Literature DB >> 27170587

Re-claiming citizenship through the arts.

Sherry L Dupuis1, Pia Kontos2, Gail Mitchell3, Christine Jonas-Simpson4, Julia Gray5.   

Abstract

Healthcare literature, public discourse, and policy documents continue to represent persons with dementia as "doomed" and "socially dead." This tragedy meta-narrative produces and reproduces misunderstandings about dementia and causes stigma, oppression, and discrimination for persons living with dementia. With few opportunities to challenge the dominant discourse, persons with dementia continue to be denied their citizenship rights. Drawing on the concept of narrative citizenship, we describe a community-based, critical arts-based project where persons with dementia, family members, visual and performance artists, and researchers came together to interrogate the tragedy discourse and construct an alternative narrative of dementia using the arts. Our research demonstrates the power of the arts to create transformative spaces in which to challenge dominant assumptions, foster critical reflection, and envision new possibilities for mutual support, caring, and relating. This alternative narrative supports the reclamation of citizenship for persons living with dementia and fosters the relational citizenship of all.
© The Author(s) 2016.

Entities:  

Keywords:  critical arts-based research; dementia; embodiment; narrative citizenship; relationality

Mesh:

Year:  2016        PMID: 27170587     DOI: 10.1177/1471301216637206

Source DB:  PubMed          Journal:  Dementia (London)        ISSN: 1471-3012


  4 in total

1.  Improving social inclusion for people with dementia and carers through sharing dance: a qualitative sequential continuum of care pilot study protocol.

Authors:  Mark W Skinner; Rachel V Herron; Rachel J Bar; Pia Kontos; Verena Menec
Journal:  BMJ Open       Date:  2018-11-28       Impact factor: 2.692

2.  Generativity in Creative Storytelling: Evidence From a Dementia Care Community.

Authors:  Seoyoun Kim; Kyong Hee Chee; Olga Gerhart
Journal:  Innov Aging       Date:  2020-03-28

Review 3.  Conceptualizing citizenship in dementia: A scoping review of the literature.

Authors:  Deborah O'Connor; Mariko Sakamoto; Kishore Seetharaman; Habib Chaudhury; Alison Phinney
Journal:  Dementia (London)       Date:  2022-06-29

4.  Free to be: Experiences of arts-based relational caring in a community living and thriving with dementia.

Authors:  Christine Jonas-Simpson; Gail Mitchell; Sherry Dupuis; Lesley Donovan; Pia Kontos
Journal:  Dementia (London)       Date:  2021-06-24
  4 in total

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