Literature DB >> 27038243

Definition, aims, and implementation of GA(2) LEN Urticaria Centers of Reference and Excellence.

M Maurer1, M Metz1, C Bindslev-Jensen2, J Bousquet3,4,5, G W Canonica6, M K Church1, K V Godse7, C E Grattan8, M Hide9, E Kocatürk10, M Magerl1, M Makris11, R Meshkova12, S S Saini13, G Sussman14, E Toubi15, Z Zhao16, T Zuberbier1, A Gimenez-Arnau17.   

Abstract

BACKGROUND: GA²LEN, the Global Allergy and Asthma European Network, has recently launched a program for the development, interaction, and accreditation of centers of reference and excellence in special areas of allergy embedded in its overall quality management of allergy centers of excellence. The first area chosen is urticaria. Urticaria is a common and debilitating condition and can be a challenge for both patients and treating physicians, especially when chronic. Centers of reference and excellence in urticaria (UCAREs) can help to improve the management of hard-to-treat conditions such as urticaria. AIMS: Here, we describe the aims, the requirements and deliverables, the application process, and the audit and accreditation protocol for GA²LEN UCAREs.
RESULTS: The main aims of GA²LEN UCAREs are to provide excellence in urticaria management, to increase the knowledge of urticaria by research and education, and to promote the awareness of urticaria by advocacy activities. To become a certified GA²LEN UCARE, urticaria centers have to apply and fulfill 32 requirements, defined by specific deliverables that are assessed during an audit visit. DISCUSSION AND
CONCLUSION: The GA²LEN UCARE program will result in a strong network of urticaria specialists, promote urticaria research, and harmonize and improve urticaria management globally.
© 2016 John Wiley & Sons A/S. Published by John Wiley & Sons Ltd.

Entities:  

Keywords:  angioedema; center; excellence; management; urticaria

Mesh:

Year:  2016        PMID: 27038243     DOI: 10.1111/all.12901

Source DB:  PubMed          Journal:  Allergy        ISSN: 0105-4538            Impact factor:   13.146


  22 in total

1.  Urticaria from the Neurodermatological Perspective: A Temporal Analysis of Urticaria and Cognition.

Authors:  Tagka A; George I Lambrou; Aikaterini Kyritsi; Styliani A Geronikolou; Electra Nikolaidou; Alexandra Katsarou; Argyro Chatziioannou; Alexandros Stratigos; Dimitris Rigopoulos
Journal:  Adv Exp Med Biol       Date:  2021       Impact factor: 2.622

Review 2.  Urticaria.

Authors:  Pavel Kolkhir; Ana M Giménez-Arnau; Kanokvalai Kulthanan; Jonny Peter; Martin Metz; Marcus Maurer
Journal:  Nat Rev Dis Primers       Date:  2022-09-15       Impact factor: 65.038

3.  Chronic urticaria: profile from a reference center.

Authors:  Ana Carolina Miranda Carvalho Ferreira Fernandes de Souza; Sérgio D Dortas Junior; Guilherme Gomes Azizi; Alfeu Tavares França; Omar Lupi; Solange O R Valle
Journal:  An Bras Dermatol       Date:  2022-06-12       Impact factor: 2.113

4.  Adrenaline autoinjector is under-prescribed in typical cold urticaria patients living in tropical climate countries.

Authors:  Mojca Bizjak; Mitja Košnik; Dejan Dinevski; Simon Francis Thomsen; Daria Fomina; Elena Borzova; Kanokvalai Kulthanan; Raisa Meshkova; FernandoM Aarestrup; Dalia Melina Ahsan; Mona Al-Ahmad; Sabine Altrichter; Andrea Bauer; Maxi Brockstädt; Célia Costa; Semra Demir; Roberta Fachini Criado; Luis Felipe Ensina; Asli Gelincik; Ana Maria Giménez-Arnau; Margarida Gonçalo; Maia Gotua; Jesper Grønlund Holm; Naoko Inomata; Alicja Kasperska-Zajac; Maryam Khoshkhui; Aliya Klyucharova; Emek Kocatürk; Rongbiao Lu; Michael Makris; Natalya Maltseva; Maria Pasali; Marisa Paulino; David Pesqué; Jonny Peter; German Dario Ramón; Carla Ritchie; Solange Oliveira Rodrigues Valle; Michael Rudenko; Agnieszka Sikora; Nicola Wagner; Paraskevi Xepapadaki; Xiaoyang Xue; Zuotao Zhao; Dorothea Terhorst-Molawi; Marcus Maurer
Journal:  Qatar Med J       Date:  2022-03-24

Review 5.  Digital transformation of health and care to sustain Planetary Health: The MASK proof-of-concept for airway diseases-POLLAR symposium under the auspices of Finland's Presidency of the EU, 2019 and MACVIA-France, Global Alliance against Chronic Respiratory Diseases (GARD, WH0) demonstration project, Reference Site Collaborative Network of the European Innovation Partnership on Active and Healthy Ageing.

