Literature DB >> 27099777

Mobile internet service for self-management of physical activity in people with rheumatoid arthritis: evaluation of a test version.

Åsa Revenäs1, Christina H Opava2, Henrik Ahlén3, Maria Brusewitz4, Susanne Pettersson2, Pernilla Åsenlöf5.   

Abstract

OBJECTIVES: Life-long adherence to health-enhancing physical activity (PA) is a major challenge for people with rheumatoid arthritis (RA). Our aim was to evaluate the utilisation of and experiences with a RA-specific, mobile internet PA support service, 'tRAppen', developed through a co-design process.
METHODS: 28 participants with RA formed 3 web communities and tested tRAppen for 6 weeks. A mixed-method design was used to combine different types of data. Log data and questionnaire data were analysed quantitatively, while data from telephone interviews were analysed with a directed content analysis.
RESULTS: 25 of the 28 participants used tRAppen. Log data indicated that a majority of them registered their PA, sent likes and posted comments to peers, set personal goals and made exercise plans. tRAppen was rated as easy and fun to use, and fairly informative and supportive for PA, and was highly recommended for people with RA. The interview analysis resulted in the following 6 categories describing the utilisation of and experiences with tRAppen: (1) experiences in general, (2) feasibility of features, (3) value as support for PA, (4) enjoyment, (5) ideas for improvements and (6) additional factors.
CONCLUSIONS: tRAppen is the first co-designed mobile internet service developed specifically for the self-management of PA in people with RA. The results are promising and indicate that tRAppen may be useful for supporting a physically active lifestyle in a subpopulation at certain risk of poor health. It will now be revised, launched and continuously updated in an iterative process involving its future users.

Entities:  

Keywords:  Health services research; Physcial therapy; Rheumatoid Arthritis

Year:  2016        PMID: 27099777      PMCID: PMC4823585          DOI: 10.1136/rmdopen-2015-000214

Source DB:  PubMed          Journal:  RMD Open        ISSN: 2056-5933


Life-long adherence to health-enhancing physical activity (PA) is a major challenge for most people with rheumatoid arthritis (RA). To date, there is no evidence-based mobile internet service available focusing on self-management of PA adapted to the specific needs of people with RA. People with RA reported the co-designed RA-specific mobile internet service, tRAppen, to be feasible and to provide support for PA in a subpopulation at certain risk of poor health. Variations in disease activity, PA level and personal preferences were perceived as affecting the utilisation of, and experiences with, the service and, hence, highlights the importance of customising tRAppen according to individual preferences. tRAppen could complement supervised exercise provided in rheumatology care and make an evidence-based healthcare service available to more patients for use in everyday life, thus contributing to their long-term health.

Introduction

Life-long adherence to health-enhancing physical activity (PA)1–3 is recommended to prevent disability and co-morbidity in people with rheumatoid arthritis (RA). A physically active lifestyle demands self-management, which is influenced by personal, environmental and behavioural factors, and self-regulation skills.4–6 The internet has the potential to reach large populations, bring self-management interventions into people's everyday lives and be cost-effective.7 8 A large number of commercial PA mobile applications are available, but they are seldom evidence-based and are not tailored to the specific needs of people with RA.9 10 Among six identified, evidence-based, internet-accessible programmes targeting medication and disease management,11 only one, the Arthritis Self-Management Programme,12–16 includes PA tracking. Nine RA-specific recently identified mobile applications17 were primarily classified as educational, including information on the disease and the medications used to treat it. To date, there is no evidence-based mobile internet service available for people with RA to self-manage PA. User involvement is a truism in health informatics18 19 when producing viable, effective and usable internet services. Co-design is one strategy to involve users in the production of services and includes the active involvement of users of the future service throughout the development process in collaboration with researchers, clinicians and service designers.20 Co-design has been used successfully to improve healthcare services.21 22 The present project employed a co-design process to develop a mobile internet service, called tRAppen, for the self-management of PA in people with RA. The first step of the co-design process, the needs inventory phase, involved people with RA who generated and prioritised ideas on core features to include in the future service.23 Second, in a series of workshops, people with RA, researchers, a clinical physiotherapist, an e-health strategist and a representative from the patient organisation specified two essential components of the future service: peer support and self-monitoring, including goal setting, activity planning and feedback.24 The present paper aimed at reporting the results from the third step, which included the users' utilisation of and experiences with the first test version of the new service.

