Lauren F Quast1, Elise M Turner2, Mark D McCurdy2, Matthew C Hocking1,3. 1. a Division of Oncology, The Children's Hospital of Philadelphia , Philadelphia , PA , USA. 2. b Department of Psychology , Drexel University , Philadelphia , PA , USA. 3. c Division of Psychiatry, Perelman School of Medicine at the University of Pennsylvania , Philadelphia , PA , USA.
Abstract
OBJECTIVE: This study examines theoretical covariates of health-related quality of life (HRQL) in parents of pediatric brain tumor survivors (PBTS) following completion of tumor-directed therapy. METHODS: Fifty PBTS (ages 6-16) completed measures of neurocognitive functioning and their parents completed measures of family, survivor, and parent functioning. RESULTS: Caregiving demand, caregiver competence, and coping/supportive factors were associated with parental physical and psychosocial HRQL, when controlling for significant background and child characteristics. CONCLUSION: Study findings can inform interventions to strengthen caregiver competence and family functioning following the completion of treatment, which may improve both parent and survivor outcomes.
OBJECTIVE: This study examines theoretical covariates of health-related quality of life (HRQL) in parents of pediatric brain tumor survivors (PBTS) following completion of tumor-directed therapy. METHODS: Fifty PBTS (ages 6-16) completed measures of neurocognitive functioning and their parents completed measures of family, survivor, and parent functioning. RESULTS: Caregiving demand, caregiver competence, and coping/supportive factors were associated with parental physical and psychosocial HRQL, when controlling for significant background and child characteristics. CONCLUSION: Study findings can inform interventions to strengthen caregiver competence and family functioning following the completion of treatment, which may improve both parent and survivor outcomes.
Entities:
Keywords:
cancer; caregiving; family functioning; oncology; parents; quality of life
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