Gabriella DiMarco1, Dane Hill1, Steven R Feldman2. 1. Center for Dermatology Research, Department of Dermatology, Wake Forest School of Medicine, Winston-Salem, North Carolina. 2. Center for Dermatology Research, Department of Dermatology, Wake Forest School of Medicine, Winston-Salem, North Carolina; Department of Pathology, Wake Forest School of Medicine, Winston-Salem, North Carolina; Department of Public Health Sciences, Wake Forest School of Medicine, Winston-Salem, North Carolina. Electronic address: sfeldman@wakehealth.edu.
Abstract
BACKGROUND: Patient registries are datasets containing information on patients with a particular disease or patients who are undergoing a specific treatment. OBJECTIVE: Our objective was to search for and catalog the types of registries being used in dermatology and investigate their characteristics and uses. METHODS: We searched Google, the Registry of Patient Registries, Orphanet, and ClinicalTrials.gov to compile a list of dermatology disease registries. We also conducted a literature review on the uses of dermatology registries using PubMed. RESULTS: We identified 48 dermatology patient registries, with 23 distinct diseases represented. We also identified 11 registries used for postmarketing surveillance of skin disease. LIMITATIONS: Our search was limited to registries in English. CONCLUSIONS: Registries are commonly used for the study of rare dermatologic diseases and for postsurveillance monitoring of systemic therapies in more common dermatologic diseases, such as psoriasis.
BACKGROUND:Patient registries are datasets containing information on patients with a particular disease or patients who are undergoing a specific treatment. OBJECTIVE: Our objective was to search for and catalog the types of registries being used in dermatology and investigate their characteristics and uses. METHODS: We searched Google, the Registry of Patient Registries, Orphanet, and ClinicalTrials.gov to compile a list of dermatology disease registries. We also conducted a literature review on the uses of dermatology registries using PubMed. RESULTS: We identified 48 dermatology patient registries, with 23 distinct diseases represented. We also identified 11 registries used for postmarketing surveillance of skin disease. LIMITATIONS: Our search was limited to registries in English. CONCLUSIONS: Registries are commonly used for the study of rare dermatologic diseases and for postsurveillance monitoring of systemic therapies in more common dermatologic diseases, such as psoriasis.
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