Methods

Design

A mixed-methods design was used25 to explore the utilisation of and experiences with tRAppen during a 6-week test period during December 2014 to January 2015. Data collection included system-generated and manually compiled log data from the test period, as well as answers to a web questionnaire and data from semistructured telephone interviews obtained after the test period. The Regional Ethical Review Board in Stockholm approved the study (D.nr. 2014/1522-31/2).

Participants

Designated contact people, including physiotherapists, an occupational therapist and a physician, recruited participants from three rheumatology clinics and one primary care clinic in three cities in central Sweden. Individuals with diagnosed RA who were ≥18 years of age, had adequate Swedish communication skills, were comfortable using the internet and had access to a mobile phone, were eligible. A sample of approximately 30 participants was needed to form three sensibly sized communities. This was considered enough to evaluate the test version in term of the utilisation of and experiences with the service. Thirty-four interested individuals received verbal information on the study. Twenty-eight individuals, who either participated in a face-to-face introductory meeting (n=24) or received individual information (n=4) to acquaint them with tRAppen and the study set-up, provided written consent and constituted the study sample (table 1). The participants formed three communities (n=7–11), one in each city.
Table 1

Baseline characteristics of the study participants (n=28*)

Gender, female/male, n (%)24/3 (89/11)
Age, years, median (min–max)52 (37–71)
Living with children, n (%)11 (41)
Education, n (%)
 Elementary school3 (11)
 High school4 (15)
 University20 (74)
Occupational status, n (%)
 Full-time or part-time work19 (70)
 Old age pension or disability pension4 (15)
 Full-time sick leave4 (15)
Years since diagnosis, n (%) (years)
 <13 (11)
 1–58 (30)
 6–104 (15)
 >1012 (44)
Other chronic conditions, n (%)9 (33)
Perceived health previous week, NRS† (0=best imaginable health, 10=worst imaginable health), median (min–max)4 (1–8)
Pain previous week, NRS† (0=no pain, 10=worst pain), median (min–max)3 (1–9)
Fatigue in the previous week, NRS† (0=no fatigue, 10=worst fatigue), median (min–max)5 (1–8)
Activity limitations previous week HAQ‡ (0=no limitations, 3=severe limitations), median (min–max)0 (0–1.5)
Exercised regularly before disease onset,§ n (%)15 (56)
Exercised with friends or in exercise groups,¶ n (%)14 (52)
Social support for physical activity,** n (%)24 (89)
Uses PA applications and/or internet services, n (%)5 (19)
Current PA ≥150 min of at least moderate intensity in the past week, IPAQ,†† n (%)10 (37)
Current aerobic exercise >30 min ≥5 days/week,‡‡ n (%)
 Precontemplation, no plans within 6 months6 (22)
 Contemplation, plans within 6 months3 (11)
 Preparation, plans within 1 month4 (15)
 Action, performed for <6 months2 (7)
 Maintenance, performed for >6 months1 (4)
 Used to, but less during previous months11 (41)
Current strength training ≥ twice/week,‡‡ n (%)
 Precontemplation, no plans within 6 months3 (11)
 Contemplation, plans within 6 months4 (15)
 Preparation, plans within 1 month1 (4)
 Action, performed for <6 months5 (19)
 Maintenance, performed for >6 months2 (7)
 Used to, but less during previous months12 (44)

*One of the 28 participants did not complete the questionnaire.

†Numerical Rating Scale.26 27

‡Health Assessment Questionnaire Disability Index.28

§‘Did you exercise regularly (≥30 min at least three times/week) before disease onset?’

¶‘Do you currently exercise with friends or in exercise groups?’

**‘Do your friends and family support your physical activity?’

††International Physical Activity Questionnaire.29

‡‡Readiness to change questionnaire30 modified to include alternative ‘used to’.

min, minimum; max, maximum; PA, physical activity.

