Literature DB >> 27044953

Understanding An Informed Public's Views On The Role Of Evidence In Making Health Care Decisions.

Kristin L Carman1, Maureen Maurer2, Rikki Mangrum3, Manshu Yang4, Marjorie Ginsburg5, Shoshanna Sofaer6, Marthe R Gold7, Ela Pathak-Sen8, Dierdre Gilmore9, Jennifer Richmond10, Joanna Siegel11.   

Abstract

Policy makers and practitioners increasingly believe that medical evidence plays a critical role in improving care and health outcomes and lowering costs. However, public understanding of the role of evidence-based care may be different. Public deliberation is a process that convenes diverse citizens and has them learn about and consider ethical or values-based dilemmas and weigh alternative views. The Community Forum Deliberative Methods Demonstration project, sponsored by the Agency for Healthcare Research and Quality, obtained informed public views on the role of evidence in health care decisions through seventy-six deliberative groups involving 907 people overall, in the period August-November 2012. Although participants perceived evidence as being essential to high-quality care, they also believed that personal choice or clinical judgment could trump evidence. They viewed doctors as central figures in discussing evidence with patients and key arbiters of whether to follow evidence in individual cases. They found evidence of harm to individuals or the community to be more compelling than evidence of effectiveness. These findings indicate that increased public understanding of evidence can play an important role in advancing evidence-based care by helping create policies that better reflect the needs and values of the public. Project HOPE—The People-to-People Health Foundation, Inc.

Entities:  

Keywords:  Consumer Issues; Ethical Issues; Evidence-Based Medicine; Legal/Regulatory Issues; Public Opinion

Mesh:

Year:  2016        PMID: 27044953     DOI: 10.1377/hlthaff.2015.1112

Source DB:  PubMed          Journal:  Health Aff (Millwood)        ISSN: 0278-2715            Impact factor:   6.301


  10 in total

1.  An informed public's views on reducing antibiotic overuse.

Authors:  Jennifer Richmond; Rikki Mangrum; Grace Wang; Maureen Maurer; Shoshanna Sofaer; Manshu Yang; Kristin L Carman
Journal:  Health Serv Res       Date:  2019-06-06       Impact factor: 3.402

2.  Does educating patients about the Early Palliative Care Study increase preferences for outpatient palliative cancer care? Findings from Project EMPOWER.

Authors:  Michael Hoerger; Laura M Perry; Robert Gramling; Ronald M Epstein; Paul R Duberstein
Journal:  Health Psychol       Date:  2017-03-09       Impact factor: 4.267

3.  Using Democratic Deliberation to Engage Veterans in Complex Policy Making for the Veterans Health Administration.

Authors:  Tanner J Caverly; Claire H Robinson; Sarah L Krein; Jane Forman; Martha Quinn; Sarah E Skurla; Laura Damschroder
Journal:  Fed Pract       Date:  2020-01

4.  Public Mistrust of the U.S. Health Care System's Profit Motives: Mixed-Methods Results from a Randomized Controlled Trial.

Authors:  Jennifer Richmond; Wizdom Powell; Maureen Maurer; Rikki Mangrum; Marthe R Gold; Ela Pathak-Sen; Manshu Yang; Kristin L Carman
Journal:  J Gen Intern Med       Date:  2017-09-05       Impact factor: 5.128

5.  Recent controversies on comparative effectiveness research investigations: Challenges, opportunities, and pitfalls.

Authors:  Haresh Kirpalani; William E Truog; Carl T D'Angio; Michael Cotten
Journal:  Semin Perinatol       Date:  2016-08-08       Impact factor: 3.300

6.  Comparative analysis of stakeholder experiences with an online approach to prioritizing patient-centered research topics.

Authors:  Dmitry Khodyakov; Sean Grant; Daniella Meeker; Marika Booth; Nathaly Pacheco-Santivanez; Katherine K Kim
Journal:  J Am Med Inform Assoc       Date:  2017-05-01       Impact factor: 4.497

7.  Innovative curriculum for second-year Harvard-MIT medical students: practicing communication skills with volunteer patients giving immediate feedback.

Authors:  Nadaa B Ali; Stephen R Pelletier; Helen M Shields
Journal:  Adv Med Educ Pract       Date:  2017-05-19

8.  Lessons Learned from Developing Plain Language Summaries of Research Studies.

Authors:  Maureen Maurer; Joanna E Siegel; Kirsten B Firminger; Jane Lowers; Tania Dutta; Jane S Chang
Journal:  Health Lit Res Pract       Date:  2021-06-22

9.  A Novel Stakeholder Engagement Approach for Patient-centered Outcomes Research.

Authors:  Katherine K Kim; Dmitry Khodyakov; Kate Marie; Howard Taras; Daniella Meeker; Hugo O Campos; Lucila Ohno-Machado
Journal:  Med Care       Date:  2018-10       Impact factor: 2.983

Review 10.  Integrating citizen engagement into evidence-informed health policy-making in eastern Europe and central Asia: scoping study and future research priorities.

Authors:  Bobby Macaulay; Marge Reinap; Michael G Wilson; Tanja Kuchenmüller
Journal:  Health Res Policy Syst       Date:  2022-01-18
  10 in total

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