Marita McCabe1, Emily You2, Gemma Tatangelo2. 1. Institute for Health and Ageing, Australian Catholic University, Melbourne, Victoria, Australia. Marita.McCabe@acu.edu.au. 2. Institute for Health and Ageing, Australian Catholic University, Melbourne, Victoria, Australia.
Abstract
PURPOSE: The number of Australians living with dementia is expected to increase from currently 332,000 to 900,000 by 2050. Around 200,000 unpaid caregivers are caring for community-dwelling people living with dementia, and therefore, supporting the caregivers' needs is of paramount importance. The aim of this systematic review was to understand the perceived needs of immediate family caregivers of community-dwelling older adults with dementia. DESIGN AND METHODS: We examined qualitative studies that reported on the self-perceived needs of partner and/or offspring caregivers who were caring for community-dwelling older adults with dementia. RESULTS: Two themes were developed from 12 studies: caregiver needs related to the management of older people with dementia and caregivers' personal needs. The first theme further included four subthemes: information and knowledge needs; activities of daily living, instrumental activities of daily living and Behavioural and Psychological Symptoms of Dementia support needs; formal care support needs; and informal care support needs. The second theme consisted of two subthemes: the need to address caregivers' physical and psychological health and the need to manage caregivers' own lives. IMPLICATIONS: The findings have important implications for the development of interventions that comprehensively address caregivers' individual needs. Caregivers' unmet needs highlight key areas for improvement in policy and service provision. The findings demonstrate the need for more rigorous qualitative studies exploring the perceived needs of partner and offspring caregivers respectively. Furthermore, examining the underlying relationships between different caregiver needs is warranted.
PURPOSE: The number of Australians living with dementia is expected to increase from currently 332,000 to 900,000 by 2050. Around 200,000 unpaid caregivers are caring for community-dwelling people living with dementia, and therefore, supporting the caregivers' needs is of paramount importance. The aim of this systematic review was to understand the perceived needs of immediate family caregivers of community-dwelling older adults with dementia. DESIGN AND METHODS: We examined qualitative studies that reported on the self-perceived needs of partner and/or offspring caregivers who were caring for community-dwelling older adults with dementia. RESULTS: Two themes were developed from 12 studies: caregiver needs related to the management of older people with dementia and caregivers' personal needs. The first theme further included four subthemes: information and knowledge needs; activities of daily living, instrumental activities of daily living and Behavioural and Psychological Symptoms of Dementia support needs; formal care support needs; and informal care support needs. The second theme consisted of two subthemes: the need to address caregivers' physical and psychological health and the need to manage caregivers' own lives. IMPLICATIONS: The findings have important implications for the development of interventions that comprehensively address caregivers' individual needs. Caregivers' unmet needs highlight key areas for improvement in policy and service provision. The findings demonstrate the need for more rigorous qualitative studies exploring the perceived needs of partner and offspring caregivers respectively. Furthermore, examining the underlying relationships between different caregiver needs is warranted.
Authors: Laura Block; Andrea Gilmore-Bykovskyi; Anna Jolliff; Shannon Mullen; Nicole E Werner Journal: Geriatr Nurs Date: 2020-07-12 Impact factor: 2.361
Authors: Mariya A Kovaleva; Elizabeth Bilsborough; Patricia C Griffiths; Joe Nocera; Melinda Higgins; Fayron Epps; Katie Kilgore; Allison Lindauer; Darby Morhardt; Raj C Shah; Kenneth Hepburn Journal: Res Nurs Health Date: 2018-02-05 Impact factor: 2.228
Authors: I Zwingmann; W Hoffmann; B Michalowsky; D Wucherer; T Eichler; S Teipel; A Dreier-Wolfgramm; I Kilimann; J R Thyrian Journal: Nervenarzt Date: 2018-05 Impact factor: 1.214
Authors: Rachel A Rutkowski; Siddarth Ponnala; Laura Younan; Dustin T Weiler; Andrea Gilmore Bykovskyi; Nicole E Werner Journal: Int J Med Inform Date: 2020-11-12 Impact factor: 4.046
Authors: Marta Badia; M Begoña Orgaz; Isabel Vicario-Molina; Eva González-Ortega; María Gómez-Vela; Alba Aza; M Antonia Martín-Delgado Journal: Health Qual Life Outcomes Date: 2021-06-30 Impact factor: 3.186
Authors: Eline E Vos; Simone R de Bruin; Allard J van der Beek; Karin I Proper Journal: Int J Environ Res Public Health Date: 2021-05-26 Impact factor: 3.390