Baseline characteristics of the study participants (n=28*) *One of the 28 participants did not complete the questionnaire. †Numerical Rating Scale.26 27 ‡Health Assessment Questionnaire Disability Index.28 §‘Did you exercise regularly (≥30 min at least three times/week) before disease onset?’ ¶‘Do you currently exercise with friends or in exercise groups?’ **‘Do your friends and family support your physical activity?’ ††International Physical Activity Questionnaire.29 ‡‡Readiness to change questionnaire30 modified to include alternative ‘used to’. min, minimum; max, maximum; PA, physical activity.

tRAppen overview

An existing, flexible online service with peer support for PA was identified as suitable for tRAppen, enabling lower costs and quicker development. To provide the features identified during previous workshops in the co-design process, the service was complemented with features for self-monitoring, including goal setting, PA planning and feedback. Thus, the tRAppen test version evaluated in the present study was a peer group self-management service to support everyday PA and consisted of two main components: (1) a small community with peers for inspiration and support, and (2) a self-monitoring component, including personal goal setting, PA planning and feedback. The aim of tRAppen is to provide support to each individual's PA behaviour and not to objectively monitor what they actually do by pedometers, accelerometers, etc. Thus, all data are self-reported. Before the test period started, each community participant was invited to a meeting to get an introduction to tRAppen and to meet with peers. The meeting started with each participant introducing himself or herself to the other. The study set-up was presented (the test period and the assessments) and the features of tRAppen were shown on a screen. How to set goals, how to register PA and what PAs to register were discussed. All participants also logged on to tRAppen through a log-in link provided by email before the meeting. The website was bookmarked for easy access. The participants were told to use the tRAppen features as described below. When accessing the tRAppen welcome screen (see online supplementary appendix 1a), photographs of every community member are shown in a dynamic order (left to right), determined by the time from past PA registration. A heart symbol for sending ‘peps’, that is, indicating encouragement that will be displayed along with the user's name, to the peer with the longest inactivity period, is provided. A speech bubble under each photograph enables easy, direct email communication. A display of the user's own long-term outcome goal, PA behavioural goal and weekly PA plan is provided. A guide with evidence-based information on the importance of PA for people with RA, recommendations for health-enhancing PA,31 32 instructions on SMART (Specific, Measurable, Acceptable, Realistic, Time set) goal setting and planning,33 34 and instructions on features is provided via a link. Another screen for registering PA, uploading images and talking to peers, that is, asking questions and sharing experiences and knowledge (see online supplementary appendix 1b), is also provided. Peers' postings of PA performances can be accessed, and comments can be provided as free text or as ‘likes’, that is, indicating support by clicking a thumbs-up icon that will be displayed along with the user's name (see online supplementary appendix 1c). A statistics screen provides feedback on the user's own PA performance as well as information on peers' performances. A dashboard with statistics on the total number of PA occasions during the past month, mean number/week, mean minutes/occasion and mean minutes/week during the same period is provided for the user and for the peer community, along with a ranking of the members based on PA performance the previous month. A feature to facilitate competition between different peer communities is also provided. A detailed PA log, a circle diagram showing the PA types performed (see online supplementary appendix 1d), and monthly awards for such aspects as best performance/improvement and best support are provided. Different types of feedback are also provided by weekly emails, generated by the system or provided manually (ÅR). Feedback includes updates with system-generated statistics on personal and peer ranks, and manually generated personal feedback on goal achievement and standardised reminders to encourage PA planning. The feedback also includes encouragement to review goals that have not been achieved. Real-time email notifications on peers' performances are provided continuously.

Data collection

The system-generated log data consisted of the frequency of likes and peps sent, comments posted, images uploaded, and PA registered. Data on the frequency of goal setting, goal changing and PA planning were manually compiled after the study period by the first author. A study-specific web questionnaire, based on the Unified Theory of Acceptance and Use of Technology,35 was used to assess the features for peer support, self-monitoring and feedback (see online supplementary appendix 2). It included participants' ratings of tRAppen in general, its feasibility and the value of its support for PA. Ratings were assigned using Likert-type items with five or six response options (‘totally agree’—‘do not agree’; or ‘to a very high extent’—‘not at all’), including the answer ‘not used/received’. The first draft of the questionnaire was reviewed by an expert group in behavioural medicine and physiotherapy. After subsequent editing, the questionnaire was tested by two of the authors (HA and PÅ), which resulted in minor refinements. The semistructured telephone interviews covered experiences with tRAppen in general and its specific features. The main questions were: What was your experience with tRAppen? What did you particularly like/dislike about tRAppen? Do you have any suggestions for improvements? Probes and follow-up questions were used to learn more about the experiences with respect to specific features. The interviews were recorded and saved electronically on an external hard drive.

