Literature DB >> 26984049

Data-driven health management: reasoning about personally generated data in diabetes with information technologies.

Lena Mamykina1, Matthew E Levine2, Patricia G Davidson3, Arlene M Smaldone4, Noemie Elhadad2, David J Albers2.   

Abstract

OBJECTIVE: To investigate how individuals with diabetes and diabetes educators reason about data collected through self-monitoring and to draw implications for the design of data-driven self-management technologies.
MATERIALS AND METHODS: Ten individuals with diabetes (six type 1 and four type 2) and 2 experienced diabetes educators were presented with a set of self-monitoring data captured by an individual with type 2 diabetes. The set included digital images of meals and their textual descriptions, and blood glucose (BG) readings captured before and after these meals. The participants were asked to review a set of meals and associated BG readings, explain differences in postprandial BG levels for these meals, and predict postprandial BG levels for the same individual for a different set of meals. Researchers compared conclusions and predictions reached by the participants with those arrived at by quantitative analysis of the collected data.
RESULTS: The participants used both macronutrient composition of meals, most notably the inclusion of carbohydrates, and names of dishes and ingredients to reason about changes in postprandial BG levels. Both individuals with diabetes and diabetes educators reported difficulties in generating predictions of postprandial BG; their predictions varied in their correlations with the actual captured readings from r = 0.008 to r = 0.75.
CONCLUSION: Overall, the study showed that identifying trends in the data collected with self-monitoring is a complex process, and that conclusions reached by both individuals with diabetes and diabetes educators are not always reliable. This suggests the need for new ways to facilitate individuals' reasoning with informatics interventions.
© The Author 2016. Published by Oxford University Press on behalf of the American Medical Informatics Association. All rights reserved. For Permissions, please email: journals.permissions@oup.com.

Entities:  

Keywords:  chronic disease; self-care

Mesh:

Substances:

Year:  2016        PMID: 26984049      PMCID: PMC4901380          DOI: 10.1093/jamia/ocv187

Source DB:  PubMed          Journal:  J Am Med Inform Assoc        ISSN: 1067-5027            Impact factor:   4.497


  13 in total

1.  The path to personalized medicine.

Authors:  Margaret A Hamburg; Francis S Collins
Journal:  N Engl J Med       Date:  2010-06-15       Impact factor: 91.245

Review 2.  Computer model for mechanisms underlying ultradian oscillations of insulin and glucose.

Authors:  J Sturis; K S Polonsky; E Mosekilde; E Van Cauter
Journal:  Am J Physiol       Date:  1991-05

Review 3.  Monitoring in chronic disease: a rational approach.

Authors:  Paul Glasziou; Les Irwig; David Mant
Journal:  BMJ       Date:  2005-03-19

Review 4.  Self-monitoring of blood glucose in patients with type 2 diabetes who are not using insulin: a systematic review.

Authors:  Laura M C Welschen; Evelien Bloemendal; Giel Nijpels; Jacqueline M Dekker; Robert J Heine; Wim A B Stalman; Lex M Bouter
Journal:  Diabetes Care       Date:  2005-06       Impact factor: 19.112

5.  Self-monitoring of blood glucose in type 2 diabetes and long-term outcome: an epidemiological cohort study.

Authors:  S Martin; B Schneider; L Heinemann; V Lodwig; H-J Kurth; H Kolb; W A Scherbaum
Journal:  Diabetologia       Date:  2005-12-17       Impact factor: 10.122

6.  The rising global burden of diabetes and its complications: estimates and projections to the year 2010.

Authors:  A F Amos; D J McCarty; P Zimmet
Journal:  Diabet Med       Date:  1997       Impact factor: 4.359

7.  Expert decision making in relation to unanticipated blood glucose levels.

Authors:  B Paterson; S Thorne
Journal:  Res Nurs Health       Date:  2000-04       Impact factor: 2.228

8.  Effectiveness of routine self monitoring of peak flow in patients with asthma. Grampian Asthma Study of Integrated Care (GRASSIC).

Authors: 
Journal:  BMJ       Date:  1994-02-26

9.  Efficacy of self monitoring of blood glucose in patients with newly diagnosed type 2 diabetes (ESMON study): randomised controlled trial.

