Janneke Koerts1, Miriam König2, Lara Tucha2, Oliver Tucha2. 1. Department of Clinical and Developmental Neuropsychology, Faculty of Behavioral and Social Sciences, University of Groningen, The Netherlands. Electronic address: janneke.koerts@rug.nl. 2. Department of Clinical and Developmental Neuropsychology, Faculty of Behavioral and Social Sciences, University of Groningen, The Netherlands.
Abstract
INTRODUCTION: Parkinson's disease (PD) is characterized by motor and non-motor symptoms and has a median age-of-onset around 55 years. Many PD patients are thus diagnosed before reaching retirement age and it is likely that they are confronted with a reduced working capacity or loss of employment. This systematic literature review gives an overview of the research conducted on work capacity in PD. METHODS: A systematic literature search was performed in PsycINFO and PubMed (Keywords: "Parkinson" or "Parkinson's disease" combined with "employment", "work", "working", "retire" or "retirement"). RESULTS: Thirteen studies were identified and showed that PD patients retired 4-7 years earlier than the general population. Furthermore, 23%-75% of patients report that they retired early because of PD and slowness and fatigue were reported as the most debilitating symptoms in relation to working capacity. Early retirement of PD patients is associated with high societal costs and a high loss of individual lifetime earnings. Although many employed PD patients asked for adjustments at their workplace, their employers did not always support these. CONCLUSIONS: PD has a detrimental effect on working capacity and is associated with high costs. Employed PD patients do not, however, always receive the support they need. It is therefore very relevant that employers and patients are informed about strategies and techniques developed for counteracting symptoms of PD which might support patients to stay in the workforce for a longer period of time.
INTRODUCTION:Parkinson's disease (PD) is characterized by motor and non-motor symptoms and has a median age-of-onset around 55 years. Many PDpatients are thus diagnosed before reaching retirement age and it is likely that they are confronted with a reduced working capacity or loss of employment. This systematic literature review gives an overview of the research conducted on work capacity in PD. METHODS: A systematic literature search was performed in PsycINFO and PubMed (Keywords: "Parkinson" or "Parkinson's disease" combined with "employment", "work", "working", "retire" or "retirement"). RESULTS: Thirteen studies were identified and showed that PDpatients retired 4-7 years earlier than the general population. Furthermore, 23%-75% of patients report that they retired early because of PD and slowness and fatigue were reported as the most debilitating symptoms in relation to working capacity. Early retirement of PDpatients is associated with high societal costs and a high loss of individual lifetime earnings. Although many employed PDpatients asked for adjustments at their workplace, their employers did not always support these. CONCLUSIONS:PD has a detrimental effect on working capacity and is associated with high costs. Employed PDpatients do not, however, always receive the support they need. It is therefore very relevant that employers and patients are informed about strategies and techniques developed for counteracting symptoms of PD which might support patients to stay in the workforce for a longer period of time.
Authors: Kimberly C Paul; Steve Horvath; Irish Del Rosario; Jeff M Bronstein; Beate Ritz Journal: Clin Epigenetics Date: 2021-03-22 Impact factor: 6.551
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