Data analysis

Descriptive data are presented as frequencies (n, %) or medians (md) with ranges (minimum–maximum). The telephone interviews were transcribed and analysed with a deductive approach using directed content analysis.36 Three predefined categories based on the structure of the web questionnaire were used: (1) experiences with tRAppen in general, (2) feasibility of features and (3) value of features as support for PA. Two subcategories for each of these three categories were created to reflect positive experiences and those that were less satisfactory. Meaning units were initially identified and sorted into these two subcategories by Atlas.ti software. Operational definitions of categories, including additional categories that emerged during analysis and subcategories, were refined during the coding process. Meaning units were compared to assess similarities and differences in content, and similar meaning units were assigned a unifying code. The first four interviews were analysed separately by two authors (ÅR and SP) to ensure credibility. Disagreements in coding and definition of the categories and subcategories were discussed until consensus was reached on how to interpret the meaning units, and define the categories and subcategories. The same procedure was repeated after coding half of the interviews. The remaining interviews were coded by ÅR alone. Next, tables were developed to present the link between the codes, subcategories and categories.

Results

Twenty-five of the 28 participants used tRAppen, 2 logged on but did not use it and 1 withdrew from the study for personal reasons. Log data were available for 25 participants and indicated that the majority of participants registered their PA, sent likes and posted comments (table 2). Twenty-four participants set goals and 21 made exercise plans. Six participants changed their goals once or twice during the test period.
Table 2

Use of tRAppen features among 25 participants during the 6-week test period

LikesPepsCommentsImage uploadsPA registration
Participants using features > once, n (%)22 (88)11 (44)20 (80)14 (56)24 (96)
Total use of features (all participants), n12241612244596
Individual use of features, md (min–max)36 (0–159)0 (0–3)2 (0–33)1 (0–9)22 (0–45)

md, median; min, minimum; max, maximum; PA, physical activity.

Use of tRAppen features among 25 participants during the 6-week test period md, median; min, minimum; max, maximum; PA, physical activity. The web questionnaire was completed by 24 participants, and 1 only answered the questions regarding the experiences of tRAppen in general. All the other 23 participants answered all the questions included in the questionnaire. Eighteen (78%) participants primarily accessed tRAppen via a mobile phone, 3 (13%) via a computer and 2 (9%) via a tablet. tRAppen was generally rated as easy and fun to use, and as providing sufficient PA support and information, and all participants reported that they would recommend it to other people with RA. More than 60% claimed that they would continue to use tRAppen (figure 1). tRAppen features were generally rated as easy to understand and use, but almost 20% of participants were uncertain regarding the feasibility of goal setting and PA planning (figure 2). The highest-ranked support feature was planning and registration of PA, while talking to peers was ranked as the least helpful support feature (figure 3).
Figure 1

Participants’ (n=24) rating of tRAppen in general. PA, physical activity.

Figure 2

Participants’ (n=23) ratings of the feasibility of individual tRAppen features. PA, physical activity.

Figure 3

Participants’ (n=23) ratings of individual tRAppen features with respect to PA support. PA, physical activity.

Participants’ (n=24) rating of tRAppen in general. PA, physical activity. Participants’ (n=23) ratings of the feasibility of individual tRAppen features. PA, physical activity. Participants’ (n=23) ratings of individual tRAppen features with respect to PA support. PA, physical activity. Twenty-six telephone interviews were conducted. The results of the analysis are presented in the following six categories, three of which were predefined, namely, (1) experiences with tRAppen in general, (2) feasibility of features and (3) value of features as support for PA, and three of which emerged during analysis, namely, (4) enjoyment, (5) ideas for improvements and (6) additional factors important for the utilisation and experience (table 3).
Table 3

Overview of the results from the qualitative analysis of the telephone interviews on participants' experiences of tRAppen presented as categories, subcategories and codes

