Literature DB >> 27108588

Accomplishments of Heinz Baumberger PhD: a remarkable patient with ankylosing spondylitis for 72 years.

Muhammad A Khan1.   

Abstract

This is the story of a remarkable Swiss patient-Heinz Baumberger, PhD-who was born in 1931 and has suffered from ankylosing spondylitis (AS) since 1943. He has survived many manifestations and co-morbid conditions associated with his disease and its treatment. These include severe episodes of acute anterior uveitis, osteoporosis with fragility fractures, and also post-traumatic spinal fractures on three different occasions. In addition, he has suffered from multiple basal cell carcinomas as a late complication of a 3-week course of spinal radiation in 1952 and another one in 1962. It was only in 1971 that Dr. Baumberger for the first time met a fellow sufferer from AS, and he subsequently helped establish the Swiss AS patient support group, the second such national group in the world. He co-authored with his rheumatologist an excellent and well-illustrated book on AS for patients and their family members and for allied healthcare professionals. He travelled extensively around the globe lecturing and participating in various meetings and congresses in his zeal to spread the idea of self-help organizations for patients with AS.

Entities:  

Keywords:  Ankylosing spondylitis; Axial spondyloarthritis; Bamboo spine; Basal cell carcinoma; Fibroepithelioma Pinkus; HLA-B27; Juvenile onset; Morbus Bechterew; Osteoporosis; SVMB; Schweizerische Vereinigung Morbus Bechterew; Spinal fractures; Spinal irradiation; Spondyloarthropathies; Uveitis

Mesh:

Substances:

Year:  2016        PMID: 27108588     DOI: 10.1007/s10067-016-3259-0

Source DB:  PubMed          Journal:  Clin Rheumatol        ISSN: 0770-3198            Impact factor:   2.980


  8 in total

1.  Patient-doctor.

Authors:  M A Khan
Journal:  Ann Intern Med       Date:  2000-08-01       Impact factor: 25.391

2.  [Basal cell epithelioma and multiple fibroepithelial Pinkus' tumors in the lumbosacral region. Discussion of the precipitating role of previous radiotherapy treatment. Apropos of 4 cases].

Authors:  D Colomb; F Vittori; R Perraud
Journal:  Sem Hop       Date:  1975-11-09

3.  [Socio-professional aspects of ankylosing spondylitis in Switzerland].

Authors:  J Fellmann; R Kissling; H Baumberger
Journal:  Z Rheumatol       Date:  1996 Mar-Apr       Impact factor: 1.372

Review 4.  Ankylosing spondylitis: a dual perspective of current issues and challenges.

Authors:  Muhammad Asim Khan
Journal:  J Rheumatol Suppl       Date:  2006-09

5.  Mortality from cancer and other causes after radiotherapy for ankylosing spondylitis.

Authors:  W M Brown; R Doll
Journal:  Br Med J       Date:  1965-12-04

6.  Cancer mortality following X-ray treatment for ankylosing spondylitis.

Authors:  H A Weiss; S C Darby; R Doll
Journal:  Int J Cancer       Date:  1994-11-01       Impact factor: 7.396

Review 7.  [Swiss Bechterew's Disease Association: a patient self-help organization].

Authors:  H Baumberger
Journal:  Schweiz Rundsch Med Prax       Date:  1991-06-04

8.  Multiple basal cell carcinomas and malignant melanoma following radiotherapy for ankylosing spondylitis.

Authors:  S J Beswick; M C Garrido; A A Fryer; R C Strange; A G Smith
Journal:  Clin Exp Dermatol       Date:  2000-07       Impact factor: 3.470

  8 in total

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