Literature DB >> 26989348

Interventions to improve patient access to and utilisation of genetic and genomic counselling services.

Caroline M Benjamin1, Lois H Thomas2, Heather Skirton3, Shanna Gustafson4, Jacqueline Coupe2, Christine Patch5, Rachel Belk6, Svetlana Tishkovskaya2, Kathleen Calzone7, Katherine Payne8.   

Abstract

This is the protocol for a review and there is no abstract. The objectives are as follows. PRIMARY
OBJECTIVE: The primary objective is to assess the effectiveness of interventions to improve patient identification, access to and utilisation of genetic and genomic counselling services when compared to: No intervention;Usual or current practice; andOther active intervention. SECONDARY
OBJECTIVE: The secondary objective is to explore the resource use and costs associated with interventions aimed at improving patient identification, access to and utilisation of genetic and genomic counselling services from studies meeting the eligibility criteria. We will report on factors that may explain variation in the effectiveness of interventions aimed at improving patient identification, access to and utilisation of genetic and genomic counselling services from studies meeting the eligibility criteria. Another secondary objective is to explore how interventions which target improved patient identification, access to and utilisation of genetic and genomic counselling services affect the subsequent appropriate use of health services for the prevention or early detection of disease. It is also possible that the genetic counselling interaction itself will contribute to the possible use of preventative services.

Entities:  

Year:  2015        PMID: 26989348      PMCID: PMC4790801          DOI: 10.1002/14651858.CD011873

Source DB:  PubMed          Journal:  Cochrane Database Syst Rev        ISSN: 1361-6137


  24 in total

1.  Using a community of practice to develop standards of practice and education for genetic counsellors in Europe.

Authors:  Heather Skirton; Christine Patch; Marie-Antoinette Voelckel
Journal:  J Community Genet       Date:  2010-10-09

2.  A new definition of Genetic Counseling: National Society of Genetic Counselors' Task Force report.

Authors:  Robert Resta; Barbara Bowles Biesecker; Robin L Bennett; Sandra Blum; Susan Estabrooks Hahn; Michelle N Strecker; Janet L Williams
Journal:  J Genet Couns       Date:  2006-04       Impact factor: 2.537

Review 3.  Delivering cancer genetics services--new ways of working.

Authors:  Ros Eeles; Glyn Purland; Jane Maher; D Gareth Evans
Journal:  Fam Cancer       Date:  2007       Impact factor: 2.375

4.  Are interventions theory-based? Development of a theory coding scheme.

Authors:  Susan Michie; Andrew Prestwich
Journal:  Health Psychol       Date:  2010-01       Impact factor: 4.267

5.  Recommendation CM/Rec (2010)11 of the Committee of Ministers to member states on the impact of genetics on the organisation of health care services and training of health professionals.

Authors: 
Journal:  Rev Derecho Genoma Hum       Date:  2011 Jan-Jun

Review 6.  Cancer genetic risk assessment for individuals at risk of familial breast cancer.

Authors:  Jennifer S Hilgart; Bernadette Coles; Rachel Iredale
Journal:  Cochrane Database Syst Rev       Date:  2012-02-15

Review 7.  Interventions for promoting physical activity in people with cystic fibrosis.

Authors:  Narelle S Cox; Jennifer A Alison; Anne E Holland
Journal:  Cochrane Database Syst Rev       Date:  2013-12-13

8.  Genetic nurse counsellors can be an acceptable and cost-effective alternative to clinical geneticists for breast cancer risk genetic counselling. Evidence from two parallel randomised controlled equivalence trials.

Authors:  N Torrance; J Mollison; S Wordsworth; J Gray; Z Miedzybrodzka; N Haites; A Grant; M Campbell; M S Watson; A Clarke; B Wilson
Journal:  Br J Cancer       Date:  2006-07-11       Impact factor: 7.640

9.  Preferred reporting items for systematic reviews and meta-analyses: the PRISMA statement.

Authors:  David Moher; Alessandro Liberati; Jennifer Tetzlaff; Douglas G Altman
Journal:  BMJ       Date:  2009-07-21

10.  Improving family communication after a new genetic diagnosis: a randomised controlled trial of a genetic counselling intervention.

Authors:  Jan M Hodgson; Sylvia A Metcalfe; Maryanne Aitken; Susan M Donath; Clara L Gaff; Ingrid M Winship; Martin B Delatycki; Loane L C Skene; Belinda J McClaren; Jean L Paul; Jane L Halliday
Journal:  BMC Med Genet       Date:  2014-03-14       Impact factor: 2.103

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