Literature DB >> 26945546

'I knew before I was told': Breaches, cues and clues in the diagnostic assemblage.

Louise Locock1, Sarah Nettleton2, Susan Kirkpatrick3, Sara Ryan4, Sue Ziebland5.   

Abstract

Diagnosis can be both a 'diagnostic moment', but also a process over time. This paper uses secondary analysis of narrative interviews on ovarian cancer, antenatal screening and motor neurone disease to explore how people relate assembling procedural, spatial and interactional evidence before the formal diagnostic moment. We offer the idea of a diagnostic assemblage to capture the ways in which individuals connect to and re-order signs and events that come to be associated with their bodies. Building on the empirical work of Poole and Lyne (2000) in the field of breast cancer diagnosis, we identify how patients describe being alerted to their diagnosis, either through 'clues' they report picking up (often inadvertently) or through 'cues', perceived as a more intentional prompt given by a health professional, or an organisational process. For patients, these clues frequently represent a breach in the expected order of their encounter with healthcare. Even seemingly mundane episodes or behaviours take on meanings which health professionals may not themselves anticipate. Our findings speak to an emergent body of work demonstrating that experiences of formal healthcare during the lead-up to diagnosis shape patients' expectations, degree of trust in professionals, and even health outcomes.
Copyright © 2016 Elsevier Ltd. All rights reserved.

Entities:  

Keywords:  Diagnosis; Narrative; Patient experience; Qualitative research; Secondary analysis

Mesh:

Year:  2016        PMID: 26945546     DOI: 10.1016/j.socscimed.2016.02.037

Source DB:  PubMed          Journal:  Soc Sci Med        ISSN: 0277-9536            Impact factor:   4.634


  7 in total

1.  Our genes, our selves: hereditary breast cancer and biological citizenship in Norway.

Authors:  Kari Nyheim Solbrække; Håvard Søiland; Kirsten Lode; Birgitta Haga Gripsrud
Journal:  Med Health Care Philos       Date:  2017-03

2.  "It was a lot Tougher than I Thought It would be". A Qualitative Study on the Changing Nature of Being a Hemophilia Carrier.

Authors:  Charlotte von der Lippe; Jan C Frich; Anna Harris; Kari Nyheim Solbrække
Journal:  J Genet Couns       Date:  2017-05-26       Impact factor: 2.537

3.  Responses to a cancer diagnosis: a qualitative patient-centred interview study.

Authors:  Emma R Kirby; Katherine E Kenny; Alexander F Broom; John L Oliffe; Sophie Lewis; David K Wyld; Patsy M Yates; Rhiannon B Parker; Zarnie Lwin
Journal:  Support Care Cancer       Date:  2019-04-24       Impact factor: 3.603

Review 4.  The sociology of cancer: a decade of research.

Authors:  Anne Kerr; Emily Ross; Gwen Jacques; Sarah Cunningham-Burley
Journal:  Sociol Health Illn       Date:  2018-02-15

5.  The convivial and the pastoral in patient-doctor relationships: a multi-country study of patient stories of care, choice and medical authority in cancer diagnostic processes.

Authors:  John I MacArtney; Rikke S Andersen; Marlene Malmström; Birgit Rasmussen; Sue Ziebland
Journal:  Sociol Health Illn       Date:  2020-02-26

6.  Untimely illness: When diagnosis does not match age-related expectations.

Authors:  Susan Kirkpatrick; Louise Locock; Albert Farre; Sara Ryan; Helen Salisbury; Janet E McDonagh
Journal:  Health Expect       Date:  2018-02-09       Impact factor: 3.377

7.  Vulnerability as practice in diagnosing multiple conditions.

Authors:  Lindsay-Ann Coyle; Sarah Atkinson
Journal:  Med Humanit       Date:  2018-06-27
  7 in total

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