Literature DB >> 27142372

Treatment Burden and Chronic Illness: Who is at Most Risk?

Adem Sav1,2, Jennifer A Whitty3, Sara S McMillan4,5, Elizabeth Kendall4, Fiona Kelly5,6, Michelle A King5, Amanda J Wheeler4,6.   

Abstract

BACKGROUND: There is a need to ascertain the type and level of treatment burden experienced by people with co-morbidities. This is important to identify the characteristics of participants who are at most risk of treatment burden.
OBJECTIVE: The aim of this study is to identify the characteristics of participants who are at most risk of treatment burden.
METHODS: This cross-sectional study was part of a larger project and recruitment was conducted across four Australian regions: rural, semi-rural and metropolitan. Participants were asked about their treatment burden using an adapted version of a measure, which included the following five dimensions: medication, time and administrative, lifestyle change, social life and financial burden.
RESULTS: In total, 581 participants with various chronic health conditions reported a mean global treatment burden of 56.5 out of 150 (standard deviation = 34.5). Number of chronic conditions (β = .34, p < 0.01), age, (β = -.27, p < 0.01), the presence of an unpaid carer (β = .22, p < 0.001) and the presence of diabetes mellitus and other endocrine conditions (β = .13, p < 0.01) were significant predictors of overall treatment burden. For the five dimensions of treatment burden, social, medicine and administrative burden were predicted by the same cluster of variables: number of conditions, age, presence of an unpaid carer and diabetes. However, in addition to these variables, financial dimensions were also predicted by education level, ethnicity and health insurance. Educational level also influenced lifestyle burden.
CONCLUSION: A substantial proportion of community-dwelling adults with chronic conditions have considerable levels of treatment burden. Specifically, health professionals should provide greater focus on managing overall treatment burden for persons who are of young age, have an endocrine condition or an unpaid carer, or a combination of these factors.

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Mesh:

Year:  2016        PMID: 27142372     DOI: 10.1007/s40271-016-0175-y

Source DB:  PubMed          Journal:  Patient        ISSN: 1178-1653            Impact factor:   3.883


  18 in total

1.  Exploring polypharmacy in elderly women after myocardial infarction.

Authors:  Lynda Moss; Patricia B Crane
Journal:  J Women Aging       Date:  2010

2.  Thinking about the burden of treatment.

Authors:  Frances S Mair; Carl R May
Journal:  BMJ       Date:  2014-11-10

3.  Patients' estimation of overall treatment burden: why not ask the obvious?

Authors:  J Bernhard; R Maibach; B Thürlimann; C Sessa; M S Aapro
Journal:  J Clin Oncol       Date:  2002-01-01       Impact factor: 44.544

4.  Treatment burden among people with chronic illness: what are consumer health organizations saying?

Authors:  Adem Sav; Sara S McMillan; Fiona Kelly; Elizabeth Kendall; Jennifer A Whitty; Michelle A King; Amanda J Wheeler
Journal:  Chronic Illn       Date:  2012-10-23

5.  A qualitative study of the impact of severe asthma and its treatment showing that treatment burden is neglected in existing asthma assessment scales.

Authors:  Michael E Hyland; Ben Whalley; Rupert C Jones; Matthew Masoli
Journal:  Qual Life Res       Date:  2014-09-09       Impact factor: 4.147

6.  Development and description of measurement properties of an instrument to assess treatment burden among patients with multiple chronic conditions.

Authors:  Viet-Thi Tran; Victor M Montori; David T Eton; Dan Baruch; Bruno Falissard; Philippe Ravaud
Journal:  BMC Med       Date:  2012-07-04       Impact factor: 8.775

7.  Overwhelmed patients: a videographic analysis of how patients with type 2 diabetes and clinicians articulate and address treatment burden during clinical encounters.

Authors:  Krista Bohlen; Elizabeth Scoville; Nathan D Shippee; Carl R May; Victor M Montori
Journal:  Diabetes Care       Date:  2011-11-18       Impact factor: 19.112

8.  Taxonomy of the burden of treatment: a multi-country web-based qualitative study of patients with chronic conditions.

