Literature DB >> 26939011

First, design for data sharing.

John Wilbanks1, Stephen H Friend1.   

Abstract

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Year:  2016        PMID： 26939011     DOI： 10.1038/nbt.3516

Source DB:  PubMed          Journal:  Nat Biotechnol        ISSN： 1087-0156            Impact factor:   54.908


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  5 in total

1.  Data Sharing.

Authors:  Dan L Longo; Jeffrey M Drazen
Journal:  N Engl J Med       Date:  2016-01-21       Impact factor: 91.245

Review 2.  The Unified Parkinson's Disease Rating Scale (UPDRS): status and recommendations.

Authors: 
Journal:  Mov Disord       Date:  2003-07       Impact factor: 10.338

3.  Controlled Access under Review: Improving the Governance of Genomic Data Access.

Authors:  Mahsa Shabani; Stephanie O M Dyke; Yann Joly; Pascal Borry
Journal:  PLoS Biol       Date:  2015-12-31       Impact factor: 8.029

4.  From the principles of genomic data sharing to the practices of data access committees.

Authors:  Mahsa Shabani; Bartha Maria Knoppers; Pascal Borry
Journal:  EMBO Mol Med       Date:  2015-05       Impact factor: 12.137

5.  The mPower study, Parkinson disease mobile data collected using ResearchKit.

Authors:  Brian M Bot; Christine Suver; Elias Chaibub Neto; Michael Kellen; Arno Klein; Christopher Bare; Megan Doerr; Abhishek Pratap; John Wilbanks; E Ray Dorsey; Stephen H Friend; Andrew D Trister
Journal:  Sci Data       Date:  2016-03-03       Impact factor: 6.444
  5 in total
  18 in total

1.  Indicators of retention in remote digital health studies: a cross-study evaluation of 100,000 participants.

Authors:  Abhishek Pratap; Elias Chaibub Neto; Phil Snyder; Carl Stepnowsky; Noémie Elhadad; Daniel Grant; Matthew H Mohebbi; Sean Mooney; Christine Suver; John Wilbanks; Lara Mangravite; Patrick J Heagerty; Pat Areán; Larsson Omberg
Journal:  NPJ Digit Med       Date:  2020-02-17

Review 2.  Crowdsourcing biomedical research: leveraging communities as innovation engines.

Authors:  Julio Saez-Rodriguez; James C Costello; Stephen H Friend; Michael R Kellen; Lara Mangravite; Pablo Meyer; Thea Norman; Gustavo Stolovitzky
Journal:  Nat Rev Genet       Date:  2016-07-15       Impact factor: 53.242

3.  Consent and engagement, security, and authentic living using wearable and mobile health technology.

Authors:  Karola V Kreitmair; Mildred K Cho; David C Magnus
Journal:  Nat Biotechnol       Date:  2017-07-12       Impact factor: 54.908

4.  The Asthma Mobile Health Study, a large-scale clinical observational study using ResearchKit.

Authors:  Yu-Feng Yvonne Chan; Pei Wang; Linda Rogers; Nicole Tignor; Micol Zweig; Steven G Hershman; Nicholas Genes; Erick R Scott; Eric Krock; Marcus Badgeley; Ron Edgar; Samantha Violante; Rosalind Wright; Charles A Powell; Joel T Dudley; Eric E Schadt
Journal:  Nat Biotechnol       Date:  2017-03-13       Impact factor: 54.908

5.  Digital Phenotyping in Clinical Neurology.

Authors:  Anoopum S Gupta
Journal:  Semin Neurol       Date:  2022-01-11       Impact factor: 3.212

Review 6.  Reconciling evidence-based medicine and precision medicine in the era of big data: challenges and opportunities.

Authors:  Jacques S Beckmann; Daniel Lew
Journal:  Genome Med       Date:  2016-12-19       Impact factor: 11.117

7.  Dynamic Consent: a potential solution to some of the challenges of modern biomedical research.

Authors:  Isabelle Budin-Ljøsne; Harriet J A Teare; Jane Kaye; Stephan Beck; Heidi Beate Bentzen; Luciana Caenazzo; Clive Collett; Flavio D'Abramo; Heike Felzmann; Teresa Finlay; Muhammad Kassim Javaid; Erica Jones; Višnja Katić; Amy Simpson; Deborah Mascalzoni
Journal:  BMC Med Ethics       Date:  2017-01-25       Impact factor: 2.652

8.  The challenges of the expanded availability of genomic information: an agenda-setting paper.

Authors:  Pascal Borry; Heidi Beate Bentzen; Isabelle Budin-Ljøsne; Martina C Cornel; Heidi Carmen Howard; Oliver Feeney; Leigh Jackson; Deborah Mascalzoni; Álvaro Mendes; Borut Peterlin; Brigida Riso; Mahsa Shabani; Heather Skirton; Sigrid Sterckx; Danya Vears; Matthias Wjst; Heike Felzmann
Journal:  J Community Genet       Date:  2017-09-26

9.  Consent Processes for Mobile App Mediated Research: Systematic Review.

Authors:  Sarah Moore; Anne-Marie Tassé; Adrian Thorogood; Ingrid Winship; Ma'n Zawati; Megan Doerr
Journal:  JMIR Mhealth Uhealth       Date:  2017-08-30       Impact factor: 4.773

10.  Precision medicine at the crossroads.

Authors:  Maynard V Olson
Journal:  Hum Genomics       Date:  2017-10-11       Impact factor: 4.639
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