CategorySubcategoryCodes
tRAppen in generalPositiveFun to useMotivates PAHelps to establish healthy PA routinesNice layoutEasy to useNavigation easyA great tool for people recently diagnosed with RA
Less satisfactoryLog on difficultScreen too small on a mobile phoneLayout and navigation troublesome and difficult to understandDoes not add anything to disease management or PA behaviourNo fun, only a burden
Feasibility of featuresPeer support positiveTechnically easy to understandEnjoy peers' postings of PA performances
Peer support less satisfactoryDifficult to understand how to use pep buttonDid not find the feature to talk to one peer onlyDifficult to know how to upload images
Self-monitoring positiveGoal-setting feature easy to understand and has a clear structureEasy to register performed PAClear instructions on how to register PA
Self-monitoring less satisfactoryFormulating goals and plans difficultUnclear instructions on how to formulate goals and plansToo little interaction with goals and plansPlanning when and how to exercise difficult due to disease variationsChanging weekly PA plan troublesomeKnowing when to change PA plan unclearRegistration of PA not easy to accessRegistration of PA troublesomeDefinition of PA is unclear
Feedback positiveStatistics provide clear overview of performances
Feedback less satisfactoryInterpreting feedback on goal achievement difficultUnderstanding statistics difficult
Features as support for PAPeer support positiveSeeing peers’ postings of PA performances motivatesSeeing peers’ postings of PA performances inspiresSeeing peers’ postings of PA performances improves self-efficacySharing PA performances with peers is encouraging
Peer support less satisfactorySeeing peers’ performances is not encouragingDoes not provide support or encouragement
Self-monitoring positiveReflection on personal goals is encouragingRegistering everyday PA, not only exercise, is encouragingRegistering PA motivates performance
Self-monitoring less satisfactorySeeing personal goals is not encouragingRegistration of PA is not encouraging
Feedback positiveSeeing results of performance is encouragingGetting feedback on goal achievement motivates, both when achieving goals or notRanking of peers according to PA performances is encouraging, especially during active periods
Feedback less satisfactorySeeing the statistics is not encouragingGetting email on failed goal achievement may be discouragingRanking of peers according to PA performance may be discouraging
EnjoymentPeer support positiveBelonging to a heterogeneous community goodBelonging to a community gives feeling of fellowshipReading personal comments funSeeing images nice
Peer support less satisfactoryNon-personal relationshipsDoes not provide feeling of supportSeeing peers’ postings during less active periods stressful, tearful and difficultSeeing that peers are more active than me gives feeling of disloyaltySeeing peers’ performances makes you exercise more than what is healthy for youSeeing that peers are inactive is not fun
Self-monitoring positiveReflecting on personal goals and weekly plans beneficial and goodGetting reminders to make weekly plan greatRegistering PA important in itselfFollow-up results great
Self-monitoring less satisfactoryWeekly PA planning stressfulNot fulfilling weekly plan makes me angry and gives feeling of defeatRegistering PA is boringThe registration becomes a mishmash
Feedback positiveWatching statistics screen is fun and nice, especially during active periodsGetting email notifications on peers’ performances is funReceiving instructions on how to review personal goals is helpfulReceiving feedback on goal achievement is important and goodTo be high on the peer ranking list is fun and great
Feedback less satisfactoryGetting emails on goal achievement is deprecatory and unnecessaryWeekly updates too artificial and briskSeeing statistics is meaningless, especially during periods with less PASeeing peers’ ranking is frustrating and joyless if less physically active
Ideas for improvementsGeneralDevelop a web service to manage healthy living, including PA, diet and disease managementProvide information for inspiration; weekly tipsUse more coloursProvide choice to use individually or in a communityProvide option for healthcare provider to access my tRAppen dataProvide longer face-to-face introduction with all peersCreate communities according to different parameters or within already-existing communitiesProvide information about tRAppen at the patient organisation and healthcare facilities
Peer supportInclude interactive meetings on the webInclude face-to-face meetingsInclude a personal profile to provide more information on peers on tRAppen
Self-monitoringInclude more coaching in goal settingProvide reminders on planned activitiesProvide reminders when many days have passed since the last registrationProvide a calendar to mark the days of planned PAProvide a menu to choose types of PADesign simpler PA registration: only register when PA has been performedProvide encouragements to review goals and plans
FeedbackInclude pop-up messages instead of email notificationsProvide more personalised and honest feedbackProvide easier access to the PA logInclude automatic measure of energy expenditureDelete the ranking of peers and competition between communitiesInclude a handicap system for a more equal rankingDisplay the relationship between performed PA and health
Additional factors important for the utilisation and experienceProject set-upInsufficient test period decreased possibility to acquaint oneself with tRAppenParticipating in introductory meeting improved interaction between peers
Personal experiences and life situationBeing accustomed to ‘new’ technology and social media enhanced use of tRAppenAlready having exercise routines decreased need for tRAppenAlready using other PA apps decreased need for tRAppenFlares or comorbidity decreased utilisation of tRAppenRetirement pension or sick leave increased utilisation of tRAppenChildren living at home reduced time spent utilising tRAppenOwning a dog facilitated PA and utilisation of tRAppenNot identifying yourself with RA makes tRAppen less valuable

PA, physical activity; RA, rheumatoid arthritis.

Overview of the results from the qualitative analysis of the telephone interviews on participants' experiences of tRAppen presented as categories, subcategories and codes PA, physical activity; RA, rheumatoid arthritis.