Authors:  Viet-Thi Tran; Caroline Barnes; Victor M Montori; Bruno Falissard; Philippe Ravaud
Journal:  BMC Med       Date:  2015-05-14       Impact factor: 8.775

9.  Building a measurement framework of burden of treatment in complex patients with chronic conditions: a qualitative study.

Authors:  David T Eton; Djenane Ramalho de Oliveira; Jason S Egginton; Jennifer L Ridgeway; Laura Odell; Carl R May; Victor M Montori
Journal:  Patient Relat Outcome Meas       Date:  2012-08-24

Review 10.  Prevalence of comorbidity of chronic diseases in Australia.

Authors:  Gillian E Caughey; Agnes I Vitry; Andrew L Gilbert; Elizabeth E Roughead
Journal:  BMC Public Health       Date:  2008-06-27       Impact factor: 3.295

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  14 in total

1.  Quality of Life and Value Assessment in Health Care.

Authors:  Alicia Hall
Journal:  Health Care Anal       Date:  2020-03

2.  Associations between symptom severity and treatment burden in people living with HIV.

Authors:  Nathanial Schreiner; Joseph Perazzo; Sarah Digennaro; Christopher Burant; Barbara Daly; Allison Webel
Journal:  J Adv Nurs       Date:  2020-07-09       Impact factor: 3.187

3.  A descriptive, cross-sectional study examining treatment burden in people living with HIV.

Authors:  Nathanial Schreiner; Joseph Perazzo; Jackson Currie; Barbra Daly; Allison Webel
Journal:  Appl Nurs Res       Date:  2019-02-13       Impact factor: 2.257

4.  A Pilot Study Exploring Treatment Burden in a Skilled Nursing Population.

Authors:  Nathanial Schreiner; Barbara Daly
Journal:  Rehabil Nurs       Date:  2020 May/Jun       Impact factor: 1.625

5.  Validating the Patient Experience with Treatment and Self-Management (PETS), a patient-reported measure of treatment burden, in people with diabetes.

Authors:  Elizabeth A Rogers; Kathleen J Yost; Jordan K Rosedahl; Mark Linzer; Deborah H Boehm; Azra Thakur; Sara Poplau; Roger T Anderson; David T Eton
Journal:  Patient Relat Outcome Meas       Date:  2017-11-09

Review 6.  Measuring the burden of treatment for chronic disease: implications of a scoping review of the literature.

Authors:  Adem Sav; Asiyeh Salehi; Frances S Mair; Sara S McMillan
Journal:  BMC Med Res Methodol       Date:  2017-09-12       Impact factor: 4.615

7.  A systematic literature review of the assessment of treatment burden experienced by patients and their caregivers.

Authors:  Orla C Sheehan; Bruce Leff; Christine S Ritchie; Sarah K Garrigues; Lingsheng Li; Debra Saliba; Roya Fathi; Cynthia M Boyd
Journal:  BMC Geriatr       Date:  2019-10-11       Impact factor: 3.921

8.  How patient participation was used to develop a questionnaire that is fit for purpose for assessing quality of life in severe asthma.

Authors:  Michael E Hyland; Joseph W Lanario; Jill Pooler; Matthew Masoli; Rupert C Jones
Journal:  Health Qual Life Outcomes       Date:  2018-01-27       Impact factor: 3.186

9.  Managing expectations: cognitive authority and experienced control in complex healthcare processes.

Authors:  Katherine J Hunt; Carl R May
Journal:  BMC Health Serv Res       Date:  2017-07-05       Impact factor: 2.655

10.  Medication-Related Burden among Patients with Chronic Disease Conditions: Perspectives of Patients Attending Non-Communicable Disease Clinics in a Primary Healthcare Setting in Qatar.

Authors:  Amani Zidan; Ahmed Awaisu; Maguy Saffouh El-Hajj; Samya Ahmad Al-Abdulla; Dianne Candy Rose Figueroa; Nadir Kheir
Journal:  Pharmacy (Basel)       Date:  2018-08-13
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