Literature DB >> 27010874

Facing the times: A young onset dementia support group: Facebook™ style.

Denise Craig1, Edward Strivens2,3.   

Abstract

Young onset dementia accounts for up to 1 in 10 dementia diagnoses. Those diagnosed face premature transition into the realm of aged care services and adjustment to an illness of ageing prior to age 65. To help elicit communication of the perceived psychosocial needs of this group, provide a platform to gain peer support and advocate for increased awareness, the Young Onset Dementia Support Group was established on the social networking site, Facebook™ . Followers post comments, read educational or otherwise interesting news feeds, share inspirational quotes and access others living with dementia worldwide. Facebook provides a means of rapid global reach in a way that allows people with dementia to increase their communications and potentially reduce isolation. This paper was authored by the page administrators. We aim to highlight the promising utility of a social network platform just entering its stride amongst health communication initiatives.
© 2016 AJA Inc.

Entities:  

Keywords:  Alzheimer disease; Dementia; Facebook; Self-help groups; Social media

Mesh:

Year:  2016        PMID: 27010874     DOI: 10.1111/ajag.12264

Source DB:  PubMed          Journal:  Australas J Ageing        ISSN: 1440-6381            Impact factor:   2.111


  12 in total

1.  Social Media Use and Perceived Social Isolation Among Young Adults in the U.S.

Authors:  Brian A Primack; Ariel Shensa; Jaime E Sidani; Erin O Whaite; Liu Yi Lin; Daniel Rosen; Jason B Colditz; Ana Radovic; Elizabeth Miller
Journal:  Am J Prev Med       Date:  2017-03-06       Impact factor: 5.043

2.  YouTube as a New Medium for Dementia Education Among Chinese Americans.

Authors:  Nikki Hei Tong Lam; Benjamin K P Woo
Journal:  Community Ment Health J       Date:  2019-10-22

3.  Barriers to Online Dementia Information and Mitigation.

Authors:  Emma Dixon; Jesse Anderson; Diana Blackwelder; Mary Radnofsky; Amanda Lazar
Journal:  Proc SIGCHI Conf Hum Factor Comput Syst       Date:  2022-04-29

4.  Development of Best Practice Guidance on Online Peer Support for People With Young Onset Dementia: Protocol for a Mixed Methods Study.

Authors:  Orii McDermott; Esther Vera Gerritzen; Martin Orrell
Journal:  JMIR Res Protoc       Date:  2022-07-05

Review 5.  Questioning reliability assessments of health information on social media.

Authors:  Nicole K Dalmer
Journal:  J Med Libr Assoc       Date:  2017-01

6.  Premature primary tooth eruption in cognitive/motor-delayed ADNP-mutated children.

Authors:  I Gozes; A Van Dijck; G Hacohen-Kleiman; I Grigg; G Karmon; E Giladi; M Eger; Y Gabet; M Pasmanik-Chor; E Cappuyns; O Elpeleg; R F Kooy; S Bedrosian-Sermone
Journal:  Transl Psychiatry       Date:  2017-02-21       Impact factor: 6.222

7.  The Eight and a Half Year Journey of Undiagnosed AD: Gene Sequencing and Funding of Advanced Genetic Testing Has Led to Hope and New Beginnings.

Authors:  Illana Gozes; Marc C Patterson; Anke Van Dijck; R Frank Kooy; Joseph N Peeden; Jacob A Eichenberger; Angela Zawacki-Downing; Sandra Bedrosian-Sermone
Journal:  Front Endocrinol (Lausanne)       Date:  2017-05-19       Impact factor: 5.555

8.  Music and Psychology & Social Connections Program: Protocol for a Novel Intervention for Dyads Affected by Younger-Onset Dementia.

Authors:  Samantha M Loi; Libby Flynn; Claire Cadwallader; Phoebe Stretton-Smith; Christina Bryant; Felicity A Baker
Journal:  Brain Sci       Date:  2022-04-15

9.  Why aren't people with young onset dementia and their supporters using formal services? Results from the INSPIRED study.

Authors:  Monica Cations; Adrienne Withall; Ruth Horsfall; Nicole Denham; Fiona White; Julian Trollor; Clement Loy; Henry Brodaty; Perminder Sachdev; Peter Gonski; Apo Demirkol; Robert G Cumming; Brian Draper
Journal:  PLoS One       Date:  2017-07-19       Impact factor: 3.240

10.  The use of digital technologies by people with mild-to-moderate dementia during the COVID-19 pandemic: A positive technology perspective.

Authors:  Catherine V Talbot; Pam Briggs
Journal:  Dementia (London)       Date:  2022-03-25
View more

北京卡尤迪生物科技股份有限公司 © 2022-2023.