Authors:  Maurice J O'Kane; Brendan Bunting; Margaret Copeland; Vivien E Coates
Journal:  BMJ       Date:  2008-04-17

10.  A PDA-based dietary self-monitoring intervention to reduce sodium intake in an in-center hemodialysis patient.

Authors:  Mary Ann Sevick; Roslyn A Stone; Matthew Novak; Beth Piraino; Linda Snetselaar; Rita M Marsh; Beth Hall; Heather Lash; Judith Bernardini; Lora E Burke
Journal:  Patient Prefer Adherence       Date:  2008-02-02       Impact factor: 2.711

View more
  14 in total

1.  Self-monitoring diabetes with multiple mobile health devices.

Authors:  Ryan J Shaw; Q Yang; A Barnes; D Hatch; M J Crowley; A Vorderstrasse; J Vaughn; A Diane; A A Lewinski; M Jiang; J Stevenson; D Steinberg
Journal:  J Am Med Inform Assoc       Date:  2020-05-01       Impact factor: 4.497

2.  A new approach to integrating patient-generated data with expert knowledge for personalized goal setting: A pilot study.

Authors:  Marissa Burgermaster; Jung H Son; Patricia G Davidson; Arlene M Smaldone; Gilad Kuperman; Daniel J Feller; Katherine Gardner Burt; Matthew E Levine; David J Albers; Chunhua Weng; Lena Mamykina
Journal:  Int J Med Inform       Date:  2020-04-30       Impact factor: 4.046

3.  The parameter Houlihan: A solution to high-throughput identifiability indeterminacy for brutally ill-posed problems.

Authors:  David J Albers; Matthew E Levine; Lena Mamykina; George Hripcsak
Journal:  Math Biosci       Date:  2019-08-24       Impact factor: 2.144

4.  Designing for engagement with self-monitoring: A user-centered approach with low-income, Latino adults with Type 2 Diabetes.

Authors:  Meghan Reading Turchioe; Elizabeth M Heitkemper; Maichou Lor; Marissa Burgermaster; Lena Mamykina
Journal:  Int J Med Inform       Date:  2019-08-02       Impact factor: 4.046

5.  From Reflection to Action: Combining Machine Learning with Expert Knowledge for Nutrition Goal Recommendations.

Authors:  Elliot G Mitchell; Elizabeth M Heitkemper; Marissa Burgermaster; Matthew E Levine; Yishen Miao; Maria L Hwang; Pooja M Desai; Andrea Cassells; Jonathan N Tobin; Esteban G Tabak; David J Albers; Arlene M Smaldone; Lena Mamykina
Journal:  Proc SIGCHI Conf Hum Factor Comput Syst       Date:  2021-05-07

6.  Personal discovery in diabetes self-management: Discovering cause and effect using self-monitoring data.

Authors:  Lena Mamykina; Elizabeth M Heitkemper; Arlene M Smaldone; Rita Kukafka; Heather J Cole-Lewis; Patricia G Davidson; Elizabeth D Mynatt; Andrea Cassells; Jonathan N Tobin; George Hripcsak
Journal:  J Biomed Inform       Date:  2017-09-30       Impact factor: 6.317

7.  Enabling personalized decision support with patient-generated data and attributable components.

Authors:  Elliot G Mitchell; Esteban G Tabak; Matthew E Levine; Lena Mamykina; David J Albers
Journal:  J Biomed Inform       Date:  2020-12-13       Impact factor: 6.317

8.  Integrating Patient-Generated Health Data Into Clinical Care Settings or Clinical Decision-Making: Lessons Learned From Project HealthDesign.

Authors:  Deborah J Cohen; Sara R Keller; Gillian R Hayes; David A Dorr; Joan S Ash; Dean F Sittig
Journal:  JMIR Hum Factors       Date:  2016-10-19

9.  Personalized glucose forecasting for type 2 diabetes using data assimilation.

Authors:  David J Albers; Matthew Levine; Bruce Gluckman; Henry Ginsberg; George Hripcsak; Lena Mamykina
Journal:  PLoS Comput Biol       Date:  2017-04-27       Impact factor: 4.475

10.  High-fidelity phenotyping: richness and freedom from bias.

Authors:  George Hripcsak; David J Albers
Journal:  J Am Med Inform Assoc       Date:  2018-03-01       Impact factor: 4.497

View more

北京卡尤迪生物科技股份有限公司 © 2022-2023.