Authors:  Jean Bousquet; Josep M Anto; Tari Haahtela; Pekka Jousilahti; Marina Erhola; Xavier Basagaña; Wienczyslawa Czarlewski; Mikaëla Odemyr; Susanna Palkonen; Mikael Sofiev; César Velasco; Anna Bedbrook; Rodrigo Delgado; Rostislav Kouznetsov; Mika Mäkelä; Yuliia Palamarchuk; Kimmo Saarinen; Erja Tommila; Erkka Valovirta; Tuula Vasankari; Torsten Zuberbier; Isabella Annesi-Maesano; Samuel Benveniste; Eve Mathieu-Dupas; Jean-Louis Pépin; Robert Picard; Stéphane Zeng; Julia Ayache; Nuria Calves Venturos; Yann Micheli; Ingrid Jullian-Desayes; Daniel Laune
Journal:  Clin Transl Allergy       Date:  2020-06-19       Impact factor: 5.871

6.  Validation of the Turkish version of the Urticaria Control Test: Correlation with other tools and comparison between spontaneous and inducible chronic urticaria.

Authors:  Emek Kocatürk; Utkan Kızıltaç; Pelin Can; Rabia Öztaş Kara; Teoman Erdem; Kübra Kızıltaç; Nagihan Sahillioğlu; Aslı Gelincik; Marcus Maurer; Karsten Weller
Journal:  World Allergy Organ J       Date:  2019-01-26       Impact factor: 4.084

7.  How are patients with chronic urticaria interested in using information and communication technologies to guide their healthcare? A UCARE study.

Authors:  Ivan Cherrez-Ojeda; Emanuel Vanegas; Annia Cherrez; Miguel Felix; Karsten Weller; Markus Magerl; Rasmus Robin Maurer; Valeria L Mata; Alicja Kasperska-Zajac; Agnieszka Sikora; Daria Fomina; Elena Kovalkova; Kiran Godse; Nimmagadda Dheeraj Rao; Maryam Khoshkhui; Sahar Rastgoo; Roberta Fj Criado; Mohamed Abuzakouk; Deepa Grandon; Martijn B A Van Doorn; Solange Oliveira Rodrigues Valle; Eduardo Magalhães De Souza Lima; Simon Francis Thomsen; German D Ramón; Edgar E Matos Benavides; Andrea Bauer; Ana M Giménez-Arnau; Emek Kocatürk; Carole Guillet; Jose Ignacio Larco; Zuo-Tao Zhao; Michael Makris; Carla Ritchie; Paraskevi Xepapadaki; Luis Felipe Ensina; Sofia Cherrez; Marcus Maurer
Journal:  World Allergy Organ J       Date:  2021-06-04       Impact factor: 4.084

8.  Angioedema Activity Score (AAS): A Valid and Reliable Tool to Use in Asian Patients.

Authors:  Kanokvalai Kulthanan; Leena Chularojanamontri; Chuda Rujitharanawong; Puncharas Weerasubpong; Karsten Weller; Marcus Maurer
Journal:  Biomed Res Int       Date:  2019-10-31       Impact factor: 3.411

9.  Angioedema quality of life questionnaire (AE-QoL) - interpretability and sensitivity to change.

Authors:  Kanokvalai Kulthanan; Leena Chularojanamontri; Chuda Rujitharanawong; Puncharas Weerasubpong; Marcus Maurer; Karsten Weller
Journal:  Health Qual Life Outcomes       Date:  2019-10-26       Impact factor: 3.186

10.  Assessment of disease activity and quality of life in patients with recurrent bradykinin-mediated versus mast cell-mediated angioedema.

Authors:  Pelin Kuteyla Can; Ece Nur Degi Rmentepe; Piril Etikan; Kübra Kiziltaç; Asli Gelincik; Semra Demir; Suna Buyukozturk; Eda Haşal; Emel Bülbül Başkan; Ömür Aydin; Marcus Maurer; Karsten Weller; Emek Kocaturk
Journal:  World Allergy Organ J       Date:  2021-06-16       Impact factor: 4.084

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