Literature DB >> 27174806

'Autism and the good life': a new approach to the study of well-being.

Raffaele Rodogno1, Katrine Krause-Jensen1, Richard E Ashcroft2.   

Abstract

Medical, psychological, educational and social interventions to modify the behaviour of autistic people are only justified if they confer benefit on those people. However, it is not clear how 'benefit' should be understood. Most such interventions are justified by referring to the prospect that they will effect lasting improvements in the well-being and happiness of autistic people, so they can lead good lives. What does a good life for an autistic person consist in? Can we assume that his or her well-being is substantively the same as the well-being of non-autistic individuals? In this paper, we argue that, as it stands, the current approach to the study of well-being is for the most part unable to answer these questions. In particular, much effort is needed in order to improve the epistemology of well-being, especially so if we wish this epistemology to be 'autism-sensitive'. Towards the end of the paper, we sketch a new, autism-sensitive approach and apply it in order to begin answering our initial questions. Published by the BMJ Publishing Group Limited. For permission to use (where not already granted under a licence) please go to http://www.bmj.com/company/products-services/rights-and-licensing/

Entities:  

Keywords:  Ethics

Mesh:

Year:  2016        PMID: 27174806     DOI: 10.1136/medethics-2016-103595

Source DB:  PubMed          Journal:  J Med Ethics        ISSN: 0306-6800            Impact factor:   2.903


  5 in total

1.  The Autism Intervention Research Network on Physical Health Autistic Researcher Review Board.

Authors:  Heather M Brown; Patrick S R Dwyer; Dena L Gassner; Steven K Kapp; Ari Ne'eman; Jacalyn G Ryan; T C Waisman; Zachary J Williams
Journal:  Pediatrics       Date:  2022-04-01       Impact factor: 9.703

2.  Well-Being and the Good Death.

Authors:  Stephen M Campbell
Journal:  Ethical Theory Moral Pract       Date:  2020-07-13

Review 3.  The many meanings of autism: conceptual and ethical reflections.

Authors:  Kristien Hens
Journal:  Dev Med Child Neurol       Date:  2019-06-17       Impact factor: 5.449

4.  Autism, autonomy, and authenticity.

Authors:  Elisabeth M A Späth; Karin R Jongsma
Journal:  Med Health Care Philos       Date:  2020-03

5.  Autistic Self-Advocacy and the Neurodiversity Movement: Implications for Autism Early Intervention Research and Practice.

Authors:  Kathy Leadbitter; Karen Leneh Buckle; Ceri Ellis; Martijn Dekker
Journal:  Front Psychol       Date:  2021-04-12
  5 in total

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