Morag Farquhar1, Clarissa Penfold2, Fiona M Walter3, Isla Kuhn4, John Benson2. 1. Department of Public Health & Primary Care, School of Clinical Medicine, University of Cambridge, Cambridge, United Kingdom; School of Nursing, Midwifery and Social Work, The University of Manchester, Manchester, United Kingdom. Electronic address: mcf22@medschl.cam.ac.uk. 2. Department of Public Health & Primary Care, School of Clinical Medicine, University of Cambridge, Cambridge, United Kingdom. 3. Department of Public Health & Primary Care, School of Clinical Medicine, University of Cambridge, Cambridge, United Kingdom; General Practice & Primary Care Academic Centre, University of Melbourne, Melbourne, Victoria, Australia. 4. Medical Library, School of Clinical Medicine, University of Cambridge, Cambridge, United Kingdom.
Abstract
CONTEXT: Educating carers about symptom management may help meet patient and carer needs in relation to distressing symptoms in advanced disease. Reviews of the effectiveness of carer interventions exist, but few have focused on educational interventions and none on the key elements that comprise them but which could inform evidence-based design. OBJECTIVES: To identify the key elements (structural components, processes, and delivery modes) of educational interventions for carers of patients with advanced disease. METHODS: We systematically searched seven databases, applied inclusion and exclusion criteria, conducted quality appraisal, extracted data, and performed a narrative analysis. RESULTS: We included 62 articles related to 49 interventions. Two main delivery modes were identified: personnel-delivered interventions and stand-alone resources. Personnel-delivered interventions targeted individuals or groups, the former conducted at single or multiple time points, and the latter delivered as series. Just more than half targeted carers rather than patient-carer dyads. Most were developed for cancer; few focused purely on symptom management. Stand-alone resources were rare. Methods to evaluate interventions ranged from postintervention evaluations to fully powered randomized controlled trials but of variable quality. CONCLUSION: Published evaluations of educational interventions for carers in advanced disease are limited, particularly for non-cancer conditions. Key elements for consideration in developing such interventions were identified; however, lack of reporting of reasons for nonparticipation or dropout from interventions limits understanding of the contribution of these elements to interventions' effectiveness. When developing personnel-delivered interventions for carers in advanced disease, consideration of the disease (and, therefore, caring) trajectory, intervention accessibility (timing, location, and transport), and respite provision may be helpful. Crown
CONTEXT: Educating carers about symptom management may help meet patient and carer needs in relation to distressing symptoms in advanced disease. Reviews of the effectiveness of carer interventions exist, but few have focused on educational interventions and none on the key elements that comprise them but which could inform evidence-based design. OBJECTIVES: To identify the key elements (structural components, processes, and delivery modes) of educational interventions for carers of patients with advanced disease. METHODS: We systematically searched seven databases, applied inclusion and exclusion criteria, conducted quality appraisal, extracted data, and performed a narrative analysis. RESULTS: We included 62 articles related to 49 interventions. Two main delivery modes were identified: personnel-delivered interventions and stand-alone resources. Personnel-delivered interventions targeted individuals or groups, the former conducted at single or multiple time points, and the latter delivered as series. Just more than half targeted carers rather than patient-carer dyads. Most were developed for cancer; few focused purely on symptom management. Stand-alone resources were rare. Methods to evaluate interventions ranged from postintervention evaluations to fully powered randomized controlled trials but of variable quality. CONCLUSION: Published evaluations of educational interventions for carers in advanced disease are limited, particularly for non-cancer conditions. Key elements for consideration in developing such interventions were identified; however, lack of reporting of reasons for nonparticipation or dropout from interventions limits understanding of the contribution of these elements to interventions' effectiveness. When developing personnel-delivered interventions for carers in advanced disease, consideration of the disease (and, therefore, caring) trajectory, intervention accessibility (timing, location, and transport), and respite provision may be helpful. Crown
Authors: Morag Farquhar; Clarissa Penfold; John Benson; Roberta Lovick; Ravi Mahadeva; Sophie Howson; Julie Burkin; Sara Booth; David Gilligan; Christopher Todd; Gail Ewing Journal: PLoS One Date: 2017-05-05 Impact factor: 3.240
Authors: Lisa Jane Brighton; India Tunnard; Morag Farquhar; Sara Booth; Sophie Miller; Deokhee Yi; Wei Gao; Sabrina Bajwah; William Dc Man; Charles C Reilly; Margaret Ogden; Sylvia Bailey; Colleen Ewart; Irene J Higginson; Matthew Maddocks Journal: Chron Respir Dis Date: 2019 Jan-Dec Impact factor: 2.444