Literature DB >> 27045129

Report of the National Heart, Lung, and Blood Institute Working Group: An Integrated Network for Congenital Heart Disease Research.

Sara K Pasquali1, Jeffrey P Jacobs2, Gregory K Farber2, David Bertoch2, Elizabeth D Blume2, Kristin M Burns2, Robert Campbell2, Anthony C Chang2, Wendy K Chung2, Tiffany Riehle-Colarusso2, Lesley H Curtis2, Christopher B Forrest2, William J Gaynor2, Michael G Gaies2, Alan S Go2, Paul Henchey2, Gerard R Martin2, Gail Pearson2, Victoria L Pemberton2, Steven M Schwartz2, Robert Vincent2, Jonathan R Kaltman2.   

Abstract

The National Heart, Lung, and Blood Institute convened a working group in January 2015 to explore issues related to an integrated data network for congenital heart disease research. The overall goal was to develop a common vision for how the rapidly increasing volumes of data captured across numerous sources can be managed, integrated, and analyzed to improve care and outcomes. This report summarizes the current landscape of congenital heart disease data, data integration methodologies used across other fields, key considerations for data integration models in congenital heart disease, and the short- and long-term vision and recommendations made by the working group.
© 2016 American Heart Association, Inc.

Entities:  

Keywords:  database [publication type]; heart diseases; outcome assessment, health care

Mesh：

Year:  2016        PMID： 27045129      PMCID： PMC4932890          DOI： 10.1161/CIRCULATIONAHA.115.019506

Source DB:  PubMed          Journal:  Circulation        ISSN： 0009-7322            Impact factor:   29.690


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