Discussion

The overall results demonstrated that the majority of the participants found tRAppen easy and fun to use, and believed it would support a physically active lifestyle. The outcome of the qualitative analysis, however, indicated a rather complex picture with a large variety of preferences for and against different tRAppen features, some of which were clearly RA-specific and related to variations in the physical as well as mental state. The observation of peers' performances may improve self-efficacy for engagement in PA, which is a powerful method of behavioural learning.4 The peer community provided by tRAppen thus constituted an important PA support group for people with RA, as demonstrated by our results. However, the qualitative statements also revealed that the need for sharing and reading about peers' performances may vary with PA levels and personal preferences. Some participants wanted to share more, whereas others wished to stay somewhat anonymous, and still others preferred to use tRAppen entirely without peer support. Previous research on people with cancer revealed similar views.37 The informants wished to share personal information, but actual sharing varied with personal characteristics and type of information shared (clinical or private). The benefits of actively sharing personal information with others must be perceived as higher than the risk of disclosing it. Thus, tRAppen may have an advantage over commercial PA mobile applications that provide social interaction38 39 because sharing information within a small community of people with RA is presumably valued more highly than sharing within a broader community. Nevertheless, the tRAppen peer support features may need to be redesigned to enable more flexible use, and criteria for peer community assignments could be further developed. Both theory and evidence support the importance of personal goal setting for PA, planning, registration and feedback, on performance for the development of self-regulation skills to initiate and maintain PA.5 40 Most commercial PA mobile applications do not include PA planning and goal setting,38 39 41 and the need for self-monitoring features seemed to vary among participants in the present study. One reason for the varying needs was variations in disease activity and PA levels, and another reason was perceived obstacles to setting realistic goals and plans in general, and using the tRAppen features for this aim specifically. Furthermore, most participants did not revise goals according to variations in disease activity and well-being, although this feature was identified as important in the preceding requirement-specification phase of tRAppen development.24 Different obstacles to the registration and planning of PA have previously been described by people with RA participating in face-to-face PA support groups42 and do not seem to be specific to internet support of PA in general or to tRAppen in particular. Nevertheless, this is an area for further exploration and improvement when designing PA support interventions targeting people with RA. Another area to explore further is the methods of encouraging feedback. Our results indicated that the participants reacted differently depending on disease activity, PA levels and personal preferences. Because theory and evidence suggest that features supporting self-regulation skills should be included in tRAppen,5 40 it is a challenge to make them adjustable to guide goal setting and PA planning according to individual preferences, and to provide optimal feedback to each user. Some methodological issues should be taken into consideration when interpreting the present results. The mixed-methods design that provided detailed and complementary data is a true strength that enabled full understanding of the utilisation of and experiences with the tRAppen test version and will also be valuable in the process of further improving it. There are clearly some limitations with respect to the generalisability of our results because our participants had been regularly physically active before disease onset, and most of them were well educated, worked and scored low on the Health Assessment Questionnaire Disability Index (HAQ). Thus, our results may be generalised to this subpopulation only, but they may also be transferable to similar populations with other chronic diseases. Future studies of tRAppen should include people with lower education, to evaluate whether it is feasible and useful for them too. The limited sample and fairly short test period may also be considered limitations of our study. However, as this was the first evaluation of tRAppen, which aimed to identify necessary improvements of its features according to participants' utilisation and experiences in a real-life setting, the sample and the test period could be considered sufficient. Systems are in place to monitor and report on long-term use once tRAppen is launched. One limitation of the tRAppen test version evaluated in the present study may be that the specific features developed to satisfy requests from the requirement-specification phase,24 that is, for goal setting and PA planning, were less developed and tested than the peer support feature already included in the existing generic PA support service used as the basis of tRAppen. Furthermore, it may be considered a limitation that tRAppen contains self-reported PA only. However, while self-report is adequate to support individual PA behaviour change, future research on tRAppen could, depending on the research questions, be complemented with objective measures of PA and/or health outcome data. The most important and unique strength in the development of tRAppen is the co-design process.23 24 43 To our knowledge, such a thorough process has not previously been applied nor scientifically evaluated in the development of any e-health service within the field of rheumatology. Thus, our co-design process may serve as a model for the development of future e-health services in this field at a time when many such services are in development.17 The involvement of people with RA throughout the development process improve the credibility of tRAppen and the likelihood that it will support a physically active lifestyle in this subpopulation. The next step in the development will be to revise some of the features based on the current results, which provide clear descriptions of preferences but also highlight the complexity of providing a self-management service for a heterogeneous group, such as the RA population. The revised version will then be launched and continuously improved in an iterative process involving future tRAppen users. In conclusion, the present results are promising and indicate that tRAppen may be useful for supporting a physically active lifestyle in a subpopulation at certain risk of poor health. tRAppen could complement supervised exercise provided in rheumatology care and make an evidence-based healthcare service available to more patients for use in everyday life, thus contributing to their long-term health. Because variations in disease activity, PA level and personal preferences seemed to affect the utilisation of and experiences with the features, the ability to customise tRAppen to individual preferences would be helpful and should be considered in future versions. Further research is needed to evaluate the best target users for tRAppen and its effects on PA behaviour and health.
  34 in total

