Literature DB >> 26909777

The Language of Engagement: "Aha!" Moments from Engaging Patients and Community Partners in Two Pilot Projects of the Patient-Centered Outcomes Research Institute.

Ming Tai-Seale1, Greer Sullivan2, Ann Cheney3, Kathleen Thomas4, Dominick Frosch5.   

Abstract

Compared with people living in the community, researchers often have different frameworks or paradigms for thinking about health and wellness. These differing frameworks are often accompanied by differences in terminology or language. The purpose of this commentary is to describe some of our "Aha!" moments from conducting two pilot studies funded by the Patient-Centered Outcomes Research Institute. Over time, we came to understand how our language and word choices may have been acting as a wedge between ourselves and our community research partners. We learned that fruitful collaborative work must attend to the creation of a common language, which we refer to as the language of engagement. Such patient-centered language can effectively build a bridge between researchers and community partners. We encourage other researchers to think critically about their cultural competency, to be mindful of the social power dynamics between patient and physician, to reflect on how their understanding might differ from those of their patient partners, and to find ways to use a common language that engages patients and other community partners.

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Year:  2016        PMID: 26909777      PMCID: PMC4867833          DOI: 10.7812/TPP/15-123

Source DB:  PubMed          Journal:  Perm J        ISSN: 1552-5767


  9 in total

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Authors:  Jared R Adams; Glyn Elwyn; France Légaré; Dominick L Frosch
Journal:  Arch Intern Med       Date:  2012-08-13

5.  Using community-based participatory research to address health disparities.

Authors:  Nina B Wallerstein; Bonnie Duran
Journal:  Health Promot Pract       Date:  2006-06-07

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Authors:  J A Sirey; M L Bruce; G S Alexopoulos; D A Perlick; P Raue; S J Friedman; B S Meyers
Journal:  Am J Psychiatry       Date:  2001-03       Impact factor: 18.112

7.  Patients with mental health needs are engaged in asking questions, but physicians' responses vary.

Authors:  Ming Tai-Seale; Patricia K Foo; Cheryl D Stults
Journal:  Health Aff (Millwood)       Date:  2013-02       Impact factor: 6.301

8.  Authoritarian physicians and patients' fear of being labeled 'difficult' among key obstacles to shared decision making.

Authors:  Dominick L Frosch; Suepattra G May; Katharine A S Rendle; Caroline Tietbohl; Glyn Elwyn
Journal:  Health Aff (Millwood)       Date:  2012-05       Impact factor: 6.301

9.  Values and options in cancer care (VOICE): study design and rationale for a patient-centered communication and decision-making intervention for physicians, patients with advanced cancer, and their caregivers.

Authors:  Michael Hoerger; Ronald M Epstein; Paul C Winters; Kevin Fiscella; Paul R Duberstein; Robert Gramling; Phyllis N Butow; Supriya G Mohile; Paul R Kaesberg; Wan Tang; Sandy Plumb; Adam Walczak; Anthony L Back; Daniel Tancredi; Alison Venuti; Camille Cipri; Gisela Escalera; Carol Ferro; Don Gaudion; Beth Hoh; Blair Leatherwood; Linda Lewis; Mark Robinson; Peter Sullivan; Richard L Kravitz
Journal:  BMC Cancer       Date:  2013-04-09       Impact factor: 4.430

  9 in total
  8 in total

1.  Developing a Patient- and Family-Centered Research Agenda for Hospital Medicine: The Improving Hospital Outcomes through Patient Engagement (i-HOPE) Study.

Authors:  James D Harrison; Michelle Archuleta; Esther Avitia; Jim Banta; Joy Benn; Marisha Burden; Vineet Chopra; Rebecca Coker; Shaker Eid; Margaret C Fang; Kathlyn Fletcher; Julie Hagan; Jawali Jaranilla; Monalisa Mullick; Christopher Nyenpan; Lali Silva; Melissa Wurst; Georgiann Ziegler; Luci Leykum
Journal:  J Hosp Med       Date:  2020-06       Impact factor: 2.960

2.  Psychometric evaluation of a patient-reported item bank for healthcare engagement.

Authors:  Benjamin D Schalet; Steven P Reise; Donna M Zulman; Eleanor T Lewis; Rachel Kimerling
Journal:  Qual Life Res       Date:  2021-04-09       Impact factor: 4.147

3.  Parent Activation and Child Mental Health Service use in African American Families in a Large Cross-Sectional Study.

Authors:  Kathleen C Thomas; Izabela Annis; Alan R Ellis; Leslie B Adams; Scott A Davis; Tywanda Lightfoot; Twyla Perryman; Madeline Wheeley; Linmarie Sikich; Joseph P Morrissey
Journal:  Perm J       Date:  2020-12

4.  Veteran-centered barriers to VA mental healthcare services use.

Authors:  Ann M Cheney; Christopher J Koenig; Christopher J Miller; Kara Zamora; Patricia Wright; Regina Stanley; John Fortney; James F Burgess; Jeffrey M Pyne
Journal:  BMC Health Serv Res       Date:  2018-07-31       Impact factor: 2.655

5.  What do stakeholders expect from patient engagement: Are these expectations being met?

Authors:  Mathieu Boudes; Paul Robinson; Neil Bertelsen; Nicholas Brooke; Anton Hoos; Marc Boutin; Jan Geissler; Ify Sargeant
Journal:  Health Expect       Date:  2018-06-01       Impact factor: 3.377

6.  Participatory praxis as an imperative for health-related stigma research.

Authors:  Laurel Sprague; Rima Afifi; George Ayala; Musah Lumumba El-Nasoor
Journal:  BMC Med       Date:  2019-02-15       Impact factor: 8.775

7.  Patient involvement in medical research: what patients and physicians learn from each other.

Authors:  Kalen Young; Dana Kaminstein; Ana Olivos; Cristina Burroughs; Celeste Castillo-Lee; Joyce Kullman; Carol McAlear; Dianne G Shaw; Antoine Sreih; George Casey; Peter A Merkel
Journal:  Orphanet J Rare Dis       Date:  2019-01-24       Impact factor: 4.123

Review 8.  Patient stakeholder engagement in research: A narrative review to describe foundational principles and best practice activities.

Authors:  James D Harrison; Andrew D Auerbach; Wendy Anderson; Maureen Fagan; Martha Carnie; Catherine Hanson; Jim Banta; Gina Symczak; Edmondo Robinson; Jeffrey Schnipper; Celene Wong; Rachel Weiss
Journal:  Health Expect       Date:  2019-02-13       Impact factor: 3.377

  8 in total

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