Literature DB >> 27128368

Attitudes and Perceptions of Research in Aging and Dementia in an Urban Minority Population.

Judith Neugroschl1, Margaret Sewell1, Angelica De La Fuente1, Mari Umpierre1, Xiaodong Luo1, Mary Sano1,2.   

Abstract

In dementia trials, minority participation is low. We assessed attitudes toward research in a community based urban poor minority sample of elderly adults attending senior center talks using the 7-item Research Attitudes Questionnaire (RAQ). Presentations on cognitive aging were given at senior centers, and 123 attendees completed the RAQ-7. On trust and safety questions, a significant minority (42-48%) responded neutrally or negatively. Encouragingly, on questions concerning the importance of research, 72-81% answered positively. More work can be done to capitalize on these findings to engage and foster trust, and this can be a focus of outreach.

Entities:  

Keywords:  Attitude; dementia; elderly; memory; minority; research

Mesh:

Year:  2016        PMID: 27128368      PMCID: PMC5929135          DOI: 10.3233/JAD-151072

Source DB:  PubMed          Journal:  J Alzheimers Dis        ISSN: 1387-2877            Impact factor:   4.472


  12 in total

1.  The Tuskegee Legacy Project: willingness of minorities to participate in biomedical research.

Authors:  Ralph V Katz; S Steven Kegeles; Nancy R Kressin; B Lee Green; Min Qi Wang; Sherman A James; Stefanie Luise Russell; Cristina Claudio
Journal:  J Health Care Poor Underserved       Date:  2006-11

Review 2.  A systematic review of barriers and facilitators to minority research participation among African Americans, Latinos, Asian Americans, and Pacific Islanders.

Authors:  Sheba George; Nelida Duran; Keith Norris
Journal:  Am J Public Health       Date:  2013-12-12       Impact factor: 9.308

3.  Assessing the awareness of and willingness to participate in cancer clinical trials among immigrant Latinos.

Authors:  Sherrie Flynt Wallington; Gheorghe Luta; Anne-Michelle Noone; Larisa Caicedo; Maria Lopez-Class; Vanessa Sheppard; Cherie Spencer; Jeanne Mandelblatt
Journal:  J Community Health       Date:  2012-04

4.  Recruitment of a community-based cohort for research on diversity and risk of dementia.

Authors:  Ladson Hinton; Kimberly Carter; Bruce R Reed; Laurel Beckett; Esther Lara; Charles DeCarli; Dan Mungas
Journal:  Alzheimer Dis Assoc Disord       Date:  2010 Jul-Sep       Impact factor: 2.703

5.  Characterization of Mexican Americans with mild cognitive impairment and Alzheimer's disease.

Authors:  Sid E O'Bryant; Leigh Johnson; Valerie Balldin; Melissa Edwards; Robert Barber; Benjamin Williams; Michael Devous; Blair Cushings; Janice Knebl; James Hall
Journal:  J Alzheimers Dis       Date:  2013       Impact factor: 4.472

6.  Clinical research participation among aging adults enrolled in an Alzheimer's Disease Center research registry.

Authors:  Angela L Jefferson; Susan Lambe; Christine Chaisson; Joseph Palmisano; Kathy J Horvath; Jason Karlawish
Journal:  J Alzheimers Dis       Date:  2011       Impact factor: 4.472

7.  Measuring how people view biomedical research: Reliability and validity analysis of the Research Attitudes Questionnaire.

Authors:  Jonathan D Rubright; Mark S Cary; Jason H Karlawish; Scott Y H Kim
Journal:  J Empir Res Hum Res Ethics       Date:  2011-03       Impact factor: 1.742

Review 8.  Facilitating Alzheimer disease research recruitment.

Authors:  Joshua D Grill; James E Galvin
Journal:  Alzheimer Dis Assoc Disord       Date:  2014 Jan-Mar       Impact factor: 2.703

9.  Effective recruitment strategies for Latino and Caucasian dementia family caregivers in intervention research.

Authors:  Dolores Gallagher-Thompson; Lani S Singer; Colin Depp; Brent T Mausbach; Veronica Cardenas; David W Coon
Journal:  Am J Geriatr Psychiatry       Date:  2004 Sep-Oct       Impact factor: 4.105

Review 10.  Research priorities in the evolving demographic landscape of Alzheimer disease and associated dementias.

Authors:  Ramón Valle; Brason Lee
Journal:  Alzheimer Dis Assoc Disord       Date:  2002       Impact factor: 2.703

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  8 in total

1.  Research Attitudes Questionnaire scores predict Alzheimer's disease clinical trial dropout.

Authors:  Shana D Stites; R Scott Turner; Jeanine Gill; Anna Gurian; Jason Karlawish; Joshua D Grill
Journal:  Clin Trials       Date:  2021-01-10       Impact factor: 2.486

2.  Preliminary assessment of connected speech and language as marker for cognitive change in late middle-aged Black/African American adults at risk for Alzheimer's disease.

Authors:  Elizabeth Evans; Sheryl L Coley; Diane C Gooding; Nia Norris; Celena M Ramsey; Gina Green-Harris; Kimberly D Mueller
Journal:  Aphasiology       Date:  2021-06-18       Impact factor: 1.902

3.  Diversifying Recruitment Registries: Considering Neighborhood Health Metrics.

Authors:  J D Grill; A Kind; D Hoang; D L Gillen
Journal:  J Prev Alzheimers Dis       Date:  2022

4.  Research Attitudes and Interest Among Elderly Latinxs: The Impact of a Collaborative Video and Community Peers.

Authors:  Margaret C Sewell; Judith Neugroschl; Mari Umpierre; Shehan Chin; Carolyn W Zhu; Nelly Velasco; Sabrina Gonzalez; Alexandra Acabá-Berrocal; Luca Bianchetti; Gabriela Silva; Alma Collazo; Mary Sano
Journal:  J Alzheimers Dis       Date:  2021       Impact factor: 4.472

Review 5.  Recruitment and retention of underrepresented populations in Alzheimer's disease research: A systematic review.

Authors:  Andrea L Gilmore-Bykovskyi; Yuanyuan Jin; Carey Gleason; Susan Flowers-Benton; Laura M Block; Peggye Dilworth-Anderson; Lisa L Barnes; Manish N Shah; Megan Zuelsdorff
Journal:  Alzheimers Dement (N Y)       Date:  2019-11-19

6.  Tailoring Research Recruitment for Acute Care Settings: Recommendations from People with Dementia and their Caregivers.

Authors:  Amanda M Friz; Clark Benson; Shannon Mullen; Laura Block; Andrea Gilmore-Bykovskyi
Journal:  Alzheimer Dis Assoc Disord       Date:  2021 Jul-Sep 01       Impact factor: 2.703

7.  African Americans are less likely to enroll in preclinical Alzheimer's disease clinical trials.

Authors:  Yan Zhou; David Elashoff; Sarah Kremen; Edmond Teng; Jason Karlawish; Joshua D Grill
Journal:  Alzheimers Dement (N Y)       Date:  2016-10-15

8.  Facilitators of research registry enrollment and potential variation by race and gender.

Authors:  Crystal M Glover; Christina Creel-Bulos; Lisa M Patel; Scarlett Ellis During; Karen L Graham; Yadira Montoya; Susan Frick; Judy Phillips; Raj C Shah
Journal:  J Clin Transl Sci       Date:  2018-11-27
  8 in total

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