Literature DB >> 27009980

Direct to consumer genetic testing and the libertarian right to test.

Michele Loi.   

Abstract

I sketch a libertarian argument for the right to test in the context of 'direct to consumer' (DTC) genetic testing. A libertarian right to genetic tests, as defined here, relies on the idea of a moral right to self-ownership. I show how a libertarian right to test can be inferred from this general libertarian premise, at least as a prima facie right, shifting the burden of justification on regulators. I distinguish this distinctively libertarian position from some arguments based on considerations of utility or autonomy, which are sometimes labelled 'libertarian' because they oppose a tight regulation of the direct to consumer genetic testing sector. If one takes the libertarian right to test as a starting point, the whole discussion concerning autonomy and personal utility may be sidestepped. Finally, I briefly consider some considerations that justify the regulation of the DTC genetic testing market, compatible with the recognition of a prima facie right to test. Published by the BMJ Publishing Group Limited. For permission to use (where not already granted under a licence) please go to http://www.bmj.com/company/products-services/rights-and-licensing/

Keywords:  Genetic Screening/Testing; Ownership; Political Philosophy; Predictive Genetic Testing; Rights

Mesh:

Year:  2016        PMID: 27009980     DOI: 10.1136/medethics-2015-102827

Source DB:  PubMed          Journal:  J Med Ethics        ISSN: 0306-6800            Impact factor:   2.903


  2 in total

1.  From Expectations to Experiences: Consumer Autonomy and Choice in Personal Genomic Testing.

Authors:  Jacqueline Savard; Chriselle Hickerton; Sylvia A Metcalfe; Clara Gaff; Anna Middleton; Ainsley J Newson
Journal:  AJOB Empir Bioeth       Date:  2019-12-30

2.  Commercial DNA tests and police investigations: a broad bioethical perspective.

Authors:  Nina F de Groot; Britta C van Beers; Gerben Meynen
Journal:  J Med Ethics       Date:  2021-09-11       Impact factor: 2.903

  2 in total

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