Literature DB >> 27146495

The lived experience of fatigue in children and adolescents with cancer: a systematic review.

D Tomlinson1, S Zupanec2, H Jones2, C O'Sullivan3, T Hesser3, L Sung3,2.   

Abstract

PURPOSE: Objectives of this systematic review were to summarize how fatigue has been described from the perspective of children and adolescents with cancer, the impact of fatigue on quality of life, and child reported contributing factors and potential alleviators of fatigue.
METHODS: We conducted electronic searches of Ovid Medline, EMBASE, PsycInfo, Science Citation, Social Science Citation (Web of Science), and CINAHL. We included studies of children and adolescents with cancer in which the experience of fatigue was described by the child/adolescent. The search was restricted to publications in English. Themes were summarized.
RESULTS: Eleven studies were represented in 18 publications. Ages of included children ranged from 6 to 19 years. Majority of studies used semi-structured interviews to elicit participant's perceptions of fatigue. Terms used to describe fatigue included the following: tiredness, weary, loss of strength, dizziness, feeling drained, feeling drowsy, lacking motivation, exhaustion, and feeling emotional. Impact of fatigue related to not being able to participate in regular activities; needing to sleep or rest more; and impact on psychosocial health. Perceived alleviators of fatigue included exercise, distraction, rest, eating, and drinking.
CONCLUSIONS: Fatigue is impactful from the perspective of children and adolescents. Future research should focus on prospective exploration of the impact of fatigue on pediatric cancer patients and identifying approaches to reduce fatigue.

Entities:  

Keywords:  Cancer; Child perspective; Fatigue; Lived-experience; Tiredness

Mesh:

Year:  2016        PMID: 27146495     DOI: 10.1007/s00520-016-3253-8

Source DB:  PubMed          Journal:  Support Care Cancer        ISSN: 0941-4355            Impact factor:   3.603


  41 in total

Review 1.  Measuring physical symptoms in children and adolescents with cancer.

Authors:  Lauri A Linder
Journal:  Cancer Nurs       Date:  2005 Jan-Feb       Impact factor: 2.592

2.  Consolidated criteria for reporting qualitative research (COREQ): a 32-item checklist for interviews and focus groups.

Authors:  Allison Tong; Peter Sainsbury; Jonathan Craig
Journal:  Int J Qual Health Care       Date:  2007-09-14       Impact factor: 2.038

3.  Comparing patient, parent, and staff descriptions of fatigue in pediatric oncology patients.

Authors:  P S Hinds; M Hockenberry-Eaton; E Gilger; N Kline; C Burleson; S Bottomley; A Quargnenti
Journal:  Cancer Nurs       Date:  1999-08       Impact factor: 2.592

Review 4.  Systematic review and meta-analysis of nonpharmacological interventions for fatigue in children and adolescents with cancer.

Authors:  Chi-Wen Chang; Pei-Fan Mu; Shiann-Tarng Jou; Tai-Tong Wong; Yu-Chih Chen
Journal:  Worldviews Evid Based Nurs       Date:  2013-06-27       Impact factor: 2.931

5.  Heavy to carry: a survey of parents' and healthcare professionals' perceptions of cancer-related fatigue in children and young people.

Authors:  Faith Gibson; Marion Garnett; Alison Richardson; Jacqueline Edwards; Beth Sepion
Journal:  Cancer Nurs       Date:  2005 Jan-Feb       Impact factor: 2.592

6.  The experiences of cancer-related fatigue among Chinese children with leukaemia: a phenomenological study.

Authors:  Meisi Wu; Lily Hsu; Binghua Zhang; Nanping Shen; Hong Lu; Sijian Li
Journal:  Int J Nurs Stud       Date:  2009-08-25       Impact factor: 5.837

7.  Physical problems and psychosocial function in children with cancer.

Authors:  Karin Enskär; Louise von Essen
Journal:  Paediatr Nurs       Date:  2008-04

8.  Fatigue in 7- to 12-year-old patients with cancer from the staff perspective: an exploratory study.

Authors:  P S Hinds; M Hockenberry-Eaton; A Quargnenti; M May; C Burleson; E Gilger; E Randall; J Brace-Oneill
Journal:  Oncol Nurs Forum       Date:  1999 Jan-Feb       Impact factor: 2.172

9.  Effectiveness of music intervention in ameliorating cancer patients' anxiety, depression, pain, and fatigue: a meta-analysis.

