Pihoker; Michael G Kahn; Viswanathan Mohan; Nikhil Tandon; Dana Dabelea Journal: Pediatr Diabetes Date: 2020-01-29 Impact factor: 3.409
Authors: Elizabeth T Jensen; Dana A Dabelea; Pradeep A Praveen; Anandakumar Amutha; Christine W Hockett; Scott P Isom; Toan C Ong; Viswanathan Mohan; Ralph D'Agostino; Michael G Kahn; Richard F Hamman; Paul Wadwa; Lawrence Dolan; Jean M Lawrence; S V Madhu; Reshmi Chhokar; Komal Goel; Nikhil Tandon; Elizabeth Mayer-Davis Journal: Pediatr Diabetes Date: 2020-04-06 Impact factor: 3.409
Authors: Anandakumar Amutha; Pradeep A Praveen; Christine W Hockett; Toan C Ong; Elizabeth T Jensen; Scott P Isom; Ralph B Jr D'Agostino; Richard F Hamman; Elizabeth J Mayer-Davis; Raj Paul Wadwa; Jean M Lawrence; Catherine Pihoker; Michael G Kahn; Dana Dabelea; Nikhil Tandon; Viswanathan Mohan Journal: Pediatr Diabetes Date: 2020-03-24 Impact factor: 3.409