1.  Dissemination of a community-based physical activity project: the case of 10,000 steps.

Authors:  W Kerry Mummery; Grant Schofield; Anetta Hinchliffe; Kelly Joyner; Wendy Brown
Journal:  J Sci Med Sport       Date:  2006-08-04       Impact factor: 4.319

Review 2.  Benefits of and barriers to involving users in medical device technology development and evaluation.

Authors:  Syed Ghulam Sarwar Shah; Ian Robinson
Journal:  Int J Technol Assess Health Care       Date:  2007       Impact factor: 2.188

3.  Physical activity and public health in older adults: recommendation from the American College of Sports Medicine and the American Heart Association.

Authors:  Miriam E Nelson; W Jack Rejeski; Steven N Blair; Pamela W Duncan; James O Judge; Abby C King; Carol A Macera; Carmen Castaneda-Sceppa
Journal:  Circulation       Date:  2007-08-01       Impact factor: 29.690

Review 4.  Effective techniques in healthy eating and physical activity interventions: a meta-regression.

Authors:  Susan Michie; Charles Abraham; Craig Whittington; John McAteer; Sunjai Gupta
Journal:  Health Psychol       Date:  2009-11       Impact factor: 4.267

5.  Social cognitive theory: an agentic perspective.

Authors:  A Bandura
Journal:  Annu Rev Psychol       Date:  2001       Impact factor: 24.137

6.  Physical activity and public health: updated recommendation for adults from the American College of Sports Medicine and the American Heart Association.

Authors:  William L Haskell; I-Min Lee; Russell R Pate; Kenneth E Powell; Steven N Blair; Barry A Franklin; Caroline A Macera; Gregory W Heath; Paul D Thompson; Adrian Bauman
Journal:  Med Sci Sports Exerc       Date:  2007-08       Impact factor: 5.411

Review 7.  Dynamic exercise programs (aerobic capacity and/or muscle strength training) in patients with rheumatoid arthritis.

Authors:  Emalie Hurkmans; Florus J van der Giesen; Thea Pm Vliet Vlieland; Jan Schoones; E C H M Van den Ende
Journal:  Cochrane Database Syst Rev       Date:  2009-10-07

8.  "A gift from heaven" or "This was not for me". A mixed methods approach to describe experiences of participation in an outsourced physical activity program for persons with rheumatoid arthritis.

Authors:  Ingrid Demmelmaier; Åsa Lindkvist; Birgitta Nordgren; Christina H Opava
Journal:  Clin Rheumatol       Date:  2014-06-20       Impact factor: 2.980

9.  Individualised aerobic and resistance exercise training improves cardiorespiratory fitness and reduces cardiovascular risk in patients with rheumatoid arthritis.

Authors:  Antonios Stavropoulos-Kalinoglou; Giorgos S Metsios; Jet J J C S Veldhuijzen van Zanten; Peter Nightingale; George D Kitas; Yiannis Koutedakis
Journal:  Ann Rheum Dis       Date:  2012-11-15       Impact factor: 19.103

10.  A Mobile Internet Service for Self-Management of Physical Activity in People With Rheumatoid Arthritis: Challenges in Advancing the Co-Design Process During the Requirements Specification Phase.

Authors:  Åsa Revenäs; Cathrin Martin; Christina H Opava; Maria Brusewitz; Christina Keller; Pernilla Åsenlöf
Journal:  JMIR Res Protoc       Date:  2015-09-17
View more
  9 in total

1.  Neck-specific exercises with internet-based support compared to neck-specific exercises at a physiotherapy clinic for chronic whiplash-associated disorders: study protocol of a randomized controlled multicentre trial.