Authors:  Hsiu F Tsai; Ying R Chen; Min H Chung; Yuan M Liao; Mei J Chi; Chia C Chang; Kuei R Chou
Journal:  Cancer Nurs       Date:  2014 Nov-Dec       Impact factor: 2.592

10.  Children's understandings' of obesity, a thematic analysis.

Authors:  Amy L Fielden; Elizabeth Sillence; Linda Little
Journal:  Int J Qual Stud Health Well-being       Date:  2011-09-02
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  15 in total

1.  Protocol of a mixed-method randomised controlled pilot study evaluating a wilderness programme for adolescent and young adult cancer survivors: the WAYA study.

Authors:  Miek C Jong; Eric Mulder; Agnete E Kristoffersen; Trine Stub; Heléne Dahlqvist; Eija Viitasara; E Anne Lown; Winnie Schats; Mats Jong
Journal:  BMJ Open       Date:  2022-05-09       Impact factor: 3.006

2.  Symptom Profiles of Adolescents and Young Adults in Active Cancer Treatment by Diagnostic Groups.

Authors:  Suzanne Ameringer; R K Elswick; Kristin Stegenga; Catherine Fiona Macpherson; Jeanne M Erickson; Lauri Linder
Journal:  Cancer Nurs       Date:  2021-12-29       Impact factor: 2.760

3.  Prevalence and impact of severe fatigue in adolescent and young adult cancer patients in comparison with population-based controls.

Authors:  Hanneke Poort; Suzanne E J Kaal; Hans Knoop; Rosemarie Jansen; Judith B Prins; Eveliene Manten-Horst; Petra Servaes; Olga Husson; Winette T A van der Graaf
Journal:  Support Care Cancer       Date:  2017-05-20       Impact factor: 3.603

4.  Health-related quality of life, culture and communication: a comparative study in children with cancer in Argentina and Sweden.

Authors:  Emelie Stenmarker; Karin Mellgren; Mónica Matus; Anna Schroder Hakansson; Margaretha Stenmarker
Journal:  J Patient Rep Outcomes       Date:  2018-10-17

5.  Quality of life in pediatric acute myeloid leukemia: Report from the Children's Oncology Group.

Authors:  Rajaram Nagarajan; Robert Gerbing; Todd Alonzo; Donna L Johnston; Richard Aplenc; Edward A Kolb; Soheil Meshinchi; Lamia P Barakat; Lillian Sung
Journal:  Cancer Med       Date:  2019-06-12       Impact factor: 4.452

6.  The Childhood Cancer Centre Is Coming Home: Experiences of Hospital-Based Home Care.

Authors:  Malin de Flon; Gisela Glaffey; Linda Jarl; Kristin Sellbrant; Stefan Nilsson
Journal:  Int J Environ Res Public Health       Date:  2021-06-09       Impact factor: 3.390

7.  A pilot study of the effect of a home-based multimodal symptom-management program in children and adolescents undergoing chemotherapy.

Authors:  Karis Kin-Fong Cheng; Laura Mei Lian Tan
Journal:  Cancer Rep (Hoboken)       Date:  2021-02-15

8.  Association between multiple symptoms and quality of life of paediatric patients with cancer in Brazil: a cross-sectional study.

Authors:  Sandra de Andrade Cadamuro; Julia Onishi Franco; Carlos Eduardo Paiva; Marco Antonio de Oliveira; Bianca Sakamoto Ribeiro Paiva
Journal:  BMJ Open       Date:  2020-05-05       Impact factor: 2.692

9.  Young adult cancer survivors' experience of taking part in a 12-week exercise referral programme: a qualitative study of the Trekstock RENEW initiative.

Authors:  N Below; A Fisher; S Epstone; J Reynolds; G Pugh
Journal:  Support Care Cancer       Date:  2020-09-22       Impact factor: 3.603

10.  Protocol for mapping psychosocial screening to resources in pediatric oncology: a pilot randomized controlled trial.

Authors:  Leandra Desjardins; Kelly Hancock; Peter Szatmari; Sarah Alexander; Wendy Shama; Claire De Souza; Denise Mills; Oussama Abla; Maru Barrera
Journal:  Pilot Feasibility Stud       Date:  2021-07-17
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