Literature DB >> 27023708

Social/economic costs and health-related quality of life in patients with rare diseases in Europe.

Julio López-Bastida1,2, Juan Oliva-Moreno3,4, Renata Linertová3,5, Pedro Serrano-Aguilar3,6.   

Abstract

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Year:  2016        PMID： 27023708     DOI： 10.1007/s10198-016-0780-7

Source DB:  PubMed          Journal:  Eur J Health Econ        ISSN： 1618-7598


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3.  Social/economic costs and health-related quality of life in patients with histiocytosis in Europe.

Authors:  Georgi Iskrov; Itziar Astigarraga; Rumen Stefanov; Julio López-Bastida; Renata Linertová; Juan Oliva-Moreno; Pedro Serrano-Aguilar; Manuel Posada-de-la-Paz; Arrigo Schieppati; Domenica Taruscio; Márta Péntek; Johann Matthias Graf von der Schulenburg; Panos Kanavos; Karine Chevreul; Ulf Persson; Giovanni Fattore
Journal:  Eur J Health Econ       Date:  2016-04-04

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5.  Social/economic costs and health-related quality of life in patients with juvenile idiopathic arthritis in Europe.

Authors:  A Kuhlmann; T Schmidt; M Treskova; J López-Bastida; R Linertová; J Oliva-Moreno; P Serrano-Aguilar; M Posada-de-la-Paz; P Kanavos; D Taruscio; A Schieppati; G Iskrov; M Péntek; C Delgado; J M von der Schulenburg; U Persson; K Chevreul; G Fattore
Journal:  Eur J Health Econ       Date:  2016-04-16

6.  Social economic costs and health-related quality of life in patients with degenerative cerebellar ataxia in Spain.

Authors:  Julio López-Bastida; Lilisbeth Perestelo-Pérez; Fernando Montón-Alvarez; Pedro Serrano-Aguilar
Journal:  Mov Disord       Date:  2008-01-30       Impact factor: 10.338

7.  Social economic costs and health-related quality of life in patients with amyotrophic lateral sclerosis in Spain.

Authors:  Julio López-Bastida; Lilisbeth Perestelo-Pérez; Fernando Montón-Alvarez; Pedro Serrano-Aguilar; Jose Luis Alfonso-Sanchez
Journal:  Amyotroph Lateral Scler       Date:  2009-08

8.  Minimum prevalence, birth incidence and cause of death for Prader-Willi syndrome in Flanders.

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9.  Incidence of Langerhans cell histiocytosis in children: a population-based study.

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10.  Prevalence rates of mucopolysaccharidoses in Poland.

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1.  How relevant are social costs in economic evaluations? The case of Alzheimer's disease.

Authors:  L M Peña-Longobardo; B Rodríguez-Sánchez; J Oliva-Moreno; I Aranda-Reneo; J López-Bastida
Journal:  Eur J Health Econ       Date:  2019-07-24

Review 2.  Exercise as a multi-modal disease-modifying medicine in systemic sclerosis: An introduction by The Global Fellowship on Rehabilitation and Exercise in Systemic Sclerosis (G-FoRSS).

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3.  The national economic burden of rare disease in the United States in 2019.

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4.  Health Economic Data in Reimbursement of New Medical Technologies: Importance of the Socio-Economic Burden as a Decision-Making Criterion.

Authors:  Georgi Iskrov; Svetlan Dermendzhiev; Tsonka Miteva-Katrandzhieva; Rumen Stefanov
Journal:  Front Pharmacol       Date:  2016-08-17       Impact factor: 5.810

5.  Multi-Criteria Decision Analysis for Assessment and Appraisal of Orphan Drugs.

Authors:  Georgi Iskrov; Tsonka Miteva-Katrandzhieva; Rumen Stefanov
Journal:  Front Public Health       Date:  2016-09-30

6.  Social/economic costs and health-related quality of life in patients with spinal muscular atrophy (SMA) in Spain.

Authors:  Julio López-Bastida; Luz María Peña-Longobardo; Isaac Aranda-Reneo; Eduardo Tizzano; Mark Sefton; Juan Oliva-Moreno
Journal:  Orphanet J Rare Dis       Date:  2017-08-18       Impact factor: 4.123

7.  The economic value of time of informal care and its determinants (The CUIDARSE Study).

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8.  Quantifying the economic impact of caregiving for Duchenne muscular dystrophy (DMD) in Spain.

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9.  The Economic Impact and Health-Related Quality of Life of Spinal Muscular Atrophy. An Analysis across Europe.

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10.  Economic burden and health-related quality of life in tenosynovial giant-cell tumour patients in Europe: an observational disease registry.

Authors:  J Lopez-Bastida; I Aranda-Reneo; B Rodríguez-Sánchez; L M Peña-Longobardo; X Ye; P Laeis; E M Fronk; E Palmerini; A Leithner; M A J Van de Sande
Journal:  Orphanet J Rare Dis       Date:  2021-07-02       Impact factor: 4.123
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