Authors:  Anneli Peolsson; Maria Landén Ludvigsson; Gunnel Peterson
Journal:  BMC Musculoskelet Disord       Date:  2017-12-12       Impact factor: 2.362

2.  Multidisciplinary Management of Spondyloarthritis-Related Immune-Mediated Inflammatory Disease.

Authors:  Fernando Rizzello; Ignazio Olivieri; Alessandro Armuzzi; Fabio Ayala; Vincenzo Bettoli; Luca Bianchi; Luca Cimino; Antonio Costanzo; Antonio Cristaudo; Salvatore D'Angelo; Marco Daperno; Anna Chiara Fostini; Mauro Galeazzi; Michele Gilio; Paolo Gionchetti; Paolo Gisondi; Ennio Lubrano; Antonio Marchesoni; Annamaria Offidani; Ambrogio Orlando; Daniela Pugliese; Carlo Salvarani; Raffaele Scarpa; Maurizio Vecchi; Giampiero Girolomoni
Journal:  Adv Ther       Date:  2018-03-07       Impact factor: 3.845

3.  Physiotherapy after anterior cervical spine surgery for cervical disc disease: study protocol of a prospective randomised study to compare internet-based neck-specific exercise with prescribed physical activity.

Authors:  Anneli Peolsson; Gunnel Peterson; Anna Hermansen; Maria Landén Ludvigsson; Åsa Dedering; Håkan Löfgren
Journal:  BMJ Open       Date:  2019-02-19       Impact factor: 2.692

4.  Exercise and lifestyle physical activity recommendations for people with multiple sclerosis throughout the disease course.

Authors:  Rosalind Kalb; Theodore R Brown; Susan Coote; Kathleen Costello; Ulrik Dalgas; Eric Garmon; Barbara Giesser; June Halper; Herb Karpatkin; Jennifer Keller; Alexander V Ng; Lara A Pilutti; Amanda Rohrig; Paul Van Asch; Kathleen Zackowski; Robert W Motl
Journal:  Mult Scler       Date:  2020-04-23       Impact factor: 6.312

5.  Effectiveness of web-based and mobile health interventions designed to enhance adherence to physical activity for people with inflammatory arthritis: a systematic review.

Authors:  Mandeep Sekhon; Claire White; Emma Godfrey; Aliya Amirova; Åsa Revenäs; Sinead King; Joshua Pedro; Jamaal Quailey; Lindsay Bearne
Journal:  Rheumatol Adv Pract       Date:  2021-03-03

6.  Development and real-life use assessment of a self-management smartphone application for patients with inflammatory arthritis. A user-centred step-by-step approach.

Authors:  Catherine Beauvais; Thao Pham; Guillaume Montagu; Sophie Gleizes; Francesco Madrisotti; Alexandre Lafourcade; Céline Vidal; Guillaume Dervin; Pauline Baudard; Sandra Desouches; Florence Tubach; Julian Le Calvez; Marie de Quatrebarbes; Delphine Lafarge; Laurent Grange; Françoise Alliot-Launois; Henri Jeantet; Marie Antignac; Sonia Tropé; Ludovic Besset; Jérémie Sellam
Journal:  PLoS One       Date:  2022-09-15       Impact factor: 3.752

7.  Self-Efficacy and the Role of Non-Pharmacologic Treatment Strategies to Improve Pain and Affect in Arthritis.

Authors:  Dana DiRenzo; Patrick Finan
Journal:  Curr Treatm Opt Rheumatol       Date:  2019-04-30

8.  The effect of interactive digital interventions on physical activity in people with inflammatory arthritis: a systematic review.

Authors:  Alison J Griffiths; Claire M White; Peter K Thain; Lindsay M Bearne
Journal:  Rheumatol Int       Date:  2018-03-19       Impact factor: 2.631

9.  The PICASO cloud platform for improved holistic care in rheumatoid arthritis treatment-experiences of patients and clinicians.

Authors:  Jutta G Richter; Gamal Chehab; Catarina Schwartz; Elisabeth Ricken; Monika Tomczak; Hasan Acar; Henrike Gappa; Carlos A Velasco; Peter Rosengren; Armanas Povilionis; Matthias Schneider; Jesper Thestrup
Journal:  Arthritis Res Ther       Date:  2021-05-27       Impact factor: 5.156

  9 in total

北京卡尤迪生物科技股份有限公司 © 2022-2023.